intensiv, Table of Contents intensiv 2024; 32(02): 62-70DOI: 10.1055/a-2226-1721 Intensivpflege PICS-Management in der Pädiatrie Träumen, Traumen und Belastungen begegnen Stefan Grenzer Recommend Article Abstract Buy Article Komplikationen einer Intensivbehandlung zu verstehen und evidenzbasierte Praktiken zu ihrer Minimierung zu implementieren, ist auch Aufgabe der modernen Krankenpflege. Mögliche psychische Folgen eines Aufenthalts auf Intensivstationen und die Wirksamkeit des Intensivtagebuchs als pflegerische Intervention wurden – mit besonderem Augenmerk auf die Pädiatrie – einer ausführlichen Analyse unterzogen. Mit seiner Facharbeit errang der Autor den 3. Platz beim Thieme Intensivpflege-Preis 2022. Full Text References Literatur 1 Wang SH, Owens T, Johnson A. et al Evaluating the Feasibility and Efficacy of a Pediatric Intensive Care Unit Diary. Crit Care Nurs Q 2022; 45 (01) 88-97 2 Ewens BA, Hendricks JM, Sundin D. Surviving ICU: Stories of recovery. J Adv Nurs 2018; 74 (07) 1554-1563 3 Vincent JL, Marshall JC, Namendys-Silva SA. et al Assessment of the worldwide burden of critical illness: The intensive care over nations (ICON) audit. Lancet Respir Med 2014; 02 (05) 380-386 4 Wunsch H, Guerra C, Barnato AE. et al Three-year outcomes for Medicare beneficiaries who survive intensive care. JAMA 2010; 303 (09) 849-856 5 Adhikari NK, Fowler RA, Bhagwanjee S. et al Critical care and the global burden of critical illness in adults. Lancet 2010; 376 9749 1339-1346 6 Kaiser S. Hintergründe und Konsequenzen des PICS auf der Intensivstation. Intensiv 2020; 28 (05) 252-264 7 Rawal G, Yadav S, Kumar R. Post-intensive Care Syndrome: An Overview. J Transl Int Med 2017; 05 (02) 90-92 8 Tempel M, Pfeifer M. Das Post Intensive Care Syndrome – eine neue Entität?. DMW 2013; 138 (23) 1221-1224 9 Needham DM, Davidson J, Cohen H. et al Improving long-term outcomes after discharge from intensive care unit: Report from a stakeholders’ conference. Crit Care Med 2012; 40 (02) 502-509 10 DGNR Deutsche Gesellschaft für Neurorehabilitation (Hrsg.). Multimodale Neurorehabilitationskonzepte für das „Post-Intensive-Care-Syndrom“ (2023). Im Internet: register.awmf.org/assets/guidelines/080-007l_S2e_Multimodale-Neurorehabilitationskonzepte-Post-Intensive-Care-Syndrom-PICS_2023-02.pdf; Stand: 02.01.2024 11 Dodoo-Schittko F, Brandstetter S, Apfelbacher C. et al Folgen kritischer Erkrankung und mögliche Interventionen. AINS 2017; 52 (02) 137-144 12 NICE National Institute for Health and Clinical Excellence (Hrsg.). Rehabilitation after critical illness in adults – Clinical guideline [CG83] (2009). Im Internet www.nice.org.uk/guidance/CG83 13 Manning JC, Pinto NP, Rennick JE. et al Conceptualizing post intensive care syndrome in children – the PICS-p Framework. Pediatr Crit Care Med 2018; 19 (04) 298-300 14 Brandl M, Apfelbacher C, Weiß A. et al Incidence estimation in post-ICU populations: Challenges and possible solutions when using claims data. Gesundheitswesen 2020; 82 (02) S101-S107 15 Turnbull AE, Rabiee A, Davis WE. et al Outcome measurement in ICU survivorship research from 1970 to 2013: A scoping review of 425 publications. Crit Care Med 2016; 44 (07) 1267-1277 16 Desai SV, Law TJ, Needham DM. Long-term complications of critical care. Crit Care Med 2011; 39 (02) 371-379 17 Marra A, Pandharipande PP, Girard TD. et al Co-occurrence of post-intensive care syndrome problems among 406 survivors of critical illness. Crit Care Med 2018; 46 (09) 1393-1401 18 Maley JH, Brewster I, Mayoral I. et al Resilience in survivors of critical illness in the context of the survivors’ experience and recovery. Ann Am Thorac Soc 2016; 13 (08) 1351-1360 19 Wunsch H, Christiansen CF, Johansen MB. et al Psychiatric diagnoses and psychoactive medication use among nonsurgical critically ill patients receiving mechanical ventilation. JAMA 2014; 311 (11) 1133-1142 20 Jackson JC, Pandharipande PP, Girard TD. et al Depression, post-traumatic stress disorder, and functional disability in survivors of critical illness in the