Gesundheitsbezogene Lebensqualität bei Stimm- und Aussprachestörungen

Menschen mit Kommunikationsstörungen sind in ihrer sozialen Teilhabe eingeschränkt, was häufig die gesundheitsbezogene Lebensqualität stärker beeinträchtigt als offensichtliche physische Leiden. Diese Einschränkungen werden durch Selbsteinschätzungen der Betroffenen, ggf. auch durch die Angehörigen erfasst. Sie korrelieren oft nur wenig mit objektiven Parametern zur Quantifizierung der Störung.

Abstract

Those affected by communication disorders are restricted in their communicative participation, which often affects health-related quality of life more than obvious physical ailments. These restrictions are recorded through self-assessments by those affected, and possibly also by relatives. They often have little correlation with objective parameters for quantifying the disorder. Health-related quality of life HRQoL is a non-disorder-specific parameter and does not reflect the type or extent of dysphonia, dysglossia or dysarthrophonia, nor the consequences of a possibly minor disorder in a speech-intensive occupation. Therefore HRQoL should be assessed in a standardized manner. Emotional and physical complaints influence both the self-perception of the extent of the disorder and thus the level of suffering. Recording them increases the success of the treatment and patient satisfaction.

Schlüsselwörter

Gesundheitsbezogene Lebensqualität - HRQoL - Dysphonie - Dysglossie - Dysarthrophonie

