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Arthritis und Rheuma 2021; 41(04): 276-285
DOI: 10.1055/a-1516-0459
Kasuistik Kinderrheumatologie
Übersichtsartikel

Protokolle zur Klassifikation, Überwachung und Therapie in der Kinderrheumatologie (PRO-KIND)

Ein ZwischenstandProtocols für classification, monitoring and therapy in Pediatric Rheumatology (PRO-KIND)An interim status
Gerd Horneff∗
1   Zentrum für Allgemeine Pädiatrie und Neonatologie, Asklepios Klinik Sankt Augustin, Sankt Augustin
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ZUSAMMENFASSUNG

Zur Verbesserung und Harmonisierung der Diagnostik, Überwachung, Therapieentscheidung und der Prognose bei einigen häufigeren pädiatrisch-rheumatologischen Erkrankungen hat die Gesellschaft für Kinder- und Jugendrheumatologie die Kommission PRO-KIND gegründet. Die erstellten Protokolle werden innerhalb der Fachgesellschaft konsentiert, um S1-Leitlinienniveau zu erhalten. Erste Protokolle wurden erstellt und eines in einer ersten klinischen Studie validiert.

SUMMARY

The Society for Pediatric and Adolescent Rheumatology has founded the PRO-KIND commission to improve and harmonize the diagnosis, monitoring, treatment decision and prognosis of some more common pediatric rheumatologic diseases. The protocols established are consulted within the specialty society to maintain S1 guideline level. First protocols have been established and one validated in a first clinical study.

Schlüsselwörter

Pädiatrisch-rheumatologische Erkrankungen - Kommission PRO-KIND - Protokolle

Keywords

Pediatric rheumatologic diseases - PRO-KIND commission - protocols


Publication History

Article published online:
19 August 2021

© 2021. Thieme. All rights reserved.