BRAIN-ICU study: A longitudinal cohort study. Lancet Respir Med 2014; 02 (05) 369-379 21 Hopkins RO, Weaver LK, Collingridge D. et al Two-year cognitive, emotional, and quality-of-life outcomes in acute respiratory distress syndrome. Am J Respir Crit Care Med 2005; 171 (04) 340-347 22 Rabiee A, Nikayin S, Hashem MD. et al Depressive symptoms after critical illness: A systematic review and meta-analysis. Crit Care Med 2016; 44 (09) 1744-1753 23 Nikayin S, Rabiee A, Hashem MD. et al Anxiety symptoms in survivors of critical illness: A systematic review and meta-analysis. Gen Hosp Psychiatry 2016; 43: 23-29 24 Bryant RA, Nickerson A, Creamer M. et al Trajectory of post-traumatic stress following traumatic injury: 6-year follow-up. Br J Psychiatry 2015; 206 (05) 417-423 25 Parker AM, Sricharoenchai T, Raparla S. et al Posttraumatic stress disorder in critical illness survivors: a metaanalysis. Crit Care Med 2015; 43 (05) 1121-1129 26 Jackson JC, Pandharipande PP, Girard TD. et al Depression, post-traumatic stress disorder, and functional disability in survivors of critical illness in the BRAIN-ICU study: A longitudinal cohort study. Lancet Respir Med 2014; 02 (05) 369-379 27 Nydahl P, Knück D. Träume und Traumata: eine systematische Übersichtsarbeit zur Wirkung des Tagebuches auf Intensivpatienten. DIVI 2010; 01 (01) 31-37 28 Trettner F, Hammermüller S. Besser verarbeiten. Intensiv 2015; 23 (05) 258-261 29 van Zellem L, Utens EM, de Wildt SN. et al Analgesia-sedation in PICU and neurological outcome: A secondary analysis of long-term neuropsychological follow-up in meningococcal septic shock survivors. Pediatr Crit Care Med 2014; 15 (03) 189-196 30 Schulte N. „Schwarze Ameisen“ – Erinnerungen und Träume von Patienten einer Intensivstation (Dissertation). Halle: Medizinischen Fakultät der Universität Halle-Wittenberg; 2009. 31 Schelling G. Post-traumatic stress disorder in somatic disease: Lessons from critically ill patients. Prog Brain Res 2008; 167: 229-237 32 Samuelson KA, Lundberg D, Fridlund B. Stressful experiences in relation to depth of sedation in mechanically ventilated patients. Nurs Crit Care 2007; 12 (02) 93-104 33 Storli SL, Lindseth A, Asplund K. A journey in quest of meaning: a hermeneutic-phenomenological study on living with memories from intensive care. Nurs Crit Care 2008; 13 (02) 86-96 34 Samuelson KA, Lundberg D, Fridlund B. Stressful memories and psychological distress in adult mechanically ventilated intensive care patients – a 2-month follow-up study. Acta Anaesthesiol Scand 2007; 51 (06) 671-678 35 Jones C, Griffiths RD, Humphris G. et al Memory, delusions, and the development of acute posttraumatic stress disorder-related symptoms after intensive care. Crit Care Med 2001; 29 (03) 573-580 36 Iwashyna TJ, Ely EW, Smith DM. et al Long-term cognitive impairment and functional disability among survivors of severe sepsis. JAMA 2010; 304 (16) 1787-1794 37 Köberich S, Spitz C. Das Intensiv-Care-Unit-Syndrom. Pflegerische Maßnahmen zur Prävention und Behandlung von Patienten mit deliranten Syndromen auf einer Intensivstation. Intensiv 2003; 11 (02) 58-64 38 Buysse CM, Raat H, Hazelzet JA. et al Long-term health status in childhood survivors of meningococcal septic shock. Arch Pediatr Adolesc Med 2008; 162 (11) 1036-1041 39 Caspani G, Corbet-Burcher G, Garralda ME. et al Inflammation and psychopathology in children following PICU admission: An exploratory study. Evid Based Ment Health 2018; 21 (04) 139-144 40 Granja C, Gomes E, Amaro A. et al Understanding posttraumatic stress disorder-related symptoms after critical care: The early illness amnesia hypothesis. Crit Care Med 2008; 36 (10) 2801-2809 41 Bienvenu OJ, Friedman LA, Colantuoni E. et al Psychiatric symptoms after acute respiratory distress syndrome: A 5-year longitudinal study. Intensive Care Med 2018; 44 (01) 38-47 42 Aitken LM, Chaboyer W, Schuetz M. et al Health status of critically ill trauma patients. J Clin Nurs 2014; 23 5–6 704-715 43 Rattray J, Crocker C, Jones M. et al Patients’ perceptions of and