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Gesundheitswesen 2021; 83(04): 282-290
DOI: 10.1055/a-1399-9166
Originalarbeit

Auswirkungen der COVID-19 Pandemie auf die medizinische Versorgung von Patienten mit angeborenen Blutungsneigungen

Impact of COVID-19 Pandemic on Medical Care of Patients with Inherited Bleeding Disorders
Martin Olivieri  ‡
1   Abteilung für pädiatrische Hämostaseologie, Pädiatrisches Hämophiliezentrum, Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital, LMU Klinikum, München, Deutschland
,
Susan Halimeh‡
2   Gerinnungszentrum Rhein-Ruhr, Duisburg, Deutschland
,
Cornelia Wermes
3   HämoZentrum Hildesheim-Hannover-Osnabrück, Osnabrück, Deutschland
,
Wolf Hassenpflug
4   Klinik für Kinderheilkunde, Hämatologie und Onkologie, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland
,
Katharina Holstein
5   II. Mediziinische Abteilung, Hämophiliezentrum, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland
,
Sylvia von Mackensen
6   Institut für Medizinische Psychologie, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland
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Zusammenfassung

Fragestellung Chronische Erkrankungen, wie z. B. angeborene Blutungsneigungen (IBD: Inherited Bleeding Disorders), gehen häufig mit einem erhöhten Versorgungsaufwand einher. Maßnahmen zur Eindämmung der COVID-19 Pandemie, inklusive Isolation und Triageierung, haben zu Einschränkungen in der Krankenversorgung von chronisch kranken Patienten geführt. Ziel der vorliegenden Arbeit ist es, die Auswirkungen der COVID-19 Pandemie auf die Krankenversorgung von IBD-Patienten zu untersuchen.

Methodik In dieser multizentrischen Querschnittsstudie zur Bewertung der Auswirkungen von COVID-19 auf die psychische Gesundheit und Versorgungsqualität von Patienten mit angeborener Blutungsneigung wurde ein ad-hoc Fragebogen an 586 Patienten/Eltern von Kindern mit Hämophilie A, B oder von Willebrand Syndrom Typ 3 verschickt. Neben demografischen und klinischen Daten wurden IBD Patienten zu ihren Gedanken, Sorgen und Erfahrungen in Bezug auf ihre medizinische Versorgung während der COVID-19 Pandemie befragt. Unterschiede zwischen klinischen Subgruppen wurden berechnet.

Ergebnisse Signifikante Unterschiede zeigten sich zwischen Subgruppen (Schweregrad, Art der Therapie, Produktklasse, Komorbiditäten) bezüglich Übertragung von COVID-19 durch Plasmaprodukte, Auswirkungen COVID-19 positiver Testergebnisse, Angst COVID-19 zu bekommen, verzögerter Medikamentenversorgung und Physiotherapiebehandlung.

Diskussion Die medizinische Versorgung von IBD-Patienten, die eine kontinuierliche Versorgung mit lebensnotwendigen Medikamenten benötigen, stellt in Pandemiezeiten eine besondere Herausforderung dar. Daher sollten Sorgen und Ängste von IBD-Patienten ernst genommen und innovative Kommunikationswege zur Aufrechterhaltung von Therapiestandards und Versorgungsqualität etabliert werden.

Abstract

Background and Objectives Chronic diseases, such as inherited bleeding disorders (IBD) are often associated with high costs of medical care. COVID-19 containment measures, including isolation and triage, led to restrictions in the health care of chronically ill patients. The aim of the present study was to investigate the effects of the COVID-19 pandemic on the health care of IBD patients.

Methods In this multicentre cross-sectional study to evaluate the effects of COVID-19 on the mental health and quality of care of patients with inherited bleeding disorder, an ad hoc questionnaire was sent to 586 patients/parents of children with haemophilia A, B or von Willebrand syndrome type 3. In addition to demographic and clinical data, patients/parents of patients with inherited bleeding disorders were asked about their thoughts, concerns and experiences regarding their medical care during the COVID-19 pandemic. Differences between clinical subgroups were calculated.

Results Significant differences were found between subgroups (severity, type of therapy, product class, comorbidities) with regard to the transmission of COVID-19 through plasma products, the effects of COVID-19 positive test results, fear of getting COVID-19, delayed drug supply and physiotherapy treatment.

Discussion The medical care of patients with inherited bleeding disorders, who need a continuous supply of essential drugs, is a particular challenge in times of pandemics. Therefore, worries and fears of IBD patients should be taken seriously and innovative communication channels established to maintain therapy standards and quality of care.

Schlüsselwörter

Sars-CoV-2 - Covid-19 Pandemie - Hämophilie - Medizinische Versorgung - Patientenerfahrungen

Key words

Sars-CoV2 - Covid-19 pandemic - Haemophilia - medical care - patient experience


Publication History

Article published online:
08 April 2021

© 2021. Thieme. All rights reserved.

Georg Thieme Verlag KG
Rüdigerstraße 14, 70469 Stuttgart, Germany

 

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