Partizipatives Design im Kontext gesundheitsbezogener Technologien – Herausforderungen und Handlungserfordernisse aus Perspektive der Versorgungsforschung

Zusammenfassung

Partizipatives Design (PD) ermöglicht den Einbezug von Nutzer:innen in den Entwicklungsprozess digitaler Technologien im Gesundheitswesen. Der Einsatz von PD birgt jedoch Hürden, da theoretische und methodische Entscheidungen zu treffen sind. Oftmals werden diese in Forschungsarbeiten in der Versorgungsforschung nicht hinreichend dargestellt oder begründet. Dies kann zu einer eingeschränkten Bewertbarkeit und Nachvollziehbarkeit der Ergebnisse führen. Der vorliegende Beitrag thematisiert drei Schwerpunkte: Erstens wird ein Überblick über die wesentlichen theoretischen und methodischen Entscheidungen gegeben, die im Rahmen des PD aus Perspektive der Versorgungsforschung getroffen werden müssen. Zweitens werden die damit einhergehenden Herausforderungen aufgezeigt und drittens Erfordernisse für die zukünftige Anwendung und (Weiter-)Entwicklung des PD in der Versorgungsforschung beschrieben.

Abstract

The use of participatory design (PD) provides a framework for involving users in the process of developing healthcare technologies. Within PD, theoretical and methodological decisions need to be made. However, these decisions are often not adequately described or justified. This can lead to limited interpretability of the results. This paper has three objectives: First, to provide an overview of the key theoretical and methodological decisions that must be made in PD from the perspective of health services research; second, to describe the associated challenges and third, to describe action requirements for the future development of PD in health services research.

Schlüsselwörter

Partizipatives Design - Co-Design - Versorgungsforschung - Patient:innen Partizipation - Telemedizin - Digital Health

Key words

Participatory Design - Co-Design - Health Service Research - Patient Participation - Telemedicine - Digital Health