emotional outcome after intensive care: Results from a multicentre study. Nurs Crit Care 2010; 15 (02) 86-93 44 Davydow DS, Gifford JM, Desai SV. et al Posttraumatic stress disorder in general intensive care unit survivors: A systematic review. Gen Hosp Psychiatry 2008; 30 (05) 421-434 45 Girard TD, Shintani AK, Jackson JC. et al Risk factors for post-traumatic stress disorder symptoms following critical illness requiring mechanical ventilation: A prospective cohort study. Crit Care 2007; 11 (01) R28 46 Rattray JE, Johnston M, Wildsmith JA. Predictors of emotional outcomes of intensive care. Anaesthesia 2005; 60 (11) 1085-1092 47 Davydow DS, Gifford JM, Desai SV. et al Depression in general intensive care unit survivors: a systematic review. Int Care Med 2009; 35 (05) 796-809 48 Oeyen SG, Vandijck DM, Benoit DD. et al Quality of life after intensive care: A systematic review of the literature. Crit Care Med 2010; 38 (12) 2386-2400 49 Hopkins RO, Jackson JC. Long-term neurocognitive function after critical illness. Chest 2006; 130 (03) 869-878 50 Davydow DS, Zatzick D, Hough CL, Katon WJ. In-hospital acute stress symptoms are associated with impairment in cognition 1 year after intensive care unit admission. Ann Am Thorac Soc 2013; 10 (05) 450-457 51 Ramnarain D, Rutten A, Van der Nat G. et al The impact of post intensive care syndrome in patients surviving the ICU: The downside of ICU treatment. Intensive Care Med Exp 2015; 03 (Suppl. 01) A530 52 Davidson JE, Harvey MA, Schuller J. et al Post-intensive Care Syndrome: What is it and how to help prevent it. American Nurse Journal 2013; 08 (05) 32-38 53 Schmidt K, Worrack S, Von Korff M. et al Effect of a primary care management intervention on mental health-related quality of life among survivors of sepsis: A randomized clinical trial. JAMA 2016; 315 (24) 2703-2711 54 Mehlhorn J, Freytag A, Schmidt K. et al Rehabilitation interventions for post-intensive care syndrome: A systematic review. Crit Care Med 2014; 42 (05) 1263-1271 55 Cuthbertson BH, Rattray J, Campbell MK. et al The PRaCTICaL study of nurse led, intensive care follow-up programmes for improving long term outcomes from critical illness: A pragmatic randomised controlled trial. BMJ 2009; 339: b3723 56 Teigeler B. Das Wissen um PICS setzt sich erst langsam durch. PflegenIntensiv 2021; 18 (03) 12-15 57 Coombs M, Puntillo KA, Franck LS. et al Implementing the SCCM family-centered care guidelines in critical care nursing practice. AACN Adv Crit Care 2017; 28 (02) 138-147 58 SCCM Society of Critical Care Medicine (Hrsg.) Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit Care Med 2017; 45 (01) 103-128 59 Moss SJ, Krewulak KD, Stelfox HT. et al Restricted visitation policies in acute care settings during the COVID-19 pandemic: A scoping review. Crit Care 2021; 25 (01) 347 60 Rogge A, Naeve-Nydahl M, Nydahl P. et al Ethische Entscheidungsempfehlungen zu Besuchsregelungen im Krankenhaus während der COVID-19-Pandemie. Med Klin Intensivmed Notfmed 2021; 116 (05) 415-420 61 Hoffmann M, Nydahl P, Brauchle M. et al Angehörigenbetreuung auf Intensivstationen. Med Klin Intensivmed Notfmed 2022; 117 (05) 349-357 62 Colville G, Darkins J, Hesketh J. et al The impact on parents of a child’s admission to intensive care: Integration of qualitative findings from a cross-sectional study. Intensive Crit Care Nurs 2009; 25 (02) 72-79 63 Board R. Father stress during a child’s critical care hospitalization. J Pediatr Health Care 2004; 18 (05) 244-249 64 Board R, Ryan-Wenger N. Long-term effects of pediatric intensive care unit hospitalization on families with young children. Heart Lung 2002; 31 (01) 53-66 65 Alzawad Z, Lewis FM, Kantrowitz-Gordon I. et al A qualitative study of parents’ experiences in the pediatric intensive care unit: Riding a roller coaster. J Pediatr Nurs 2020; 51: 8-14 66 Niecke A, Schneider G, Hartog CS. et al Traumatisierte Angehörige von Intensivpatienten. Med Klin Intensivmed Notfmed 2017; 112 (07) 612-617 67 Spitz-Köberich C, Barth M, Spirig R. Eltern eines kritisch