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  • Literatur

  • 1 Horneff G. Neue Substanzen zur Therapie der juvenilen idiopathischen Arthritis [New drugs for treatment of juvenile idiopathic arthritis]. Z Rheumatol 2019; 78 (07) 587-598 PMID: 31098699
    CrossrefPubMedSearch in Google Scholar
  • 2 Oommen PT, Schütz C. S2k-Leitlinie „Therapie der Juvenilen Idiopathischen Arthritis“. Im Internet:. https://www.awmf.org/uploads/tx_szleitlinien/027-020l_S2k_Juvenile_Idiopathische_Arthritis_2020-10.pdf Stand: 25.05.2021
  • 3 Ringold S, Weiss PF, Beukelman T. et al American College of Rheumatology. 2013 update of the 2011 American College of Rheumatology recommendations for the treatment of juvenile idiopathic arthritis: recommendations for the medical therapy of children with systemic juvenile idiopathic arthritis and tuberculosis screening among children receiving biologic medications. Arthritis Care Res (Hoboken) 2013; 65 (10) 1551-1563 PMID: 24078300, PMCID: PMC5408573
    CrossrefPubMedSearch in Google Scholar
  • 4 Weller-Heinemann F, Ganser G, Sailer-Höck M. et al Protokolle zur Klassifikation, Überwachung und Therapie in der Kinderrheumatologie (PRO-KIND): Polyartikuläre juvenile idiopathische Arthritis. arthritis + rheuma 2017; 37 (02) 136-141
    Thieme ConnectSearch in Google Scholar
  • 5 Horneff G, Klein A, Ganser G. et al Protocols on classification, monitoring and therapy in children’s rheumatology (PRO-KIND): results of the working group Polyarticular juvenile idiopathic arthritis. Pediatr Rheumatol Online J 2017; 15 (01) 78 PMID: 29116003, PMCID: PMC5678777
    CrossrefPubMedSearch in Google Scholar
  • 6 Klein A, Minden K, Hospach A. et al Treat-to-target study for improved outcome in polyarticular juvenile idiopathic arthritis. Ann Rheum Dis 2020; 79 (07) 969-974 Epub 2020 Apr 16, PMID: 32299797
    CrossrefPubMedSearch in Google Scholar
  • 7 Hinze CH, Holzinger D, Lainka E. et al PRO-KIND SJIA project collaborators. Practice and consensus-based strategies in diagnosing and managing systemic juvenile idiopathic arthritis in Germany. Pediatr Rheumatol Online J 2018; 16 (01) 7 PMID: 29357887, PMCID: PMC5778670
    CrossrefPubMedSearch in Google Scholar
  • 8 Hospach A, Trauzeddel R, Windschall D. et al Protokolle zur Klassifikation, Überwachung und Therapie in der Kinderrheumatologie (PRO-KIND): Enthesitis-assoziierte Arthritis. Ergebnisse der Arbeitsgruppe Enthesitis-assoziierte Arthritis in der GKJR-Kommission PRO-KIND. arthritis + rheuma. 2018; 38 (02) 132-140
    PubMedSearch in Google Scholar
  • 9 Schwarz T, Oommen PT, Windschall D. et al Protokolle zur Klassifikation, Überwachung und Therapie in der Kinderrheumatologie (PRO-KIND): Chronisch nicht-bakterielle Osteomyelitis (CNO). arthritis + rheuma. 2018; 38: 282-288
    PubMedSearch in Google Scholar
  • 10 Hinze CH, Oommen PT, Dressler F. et al Development of practice and consensus-based strategies including a treat-to-target approach for the management of moderate and severe juvenile dermatomyositis in Germany and Austria. Pediatr Rheumatol Online J. 2018; 16 (01) 40 PMID: 29940960, PMCID: PMC6019723
    CrossrefPubMedSearch in Google Scholar
  • 11 Hansmann S, Lainka E, Horneff G. et al Consensus protocols for the diagnosis and management of the hereditary autoinflammatory syndromes CAPS TRAPS and MKD/HIDS: a German PRO-KIND initiative. Pediatr Rheumatol Online J. 2020; 18 (01) 17 PMID: 32066461, PMCID: PMC7027082
    CrossrefPubMedSearch in Google Scholar
  • 12 Consolaro A, Giancane G, Schiappapietra B. et al Clinical outcome measures in juvenile idiopathic arthritis. Pediatr Rheumatol Online J 2016; 14 (01) 23
    CrossrefPubMedSearch in Google Scholar
  • 13 Horneff G, Becker I. Definition of improvement in juvenile idiopathic arthritis using the juvenile arthritis disease activity score. Rheumatology (Oxford). 2014; 53 (07) 1229-1234
    PubMedSearch in Google Scholar
  • 14 Consolaro A, Bracciolini G, Ruperto N. et al Paediatric rheumatology international trials organization. Remission, minimal disease activity, and acceptable symptom state in juvenile idiopathic arthritis: defining criteria based on the juvenile arthritis disease activity score. Arthritis Rheum. 2012; 64: 2366-2374
