DNVF-Memorandum Versorgungsforschung im letzten Lebensjahr

Zusammenfassung

Versorgungsforschung im letzten Lebensjahr beschäftigt sich mit der wissenschaftlichen Erfassung der Begleitung und Betreuung von schwerstkranken und sterbenden Menschen sowie ihrer An- und Zugehörigen. Patientinnen und Patienten in der letzten Lebensphase können unterschiedlichen Erkrankungsgruppen angehören, besondere Charakteristika aufweisen (z. B. Menschen mit kognitiver und komplexer Beeinträchtigung, ökonomischer Benachteiligung oder Migrationshintergrund) sowie in bestimmten Lebensphasen sein (z. B. Eltern minderjähriger Kinder, (hohes) Alter). Aus der besonderen Situation der Betroffenen sowie aus den Besonderheiten der Versorgung im letzten Lebensjahr ergibt sich das Erfordernis für ein eigenes Memorandum zur Versorgungsforschung in dieser Lebensphase. Dieses Memorandum beschreibt diesbezüglich ethische und methodische Spezifika sowie aktuelle Fragestellungen der Versorgungsforschung und wie diese angemessen mittels quantitativer, qualitativer und gemischter Methoden bearbeitet werden können. Es wurde von der Fachgruppe Palliativmedizin des Deutschen Netzwerk für Versorgungsforschung e.V. (DNVF) entsprechend der Vorgaben für DNVF-Memoranden erarbeitet.

Abstract

This memorandum outlines current issues concerning health services research on seriously ill and dying people in the last year of their lives as well as support available for their relatives. Patients in the last phase of life can belong to different disease groups, they may have special characteristics (e. g., people with cognitive and complex impairments, economic disadvantage or migration background) and be in certain phases of life (e. g., parents of minor children, (old) age). The need for a designated memorandum on health services research in the last year of life results from the special situation of those affected and from the special features of health services in this phase of life. With reference to these special features, this memorandum describes methodological and ethical specifics as well as current issues in health services research and how these can be adequately addressed using quantitative, qualitative and mixed methods. It has been developed by the palliative medicine section of the German Network for Health Services Research (DNVF) according to the guidelines for DNVF memoranda.

Schlüsselwörter

Versorgungsforschung - Forschungsmethoden - Letztes Lebensjahr - Palliativversorgung

Key words

Health services research - research methods - last year of life - palliative care

Publikationsverlauf

Artikel online veröffentlicht:
11. Oktober 2022

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