kranken Kindes: Welche Erwartungen und Wünsche haben sie an das Team der pädiatrischen Intensivstation?. Pflege 2010; 23 (05) 299-307 68 Noyes J. The impact of knowing your child is critically ill: A qualitative study of mothers’ experiences. J Adv Nurs 1999; 29 (02) 427-435 69 Haines C, Perger C, Nagy S. A comparison of the stressors experienced by parents of intubated and non-intubated children. J Adv Nurs 1995; 21 (02) 350-355 70 Netzer G, Sullivan DR. Recognizing, naming, and measuring a family intensive care unit syndrome. Ann Am Thorac Soc 2014; 11 (03) 435-441 71 Hoffmann M, Jeitziner MM, Riedl R. et al Psychological symptoms in relatives of critically ill patients (ICU families): A prospective multicenter study. Intensive Care Med 2020; 46 (05) 1060-1062 72 Bolosi M, Peritogiannis V, Tzimas P. et al Depressive and anxiety symptoms in relatives of intensive care unit patients and the perceived need for support. J Neurosci Rural Pract 2018; 09 (04) 522-528 73 Komachi MH, Kamibeppu K. Posttraumatic stress symptoms in families of cancer patients admitted to the intensive care unit: A longitudinal study. J Intensive Care 2016; 04: 47 74 Belayachi J, Himmich S, Madani N. et al Psychological burden in inpatient relatives: The forgotten side of medical management. QJM 2014; 107 (02) 115-122 75 Petrinec AB, Daly BJ. Post-traumatic stress symptoms in post-ICU family members: review and methodological challenges. West J Nurs Res 2016; 38 (01) 57-78 76 Davidson JE, Jones C, Bienvenu OJ. Family response to critical illness: Post-intensive care syndrome-family. Crit Care Med 2012; 40 (02) 618-624 77 Fergé JL, Le Terrier C, Banydeen R. et al Prevalence of anxiety and depression symptomatology in adolescents faced with the hospitalization of a loved one in the ICU. Crit Care Med 2018; 46 (04) e330-e333 78 Köse I, Zincircioğlu Ç, Öztürk YK. et al Factors affecting anxiety and depression symptoms in relatives of intensive care unit patients. J Intensive Care Med 2016; 31 (09) 611-617 79 Day A, Haj-Bakri S, Lubchansky S. et al Sleep, anxiety and fatigue in family members of patients admitted to the intensive care unit: A questionnaire study. Crit Care 2013; 17 (03) R91 80 Schmidt M, Azoulay E. Having a loved one in the ICU: The forgotten family. Curr Opin Crit Care 2012; 18 (05) 540-547 81 Rosenberg L, Gerber L, Qiu Y. et al Parental Symptoms of anxiety an depression upon PICU discharge and at 30-day follow-up. Crit Care Med 2022; 50 (01) 22 82 Anderson WG, Arnold RM, Angus DC. et al Posttraumatic stress and complicated grief in family members of patients in the intensive care unit. J Gen Intern Med 2008; 23 (11) 1871-1876 83 Whyte-Nesfield M, Kaplan D, Gai J. et al Long-term posttraumatic stress disorder in pediatric intensive care. Crit Care Med 2022; 50 (01) 22 84 Miyamoto Y, Ohbe H, Goto T. et al Association between intensive care unit admission of a patient and mental disorders in the spouse: A retrospective matched-pair cohort study. J Intensive Care 2021; 09 (01) 69 85 Jones C, Skirrow P, Griffiths RD. et al Post-traumatic stress disorder-related symptoms in relatives of patients following intensive care. Intensive Care Med 2004; 30 (03) 456-460 86 Mortensen J, Simonsen BO, Eriksen SB. et al Family-centred care and traumatic symptoms in parents of children admitted to PICU. Scand J Caring Sci 2015; 29 (03) 495-500 87 Kentish-Barnes N, Chaize M, Seegers V. et al Complicated grief after death of a relative in the intensive care unit. Eur Respir J 2015; 45 (05) 1341-1352 88 Deffner TM, Hierundar A, Knochel K. et al Intensivmedizin: Besuche fördern die Genesung. Deutsches Ärzteblatt 2021; 118 (45) A2112-A2114 89 Beck K, Vincent A, Becker C. et al Prevalence and factors associated with psychological burden in COVID-19 patients and their relatives: A prospective observational cohort study. PLoS One 2021; 16 (05) e0250590 90 DIVI Deutsche Interdisziplinäre Vereinigung für Intensiv- und Notfallmedizin (Hrsg.). Positionspapier zur Regelung von Angehörigenbesuchen in Krankenhäusern während