    PubMedSearch in Google Scholar
  • 15 Pignatti P, Vivarelli M, Meazza C. et al Abnormal regulation of interleukin 6 in systemic juvenile idiopathic arthritis. J Rheumatol. 2001; 28 (07) 1670-1676 PMID: 11469477
    PubMedSearch in Google Scholar
  • 16 Petty RE, Southwood TR. et al International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001. J Rheumatol 2004; 31 (02) 390-392
    Search in Google Scholar
  • 17 Yamaguchi M, Ohta A, Tsunematsu T. et al Preliminary criteriafor classification of adult Still’s disease. J Rheumatol 1992; 19 (03) 424-430
    PubMedSearch in Google Scholar
  • 18 Kumar S, Kunhiraman DS, Rajam L. Application of the Yamaguchi criteria for classification of “suspected” systemic juvenile idiopathic arthritis (sJIA). Pediatr Rheumatol Online J 2012; 10 (01) 40
    CrossrefPubMedSearch in Google Scholar
  • 19 Burgos-Vargas R. The assessment of the spondyloarthritis international society concept and criteria for the classification of axial spondyloarthritis and peripheral spondyloarthritis: A critical appraisal for the pediatric rheumatologist. Pediatr Rheumatol Online J 2012; 10 (01) 14
    CrossrefPubMedSearch in Google Scholar
  • 20 Dougados M, van der Linden S, Juhlin R. et al The European Spondylarthropathy Study Group preliminary criteria for the classification of spondylarthropathy. Arthritis Rheum 1991; 34: 1218-1227
    CrossrefPubMedSearch in Google Scholar
  • 21 Weiss PF, Colbert RA, Xiao R. et al Development and retrospective validation of the juvenile spondyloarthritis disease activity index. Arthritis Care Res (Hoboken). 2014; 66 (12) 1775-1782
    PubMedSearch in Google Scholar
  • 22 Jansson A, Renner ED, Ramser J. et al Classification of non-bacterial osteitis: retrospective study of clinical, immunological and genetic aspects in 89 patients. Rheumatology (Oxford) 2007; 46 (01) 154-160
    CrossrefPubMedSearch in Google Scholar
  • 23 Jansson AF, Müller TH, Gliera L. et al Clinical score for nonbacterial osteitis in children and adults. Arthritis Rheum 2009; 60 (04) 1152-1159
    CrossrefPubMedSearch in Google Scholar
  • 24 Rider LG, Aggarwal R, Pistorio A. et al 2016 American College of Rheumatology/European league against rheumatism criteria for minimal, moderate, and major clinical response in juvenile dermatomyositis: aninternational myositis assessment and clinical studies group/Paediatricrheumatology international trials organisation collaborative initiative. Arthritis Rheumatol 2017; 69 (05) 911-923
    CrossrefPubMedSearch in Google Scholar
  • 25 Ruperto N, Pistorio A, Oliveira S. et al Prednisone versus prednisone plusciclosporin versus prednisone plus methotrexate in new-onset juveniledermatomyositis: a randomised trial. Lancet 2016; 387 10019 671-678
    CrossrefPubMedSearch in Google Scholar
  • 26 Piram M, Kone-Paut I, Lachmann HJ. et al Validation of the auto-inflammatory diseases activity index (AIDAI) for hereditary recurrent fever syndromes. Ann Rheum Dis 2014; 73 (12) 2168-2173
    CrossrefPubMedSearch in Google Scholar
  • 27 Ter Haar NM, Annink KV, Al-Mayouf SM. et al Development of the autoinflammatory disease damage index (ADDI). Ann Rheum Dis 2017; 76 (05) 821-830 Epub 2016 Nov 3, PMID: 27811147
    CrossrefPubMedSearch in Google Scholar
  • 28 De Benedetti F, Gattorno M, Anton J. et al Canakinumab for the treatment of autoinflammatory recurrent fever syndromes. N Engl J Med 2018; 378 (20) 1908-1919
    CrossrefPubMedSearch in Google Scholar
  • 29 Goldbach-Mansky R, Dailey NJ, Canna SW. et al Neonatal-onset multisystem inflammatory disease responsive to interleukin-1beta inhibition. N Engl J Med 2006; 355: 581-589
    CrossrefPubMedSearch in Google Scholar
  • 30 Hawkins PN, Lachmann HJ, Aganna E. et al Spectrum of clinical features in Muckle-Wells syndrome and response to anakinra. Arthritis Rheum 2004; 50: 607-612
    CrossrefPubMedSearch in Google Scholar
  • 31 Hull KM, Drewe E, Aksentijevich I. et al The TNF receptor-associated periodic syndrome (TRAPS): emerging concepts of an autoinflammatory disorder. Medicine (Baltimore) 2002; 81: 349-368
    CrossrefPubMedSearch in Google Scholar