Publication History

Article published online:
21 December 2023

• Literatur

• 1 Duque E, Fonseca G, Vieira H, Gontijo G, Ishitani L. A systematic literature review on user centered design and participatory design with older people. 2019;
• 2 Merkel S, Kucharski A. Participatory Design in Gerontechnology: A Systematic Literature Review. Gerontologist 2019; 59: e16-e25
• 3 Nielsen C, Agerskov H, Bistrup C. et al. User involvement in the development of a telehealth solution to improve the kidney transplantation process: A participatory design study. Health Inform J 2020; 26: 1237-1252
• 4 Moore G, Wilding H, Gray K. et al. Participatory Methods to Engage Health Service Users in the Development of Electronic Health Resources: Systematic Review. J Participatory Medicine 2019; 11: e11474
• 5 Kushniruk A, Nøhr C. Participatory Design, User Involvement and Health IT Evaluation. In: Ammenwerth E, Rigby M. Evidence-Based Health Informatics. Amsterdam: IOS Press BV; 2016
• 6 Vollmar H, Kramer U, Müller H. et al. Digitale Gesundheitsanwendungen – Rahmenbedingungen zur Nutzung in Versorgung, Strukturentwicklung und Wissenschaft – Positionspapier der AG Digital Health des DNVF. Das Gesundheitswesen 2017; 79: 1080-1092
• 7 Vandekerckhove P, Mul de M, Bramer WM. et al. Generative Participatory Design Methodology to Develop Electronic Health Interventions: Systematic Literature Review. J Med Internet Res 2020; 22: e13780
• 8 Clemensen J, Rothmann MJ, Smith AC. et al. Participatory design methods in telemedicine research. J Telemed Telecare 2016; 23: 780-785
• 9 Halskov K, Hansen NB. The diversity of participatory design research practice at PDC 2002–2012. Int J Hum-Comput St 2015; 74: 81-92
• 10 Simonsen J, Robertson T. Routledge International Handbook of Participatory Design. Taylor & Francis; 2012
• 11 Luck R. What is it that makes participation in design participatory design. Design Stud 2018; 59: 1-8
• 12 Peter von S, Bär G, Behrisch B. et al. Partizipative Gesundheitsforschung in Deutschland – quo vadis?. Das Gesundheitswesen 2020; 82: 328-332
• 13 Wright MT. Partizipative Gesundheitsforschung: Ursprünge und heutiger Stand. Bundesgesundheitsblatt – Gesundheitsforschung - Gesundheitsschutz 2021; 64: 140-145
• 14 Davis S, Peters D, Calvo R. et al. “Kiss myAsthma”: Using a participatory design approach to develop a self-management app with young people with asthma. J Asthma 2017; 55: 1018-1027
• 15 Jakobsen PR, Hermann AP, Søndergaard J. et al. Development of an mHealth Application for Women Newly Diagnosed with Osteoporosis without Preceding Fractures: A Participatory Design Approach. Int J Environ Res Pu 2018; 15: 330
• 16 Mitchell KM, Holtz BE, McCarroll A. Patient-Centered Methods for Designing and Developing Health Information Communication Technologies: A Systematic Review. Telemed J E Health 2018; 25: 1012-1021
• 17 Müller AC, Wachtler B, Lampert T. Digital Divide – Soziale Unterschiede in der Nutzung digitaler Gesundheitsangebote. Bundesgesundheitsblatt – Gesundheitsforschung – Gesundheitsschutz 2020; 63: 185-191
• 18 Galleguillos MLR, Coşkun A. How Do I matter? A Review of the Participatory Design Practice with Less Privileged Participants. PDC '20: Proceedings of the 16th Participatory Design Conference 2020 – Participation(s) Otherwise 2020; 137-147
• 19 Tellioglu H, Teli M, Nathan L. et al. Negotiating Gender and Disability Identities in Participatory Design. Proc 9th Int Conf Communities Technologies – Transforming Communities 2019; 218-227
• 20 Kernbach S, Nabergoj AS. Visual Design Thinking: Understanding the Role of Knowledge Visualization in the Design Thinking Process. 2018 22nd Int Conf Information Vis Iv 2018; 362-367
• 21 Schaeffer D, Berens E-M, Gille S. et al. Gesundheitskompetenz der Bevölkerung in Deutschland – vor und während der Corona Pandemie: Ergebnisse des HLS-GER 2. Bielefeld: Interdisziplinäres Zentrum für Gesundheitskompetenzforschung (IZGK); Bielefeld, 2021. DOI: https://doi.org/10.4119/unibi/2950305; 2021
• 22 Ebrahimi HP, Schillo RS, Bronson K. Systematic Stakeholder Inclusion in Digital Agriculture: A Framework and Application to Canada. Sustainability 2021; 13: 6879
• 23 Kleinsmann M, Sarri T, Melles M. Learning histories as an ethnographic method for designing teamwork in healthcare. Codesign 2020; 16: 152-170
• 24 Eyles H, Jull A, Dobson R. et al. Co-design of mHealth Delivered Interventions: A Systematic Review to Assess Key Methods and Processes. Curr Nutrition Reports 2016; 5: 160-167
• 25 Göttgens I, Oertelt-Prigione S. The Application of Human-Centered Design Approaches in Health Research and Innovation: A Narrative Review of Current Practices. Jmir Mhealth Uhealth 2021; 9: e28102
• 26 DeSmet A, Thompson D, Baranowski T. et al. Is Participatory Design Associated with the Effectiveness of Serious Digital Games for Healthy Lifestyle Promotion? A Meta-Analysis. J Med Internet Res 2016; 18: e94
• 27 Shah SGS, Robinson I, AlShawi S. Developing medical device technologies from users’ perspectives: a theoretical framework for involving users in the development process. Int J Technol Assess 2009; 25: 514-521
• 28 Saad-Sulonen J, Eriksson E, Halskov K. et al. Unfolding participation over time: temporal lenses in participatory design. Codesign 2018; 14: 4-16
• 29 Spiel K, Brulé E, Frauenberger C. et al. In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children. Codesign 2020; 16: 45-65
• 30 Bazzano AN, Yan SD, Martin J. et al. Improving the reporting of health research involving design: a proposed guideline. Bmj Global Heal 2020; 5: e002248
• 31 Greenhalgh T, Wherton J, Papoutsi C. et al. Beyond Adoption: A New Framework for Theorizing and Evaluating Nonadoption, Abandonment, and Challenges to the Scale-Up, Spread, and Sustainability of Health and Care Technologies. J Med Internet Res 2017; 19: e367