Pandemien (2021). Im Internet:. www.divi.de/joomlatools-files/docman-files/publikationen/ethik/210908-divi-positionspapier-angehoerigenbesuche-pandemie.pdf 02.01.2024 91 Zante B, Erne K, Grossenbacher J. et al Symptoms of post-traumatic stress disorder (PTSD) in next of kin during suspension of ICU visits during the COVID-19 pandemic: A prospective observational study. BMC Psychiatry 2021; 21 (01) 477 92 Sayde GE, Stefanescu A, Conrad E. et al Implementing an intensive care unit (ICU) diary program at a large academic medical center: Results from a randomized control trial evaluating psychological morbidity associated with critical illness. Gen Hosp Psychiatry 2020; 66: 96-102 93 Sundararajan K, Martin M, Rajagopala S. et al Posttraumatic stress disorder in close relatives of intensive care unit patients’ evaluation (PRICE) study. Aust Crit Care 2014; 27 (04) 183-187 94 Walker SM. Early life pain – effects in the adult. Current Opinion in Physiology 2019; 11: 16-24 95 Victoria NC, Murphy AZ. Exposure to early life pain: Long term consequences and contributing mechanisms. Curr Opin Behav Sci 2016; 07: 61-68 96 Rennick JE, Knox AM, Treherne SC. et al Family members’ perceptions of their psychological responses one year following pediatric intensive care unit (PICU) hospitalization: Qualitative findings from the caring intensively study. Front Pediatr 2021; 09: 724155 97 Ko MSM, Poh PF, Heng KYC. et al Assessment of long-term psychological outcomes after pediatric intensive care unit admission: A systematic review and meta-analysis. JAMA Pediatr 2022; 176 (03) e215767 98 Turner AD, Sullivan T, Drury K. et al Cognitive dysfunction after analgesia and sedation: Out of the operating room and into the pediatric intensive care unit. Front Behav Neurosci 2021; 15: 713668 99 Le Brocque RM, Dow BL, McMahon H. et al The course of posttraumatic stress in children: Examination of symptom trajectories and predictive factors following admission to pediatric intensive care. Pediatr Crit Care Med 2020; 21 (07) e399-e406 100 The National Child Traumatic Stress Network. Medical trauma: Effects (2018). Im Internet. www.nctsn.org/what-is-child-trauma/trauma-types/medical-trauma/effects 02.01.2024 101 Ong C, Lee JH, Leow MK. et al Functional outcomes and physical impairments in pediatric critical care survivors: A scoping review. Pediatr Crit Care Med 2016; 17 (05) e247-e259 102 Colville GA, Pierce CM. Children’s self-reported quality of life after intensive care treatment. Pediatr Crit Care Med 2013; 14 (02) e85-e92 103 Vermunt LC, Buysse CM, Joosten KF. et al Survivors of septic shock caused by Neisseria meningitidis in childhood: Psychosocial outcomes in young adulthood. Pediatr Crit Care Med 2011; 12 (06) e302-e309 104 Nelson LP, Gold JI. Posttraumatic stress disorder in children and their parents following admission to the pediatric intensive care unit: A review. Pediatr Crit Care Med 2012; 13 (03) 338-347 105 Bushroe KM, Hade EM, McCarthy TA. et al Mental health after unintentional injury in a pediatric managed-medicaid population. J Pediatr 2018; 199: 29-34.e16 106 Bundesanzeiger Verlag (Hrsg.): Bundesgesetzblatt Teil II Nr. 6 (1992). Im Internet. www.bgbl.de/xaver/bgbl/start.xav?startbk=Bundesanzeiger_BGBl&jumpTo=bgbl292s0121.pdf 02.01.2024 107 Woodruff AG, Choong K. Long-term outcomes and the post-intensive care syndrome in critically ill children: A north American perspective. Children 2021; 08 (04) 254 108 Egerod I, Schwartz-Nielsen KH, Hansen GM. et al The extent and application of patient diaries in Danish ICUs in 2006. Nurs Crit Care 2007; 12 (03) 159-167 109 Lücke S. Die Idee hat sich selbständig gemacht. PflegenIntensiv 2017; 14 (04) 12-13 110 Akerman E, Granberg-Axéll A, Ersson A. et al Use and practice of patient diaries in Swedish intensive care units: A national survey. Nurs Crit Care 2010; 15 (01) 26-33 111 Egerod I, Christensen D. Analysis of patient diaries in Danish ICUs: A narrative approach. Intensive Crit Care Nurs 2009; 25 (05) 268-277 112 Nydahl P, Egerod I, Hosey MM. et al