Patientenkompetenz zur Krankheitsbewältigung – Eine qualitative Analyse bei Frauen mit Brustkrebs und gynäkologischen Tumoren

Zusammenfassung

Ziel Die Studie exploriert Herausforderungen, persönliche Kompetenzen und hilfreiche Unterstützung bei der Krankheitsbewältigung von Patienteninnen mit Brustkrebs und gynäkologischen Tumoren und wie die Patientenkompetenz als Zusammenspiel dieser Faktoren gefördert werden kann.

Methodik Teilstrukturierte Leitfadeninterviews wurden mit 19 Patientinnen im Akutsetting, 20 Rehabilitandinnen und 16 Teilnehmerinnen einer Selbsthilfegruppe geführt und mittels qualitativer Inhaltsanalyse ausgewertet.

Ergebnisse Die thematisierten Herausforderungen sind in die Hauptkategorien – Diagnoseverarbeitung, Behandlungs-/Rezidivängste, Krankheitsverarbeitung und Adaptation, Sorgen um Angehörige, Reaktionen des sozialen Umfeldes, Sorgen um den Arbeitsplatz – zusammengefasst. Die benannten persönlichen Kompetenzen im Umgang mit diesen Herausforderungen sind den folgenden Hauptkategorien zugeordnet: kognitionsbezogenes Coping, handlungsbezogenes Coping, Selbstregulation Krankheitsverarbeitung, Unterstützung einholen und annehmen, selbstbestimmte Kommunikation der Erkrankung, hilfreiche Strategien identifizieren und anwenden, krankheitsbezogene Erfahrung, günstige Lebensumstände, Offenheit für Hilfsangebote. Hilfreiche emotionale, informationelle oder instrumentelle Unterstützung wird durch Angehörige, Freunde, Tiere, Arbeitskollegen/Arbeitgeber, Behandler, Rehabilitation, Mitpatientinnen/Betroffene, Selbsthilfe und Beratungseinrichtungen wahrgenommen.

Diskussion Die Frauen beschreiben eine Vielzahl an persönlichen Kompetenzen, die einem bedürfnisorientierten, selbstgesteuerten Bewältigungsprozess entsprechen. Die Individualität und Komplexität des Zusammenspiels der Komponenten der Patientenkompetenz unterstreicht die Relevanz von patientenorientierter Versorgung. Empowerment und eine aktive Patientenrolle sind erforderlich, um bedürfnisbezogen Bewältigungsfertigkeiten zu fördern. Unterstützung durch Behandler oder das private Umfeld kann dabei Herausforderungen vermindern oder Kompetenzen und deren Anwendung fördern.

Abstract

Objective The study explores challenges, competencies, and helpful support in coping with the disease of patients with breast cancer and gynaecological cancer and how patient competence as an interaction of these factors might be promoted.

Methods Semi-structured interviews were conducted with 19 patients in acute care, 20 patients undergoing rehabilitation, and 16 participants in a self-help group and evaluated using qualitative content analysis.

Results The challenges are summarised in the main categories – diagnosis processing, treatment/recurrence fears, illness processing and adaptation, worries about relatives, reactions of the social environment, and worries about the workplace. The named personal competencies in dealing with these challenges were assigned to the following main categories: cognition-related coping, action-related coping, self-regulation illness processing, obtaining and accepting support, self-determined communication of the illness, identifying and applying helpful strategies, illness-related experience, favourable life circumstances, openness to offers of help. Helpful emotional, informational or instrumental support is perceived by relatives, friends, animals, colleagues/employers, treatment providers, rehabilitation, fellow patients, self-help, and counselling facilities.

Discussion The women describe a variety of competencies, which corresponds to a needs-oriented, self-directed coping process. The individuality and complexity of the interaction of the components of patient competence underline the relevance of patient-oriented care. Empowerment and an active patient role are necessary to promote their coping skills according to their needs. Support from practitioners or the private environment can reduce challenges or promote competencies and application.

Schlüsselwörter

Patientenkompetenz - Krankheitsverarbeitung - psychische Belastung - Onkologie

Key words

patient competence - coping - distress - cancer

Publication History

Received: 28 July 2022

Accepted: 06 October 2022

Article published online:
22 November 2022

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