Keywords

Health Related Quality of Life - Voice Disorder - Speech Disorder

Publikationsverlauf

Artikel online veröffentlicht:
13. September 2021

• Literatur

• 1 Bullinger M. Health-related quality of life and subjective health: a survey of research on a new assessment criterion in medicine. Psychother Psychosom Med Psychol 1997; 47: 76-91
• 2 Krischke S, Weigelt S, Hoppe U. et al. Quality of life in dysphonic patients. J Voice 2005; 19: 132-137
• 3 Wilson JA, Deary IJ, Millar A. et al. The quality of life impact of dysphonia. Clin Otolaryngol 2002; 27: 179-182
• 4 Merrill RM, Roy N, Lowe J. Voice-related symptoms and their effects on quality of life. Ann Otol Rhinol Laryngol 2013; 122: 404-411
• 5 Karlsen T, Sandvik L, Heimdal JH. et al. Health-related Quality of Life as Studied by EORTC QLQ and Voice Handicap Index Among Various Patients With Laryngeal Disease. J Voice 2017; 31: 251.e17-251.e26
• 6 DeVore EK, Carroll TL, Rosner B. et al. Can voice disorders matter as much as life-threatening comorbidities to patientsʼ general health?. Laryngoscope 2020; 130: 2405-2411
• 7 Rosanowski F, Hoppe U. Die subjektive Seite der Dysphonie. Biesinger E, Iro H. HNO-Praxis heute Band 24. Heidelberg: Springer; 2005
• 8 Herrmann-Lingen C, Buss U, Snaith RP. Hospital Anxiety and Depression Scale – Deutsche Version. Deutsche Adaptation der Hospital Anxiety and Depression Scale (HADS) von Snaith R und Zigmond AS. Göttingen: Testzentrale; 2010
• 9 Nilges P, Essau C. Die Depressions-Angst-Stress-Skalen. Der DASS – ein Screeningverfahren nicht nur für Schmerzpatienten. http://www2.psy.unsw.edu.au/DASS/German/DASS21%20Nilges%20&%20Essau/Nilges%20Essau%20DASS%20Schmerz%202015.pdf (Stand: 21.02.2021)
• 10 Montgomery J, Hendry J, Wilson JA. et al. Pragmatic detection of anxiety and depression in a prospective cohort of voice outpatient clinic attenders. Clin Otolaryngol 2016; 41: 2-7
• 11 Andrea M, Andrea M, Figueira ML. Self-perception of quality of life in patients with functional voice disorders: the effects of psychological and vocal acoustic variables. Eur Arch Otorhinolaryngol 2018; 275: 2745-2754
• 12 Dietrich M, Verdolini Abbott K, Gartner-Schmidt J. et al. The frequency of perceived stress, anxiety, and depression in patients with common pathologies affecting voice. J Voice 2008; 22: 472-488
• 13 Maksimovic JM, Vukasinovic MM, Vlajinac HD. et al. Anxiety and depression in patients with vocal fold nodules, edema and polyps. Eur Arch Otorhinolaryngol 2020; 277: 2493-2500
• 14 Marmor S, Horvath KJ, Lim KO. et al. Voice problems and depression among adults in the United States. Laryngoscope 2016; 126: 1859-1864
• 15 Caldeira Martinez C, Cassol M. Measurement of Voice Quality, Anxiety and Depression Symptoms After Speech Therapy. J Voice 2015; 29: 4446-4499
• 16 Pedroza Trajano FM, Alves Almeida LN, Alves Leite de Alencar S. et al. Group Voice Therapy Reduces Anxiety in Patients With Dysphonia. J Voice 2020; 34: 702-708
• 17 Park JO, Shim MR, Hwang YS. et al. Combination of voice therapy and antireflux therapy rapidly recovers voice-related symptoms in laryngopharyngeal reflux patients. Otolaryngol Head Neck Surg 2012; 146: 92-97
• 18 Ramos AC, Liaschi Floro R, Veis Ribeiro V. et al. Musculoskeletal Pain and Voice-related Quality of Life in Dysphonic and Non-dysphonic Subjects. J Voice 2018; 32: 307-313
• 19 Langenfeld A, Bohlender JE, Swanenburg J. et al. Cervical Spine Disability in Correlation with Subjective Voice Handicap in Patients With Voice Disorders: A Retrospective Analysis. J Voice 2020; 34: 371-379
• 20 Krischke S, Hoppe U, Eysholdt U. et al. Körperbeschwerden bei Patienten mit Dysphonien. HNO 2005; 53: 78-84
• 21 Järvenpää P, Laatikainen A, Roine RP. et al. Symptom relief and health-related quality of life in globus patients: a prospective study. Logoped Phoniatr Vocol 2019; 44: 67-72
• 22 Günther S, Rasch T, Klotz M. et al. Bestimmung der subjektiven Beeinträchtigung durch Dysphonien. Ein Methodenvergleich. HNO 2005; 53: 895-900 , 902–904
• 23 Pülz S, Schützenberger A, Grässel E. et al. Zufriedenheit dysphoner Patienten mit einer psychosomatischen Diagnostik und Intervention. HNO 2009; 57: 902-909
• 24 Karnell LH, Funk GF, Hoffman HT. Assessing head and neck cancer patient outcome domains. Head Neck 2000; 22: 6-11
• 25 Singer S, Amdal CD, Hammerlid E. et al. International validation of the revised European Organisation for Research and Treatment of Cancer Head and Neck Cancer Module, the EORTC QLQ-HN43: Phase IV. Head Neck 2019; 41: 1725-1737
• 26 Terrell JE, Nanavati KA, Esclamado RM. et al. Head and neck cancer-specific quality of life: instrument validation. Arch Otolaryngol Head Neck Surg 1997; 123: 1125-1132
• 27 Weymuller Jr EA , Alsarraf R, Yueh B. et al. Analysis of the performance characteristics of the University of Washington Quality of Life instrument and its modification (UW-QOL-R). Arch Otolaryngol Head Neck Surg 2001; 127: 489-493
• 28 Funk GF, Karnell LH, Christensen AJ. et al. Comprehensive head and neck oncology health status assessment. Head Neck 2003; 25: 561-575
• 29 Baylor CR, Yorkston KM, Eadie TL. et al. Developing the Communicative Participation Item Bank: Rasch analysis results from a spasmodic dysphonia sample. J Speech Lang Hear Res 2009; 52: 1302-1320
• 30 Keilmann A, Konerding U, Oberherr C. et al. The Articulation Handicap Scale with 12 items (AHS-12): a short form of the Articulation Handicap Index (AHI). Logoped Phoniatr Vocol 2020; 1-7
• 31 Rinkel RNPM, Verdonck-de Leeuw IM, de Bree R. et al. Validity of Patient-Reported Swallowing and Speech Outcomes in Relation to Objectively Measured Oral Function Among Patients Treated for Oral or Oropharyngeal Cancer. Dysphagia 2015; 30: 196-204
• 32 Zebralla V, Müller J, Wald T. et al. Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare. Front Oncol 2020; 10: 549915
• 33 Sprave T, Zöller D, Stoia R. et al. App-Controlled Treatment Monitoring and Support for Head and Neck Cancer Patients (APCOT): Protocol for a Prospective Randomized Controlled Trial. JMIR Res Protoc 2020; 9: e21693
• 34 Anthony T, Jones C, Atoine J. et al. The effect of treatment for colorectal cancer on long-term health related quality of life. Ann Surg Oncol 2001; 8: 44-49
• 35 Karnell LH, Funk GF, Hoffman HT. Assessing head and neck cancer patient outcome domains. Head Neck 2000; 22: 6-11
• 36 Rogers SN, Laher SH, Overend L. et al. Importance-rating using the University of Washington quality of life questionnaire in patients treated by primary surgery for oral and oro-pharyngeal cancer. J Craniomaxillofac Surg 2002; 30: 125-132
• 37 Sauder C, Kapsner-Smith M, Baylor C. et al. Communicative Participation and Quality of Life in Pretreatment Oral and Oropharyngeal Head and Neck Cancer. Otolaryngol Head Neck Surg 2020;
• 38 Veldhuis D, Probst G, Marek A. et al. Tumor site and disease stage as predictors of quality of life in head and neck cancer: a prospective study on patients treated with surgery or combined therapy with surgery and radiotherapy or radiochemotherapy. Eur Arch Otorhinolaryngol 2016; 273: 215-224
• 39 Eadie T, Kapsner-Smith M, Bolt S. et al. Relationship between perceived social support and patient-reported communication outcomes across communication disorders: a systematic review. Int J Lang Commun Disord 2018; 53: 1059-1077
• 40 Barkmeier-Kraemer JM, Clark HM. Speech-Language Pathology Evaluation and Management of Hyperkinetic Disorders Affecting Speech and Swallowing Function. Review Tremor Other Hyperkinet Mov (NY) 2017; 7: 489
• 41 Mahler LA, Ramig LO, Fox C. Evidence-based treatment of voice and speech disorders in Parkinson disease. Curr Opin Otolaryngol Head Neck Surg 2015; 23: 209-215
• 42 Chu SY, Tan CL. Perception on the Quality of Life, Communication and Life Satisfaction among Individuals with Parkison's and Their Caregivers. Ethiop J Health Sci 2019; 29: 551-558
• 43 Bruneel L, Bettens K, Van Lierde K. The relationship between health-related quality of life and speech in patients with cleft palate. Int J Pediatr Otorhinolaryngol 2019; 120: 112-117
• 44 Kim JH, Fisher LM, Reder L. et al. Speech and Communicative Participation in Patients With Facial Paralysis. JAMA Otolaryngol Head Neck Surg 2018; 144: 686-693