Report on the third international intensive care unit diary conference. Crit Care Nurse 2020; 40 (05) e18-e25 113 Engström A, Grip K, Hamrén M. Experiences of intensive care unit diaries: „Touching a tender wound“. Nurs Crit Care 2009; 14 (02) 61-67 114 Engström Å, Rogmalm K, Marklund L. et al Follow-up visit in an ICU: Receiving a sense of coherence. Nurs Crit Care 2018; 23 (06) 308-315 115 Thelen M. Wichtig, hilfreich, beruhigend: Das Intensivtagebuch in der Praxis. PflegenIntensiv 2017; 14 (04) 14-16 116 Roulin MJ, Hurst S, Spirig R. Diaries written for ICU patients. Qual Health Res 2007; 17 (07) 893-901 117 Nydahl P, Knueck D, Egerod I. Extent and application of ICU diaries in Germany in 2014. Nurs Crit Care 2015; 20 (03) 155-162 118 Knück D, Nydahl P.. Das Intensivtagebuch in Deutschland. Intensiv 2008; 16 (05) 249-255 119 Nydahl P, Knück D, Egerod I. The extent and application of patient diaries in German intensive care units. Connect 2010; 07 (02) 122-126 120 Arlt Y. Frühchentagebuch: Hilfe für gestresste Eltern. Intensiv 2011; 19 (05) 249-253 121 Aitken LM, Rattray J, Hull AM. The creation of patient diaries as a therapeutic intervention – for whom?. Nurs Crit Care 2017; 22 (02) 67-69 122 Nydahl P, Kuzma J. Tagebücher für kritisch kranke Patienten. Med Klin Intensivmed Notfmed 2021; 116 (03) 210-215 123 Nydahl P.. Wie und was schreibe ich in ein Tagebuch? (2018). Im Internet: static1.squarespace.com/static/617183688cd2ad0a36189b46/t/61ae1283264200449a2676dd/1638797955299/Tagebuch_Schreibstil.pdf; Stand: 02.01.2024 124 Nydahl P, Bäckman CG, Bereuther J. et al Zeitaufwand für das Intensivtagebuch: Gut investierte Zeit. PflegenIntensiv 2014; 11 (02) 38-42 125 Nydahl P, Bäckman CG, Bereuther J. et al How much time do nurses need to write an ICU diary?. Nurs Crit Care 2014; 19 (05) 222-227 126 Brandao Barreto B, Luz M, Alves Valente do Amaral Lopes S. et al Exploring patients’ perceptions on ICU diaries: A systematic review and qualitative data synthesis. Crit Care Med 2021; 49 (07) e707-e718 127 Bäckman CG, Orwelius L, Sjöberg F. et al Long-term effect of the ICU-diary concept on quality of life after critical illness. Acta Anaesthesiol Scand 2010; 54 (06) 736-743 128 Ullman AJ, Aitken LM, Rattray J. et al Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane systematic review. Int J Nurs Stud 2015; 52 (07) 1243-1253 129 Floris L, Madeddu A, Deiana V. et al The use of the ICU diary during the COVID-19 pandemic as a tool to enhance critically ill patient recovery. Minerva Anestesiol 2021; 87 (04) 490-491 130 Niecke A, Hartog C, Deffner T. et al Need for psychological support in intensive care: A survey among members of the German Society of Medical Intensive Care and Emergency Medicine. Med Klin Intensivmed Notfmed 2020; 115 (02) 135-139 131 Galvin IM, Leitch J, Gill R. et al Humanization of critical care-psychological effects on healthcare professionals and relatives: A systematic review. Can J Anaesth 2018; 65 (12) 1348-1371 132 Strandberg S, Vesterlund L, Engström Å.. The contents of a patient diary and its significance for persons cared for in an ICU: A qualitative study. Intensive Crit Care Nurs 2018; 45: 31-36 133 Aitken LM, Rattray J, Hull A. et al The use of diaries in psychological recovery from intensive care. Crit Care 2013; 17 (06) 253 134 Ewens BA, Hendricks JM, Sundin D. Surviving ICU: Stories of recovery. J Adv Nurs 2018; 74 (07) 1554-1563 135 Egerod I, Bagger C. Patients’ experiences of intensive care diaries – a focus group study. Intensive Crit Care Nurs 2010; 26 (05) 278-287 136 Gjengedal E, Storli SL, Holme AN. et al An act of caring – patient diaries in Norwegian intensive care units. Nurs Crit Care 2010; 15 (04) 176-184 137 Nydahl P. Erfahrung eines Betroffenen: „Das Intensivtagebuch hat mir sehr geholfen“. PflegenIntensiv 2017; 14 (04) 18-19 138 Nielsen AH, Angel S, Egerod I. et al The effect of family-authored diaries on posttraumatic stress disorder in intensive care unit patients and their relatives: A randomised controlled trial (DRIP-study). Aust Crit Care 2020; 33 (02) 123-129 139 Nielsen AH, Angel S. Relatives perception of writing diaries for critically ill. A phenomenological hermeneutical study. Nurs Crit Care 2016; 21 (06) 351-357 140 Nielsen AH, Angel S. How diaries written for critically ill influence the relatives: A systematic review of the literature. Nurs Crit Care 2016; 21 (02) 88-96 141 O’Gara G, Pattison N. A qualitative exploration into the long-term perspectives of patients receiving critical care diaries across the United Kingdom. Intensive Crit Care Nurs 2016; 36: 1-7 142 Jantzen B. Verlorene Zeit aufarbeiten. PflegenIntensiv 2017; 14 (04) 6-10 143 Nydahl P, Knueck D, Egerod I. Extent and application of ICU diaries in Germany in 2014. Nurs Crit Care 2015; 20 (03) 155-162 144 Barreto BB, Luz M, Rios MNO. et al The impact of intensive care unit diaries on patients’ and relatives’ outcomes: A systematic review and meta-analysis. Crit Care 2019; 23 (01) 411 145 Flinterud SI, Moi AL, Gjengedal E. et al The creation of meaning – intensive care nurses’ experiences of conducting nurse-led follow-up on intensive care units. Intensive Crit Care Nurs 2019; 53: 30-36 146 Jones C, Bäckman C, Capuzzo M. et al Intensive care diaries reduce new onset post traumatic stress disorder following critical illness: A randomised, controlled trial. Crit Care 2010; 14 (05) R168 147 Knowles RE, Tarrier N. Evaluation of the effect of prospective patient diaries on emotional well-being in intensive care unit survivors: A randomized controlled trial. Crit Care Med 2009; 37 (01) 184-191 148 Jones C, Capuzzo M, Flaatten H. et al ICU diaries may reduce later symptoms of posttraumatic stress disorder. Int Care Med 2006; 32 (Suppl. 01) S144 149 Garrouste-Orgeas M, Flahault C, Vinatier I. et al Effect of an ICU diary on posttraumatic stress disorder symptoms among patients receiving mechanical ventilation: A randomized clinical trial. JAMA 2019; 322 (03) 229-239 150 Aitken LM, Rattray J, Kenardy J. et al Perspectives of patients and family members regarding psychological support using intensive care diaries: An exploratory mixed methods study. J Crit Care 2017; 38: 263-268 151 Garrouste-Orgeas M, Coquet I, Périer A. et al Impact of an intensive care unit diary on psychological distress in patients and relatives. Crit Care Med 2012; 40 (07) 2033-2040 152 Nair R, Mitchell M, Keogh S. The extent and application of patient diaries in Australian intensive care units: A national survey. Aust Crit Care 2015; 28 (02) 93-102 153 Ullman AJ, Aitken LM, Rattray J. et al Diaries for recovery from critical illness. Cochrane Database Syst Rev 2014; 2014 (12) CD010468 154 Nydahl P, Fischill M, Deffner T. et al Intensivtagebücher senken Risiko für psychische Folgestörungen. Med Klin Intensivmed Notfmed 2019; 114: 68-76 155 McIlroy PA, King RS, Garrouste-Orgeas M. et al The effect of ICU diaries on psychological outcomes and quality of life of survivors of critical illness and their relatives: A systematic review and meta-analysis. Crit Care Med 2019; 47 (02) 273-279 156 Oelstrom M, Gabor R, Lee KJ. et al Parent activation and traumatic stress in the pediatric intensive care unit. Crit Care Med 2022; 50 (01) 426 157 AKIK Aktionskomitee Kind im Krankenhaus (Hrsg.) Erläuterungen zur Charta für Kinder im Krankenhaus „EACH-Charta“. AKIK-Aspekte 2002; 05 (Suppl. 01) 1-20 158 Kleinpell R, Heyland DK, Lipman J. et al Patient and family engagement in the ICU: Report from the task force of the World Federation of Societies of Intensive and Critical Care Medicine. J Crit Care 2018; 48: 251-256 159 Franck LS, Oulton K, Nderitu S. et al Parent involvement in pain management for NICU infants: A randomized controlled trial. Pediatrics 2011; 128 (03) 510-518 160 Lam LW, Chang AM, Morrissey J. Parents’ experiences of participation in the care of hospitalised children: A qualitative study. Int J Nurs Stud 2006; 43 (05) 535-545 161 Rusinova K, Kukal J, Simek J. et al Limited family members/staff communication in intensive care units in the Czech and Slovak Republics considerably increases anxiety in patients’ relatives – the DEPRESS study. BMC Psychiatry 2014; 14: 21 162 Carson SS, Cox CE, Wallenstein S. et al Effect of palliative care-led meetings for families of patients with chronic critical illness: A randomized clinical trial. JAMA 2016; 316 (01) 51-62 163 Curtis JR, Treece PD, Nielsen EL. et al Randomized trial of communication facilitators to reduce family distress and intensity of end-of-life care. Am J Respir Crit Care Med 2016; 193 (02) 154-162 164 Sansone V, Cancani F, Gagliardi C. et al Narrative diaries in the paediatric intensive care unit: A thematic analysis. Nurs Crit Care 2022; 27 (01) 45-54 165 Mickelson RS, Piras SE, Brown L. et al The use and usefulness of ICU diaries to support family members of critically ill patients. J Crit Care 2021; 61: 168-176 166 Haruna J, Tatsumi H, Kazuma S. et al Using an ICU diary to communicate with family members of COVID-19 patients in ICU: A case report. J Patient Exp 2021; 8: 23743735211034094. doi:10.1177/23743735211034094 167 Johansson M, Wåhlin I, Magnusson L. et al Family members’ experiences with intensive care unit diaries when the patient does not survive. Scand J Caring Sci 2018; 32 (01) 233-240 168 Heindl P, Bachlechner A. Coping mit dem Intensivtagebuch. Journal für Qualitative Forschung in Pflege- und Gesundheitswissenschaft 2015; 01 (02) 92-100 169 Bagger C, Knück D, Nydahl P. Intensivtagebuch: Brücke zur Erinnerung. Die Schwester Der Pfleger 2009; 48 (01) 40-44 170 Combe D. The use of patient diaries in an intensive care unit. Nurs Crit Care 2005; 10 (01) 31-34 171 Schofield R, Dibb B, Coles-Gale R. et al The experience of relatives using intensive care diaries: A systematic review and qualitative synthesis. Int J Nurs Stud 2021; 119: 103927 172 Galazzi A, Adamini I, Bazzano G. et al Intensive care unit diaries to help bereaved family members in their grieving process: A systematic review. Intensive Crit Care Nurs 2022; 68: 103121 173 Herrup EA, Wieczorek B, Kudchadkar SR. Feasibility and perceptions of PICU diaries. Pediatr Crit Care Med 2019; 20 (02) e83-e90 174 Lichtenberger D. Intensivtagebuch: Erfolgreich konzipieren und implementieren. Intensiv 2015; 23 (03) 140-143 175 Ednell AK, Siljegren S, Engström Å.. The ICU patient diary – a nursing intervention that is complicated in its simplicity: A qualitative study. Intensive Crit Care Nurs 2017; 40: 70-76 176 Johansson M, Wåhlin I, Magnusson L. et al Nursing staff’s experiences of intensive care unit diaries: A qualitative study. Nurs Crit Care 2019; 24 (06) 407-413 177 Perier A, Revah-Levy A, Bruel C. et al Phenomenologic analysis of healthcare worker perceptions of intensive care unit diaries. Crit Care 2013; 17 (01) R13 178 Gawronski O, Sansone V, Cancani F. et al Implementation of paediatric intensive care unit diaries: Feasibility and opinions of parents and healthcare providers. Aust Crit Care 2023; 36 (03) 370-377 179 Mikkelsen G. The meaning of personal diaries to children and families in the paediatric intensive care unit: A qualitative study. Intensive Crit Care Nurs 2018; 45: 25-30 180 Manning JC, Hemingway P, Redsell SA. Long-term psychosocial impact reported by childhood critical illness survivors: A systematic review. Nurs Crit Care 2014; 19 (03) 145-156 181 Hofbauer JM, Dieplinger AM, Nydahl P. The meaning of NICU-Diaries to parents of premature children in the neonatal intensive care unit: Trust that everything will be fine. J Neonatal Nurs 2021; 27 (06) 432-438 182 Ludwig-Körner C.. Die Frühgeborenenfamilie – Belastung und Bewältigung (2013). In: Reichert J. (Hrsg.) Psychologie in der Kinderheilkunde: Beiträge psychologischer Forschung und Praxis für die Neonatologie. Heidelberg: Springer; S. 47-59 183 Roque ATF, Lasiuk GC, Radünz V. et al Scoping review of the mental health of parents of infants in the NICU. J Obstet Gynecol Neonatal Nurs 2017; 46 (04) 576-587 184 Russell LN, Gregory ML, Warren ZE. et al Uptake and impact of journaling program on wellbeing of NICU parents. J Perinatol 2021; 41 (08) 2057-2062
