Psychother Psychosom Med Psychol 2024; 74(08): 311-322
DOI: 10.1055/a-2333-7521
Übersicht

Wie können Menschen mit einer Hörbehinderung über eine Hörsystemversorgung hinaus unterstützt werden?

Ein systematisches Review zu Selbstmanagement-InterventionenHow to Support People with Hearing Impairment beyond Hearing aid ProvisionA Systematic Review on Self-Management Interventions
Sophie Geßner
1   Cochlea-Implantat-Zentrum Leipzig, Klinik und Poliklinik für Hals-, Nasen-, Ohrenheilkunde, Universitätsklinikum Leipzig
,
Michael Fuchs
1   Cochlea-Implantat-Zentrum Leipzig, Klinik und Poliklinik für Hals-, Nasen-, Ohrenheilkunde, Universitätsklinikum Leipzig
,
Lennart Heinrich Pieper
2   Klinik für Audiologie und Phoniatrie, Charité Universitätsmedizin Berlin
,
Kathleen Tretbar
1   Cochlea-Implantat-Zentrum Leipzig, Klinik und Poliklinik für Hals-, Nasen-, Ohrenheilkunde, Universitätsklinikum Leipzig
› Institutsangaben

Zusammenfassung

Ziel Menschen mit Hörbehinderungen wenden zahlreiche Strategien an, um Schwierigkeiten im Zusammenhang mit der eigenen Höreinschränkung bewältigen zu können – dieser Prozess wird als Selbstmanagement bezeichnet. Während die Förderung von Selbstmanagement in fremdsprachigen Rehabilitationsprogrammen fest verankert ist, gibt es in Deutschland bisher keinerlei Empfehlungen hierzu. Deshalb besteht das Ziel dieses systematischen Reviews zunächst darin, einen Überblick bestehender Selbstmanagement-Interventionen für Menschen mit Hörbehinderungen zu geben und anschließend Einsatzmöglichkeiten im deutschen Versorgungssystem anzureißen.

Methodik Eine systematische Literaturrecherche wurde auf PubMed durchgeführt, um Studien mit entsprechenden Interventionsansätzen zu identifizieren. Wenn die vordefinierten Einschlusskriterien erfüllt werden konnten, wurden Informationen zur Publikation, Intervention und Evaluation aus den einzelnen Studien extrahiert und qualitativ zusammengefasst. Die methodische Qualität der Studien wurde bewertet.

Ergebnisse Insgesamt konnten 23 Artikel eingeschlossen werden. Die einzelnen Interventionen verfolgten verschiedenste Ziele, thematisierten ein breites Spektrum von Inhalten (Informationsvermittlung, Aspekte zur Kommunikationsverbesserung, psychosoziale, technische oder spezifische Aspekte) und wurden entweder gruppenbasiert, individuumsbasiert oder selbstangeleitet implementiert. Im Rahmen der Evaluationen konnten, mit Ausnahme weniger Studien, positive Interventionseffekte bezüglich des wahrgenommenen Hörhandicaps, des psychosozialen Wohlbefindens und der Kommunikation der Interventionsteilnehmer*innen festgestellt werden.

Diskussion Die eingeschlossenen Studien wiesen eine starke Heterogenität bezüglich der methodischen Qualität, der durchgeführten Intervention und des Evaluationsdesigns auf. Eine Zusammenfassung der Befunde war deshalb nur qualitativ möglich. Möglichkeiten der Anpassung bestehender Interventionsprogramme sowie Chancen und Grenzen einer Implementierung im deutschen Versorgungssystem sind im Weiteren zu diskutieren.

Schlussfolgerung Insgesamt scheint es sich bei Interventionen zur Unterstützung des Selbstmanagement um eine gewinnbringende Ergänzung zur alleinigen technischen Geräteversorgung und -anpassung zu handeln, die auch im deutschsprachigen Raum weiter forciert werden sollte.

Abstract

Objective People with hearing handicap have to use a whole range of strategies to cope with everyday challenges – they have to self-manage their hearing impairment. While the support of self-management is well established in foreign language audiological rehabilitation programs, there are no recommendations in Germany yet. Therefore, the aim of this systematic review is first to give an overview of existing self-management interventions for people with hearing handicap and then to suggest possible applications in the German care system.

Methods A systematic literature search was conducted on PubMed. The articles dealt with self-management interventions for people with hearing impairment. This eligibility criterion was applied to titles, abstracts, and full texts. If eligible, information on the publication, intervention, and evaluation were extracted and qualitatively summarized. The methodological quality of studies was investigated using the NIH assessment tool for interventional studies.

Results 23 papers could be included and show a high heterogeneity regarding methodological quality, applied intervention, and design of evaluation. The interventions pursuing various goals include a wide range of content (e. g., communication improvement or psychosocial aspects) and have been implemented on a group-based, individual-based, or self-administered level. Despite a few studies that failed to demonstrate intervention effects, most evaluations found positive ef-fects of the intervention on hearing impairment, psychological well-being, and communication.

Discussion The included studies present a high heterogeneity with regard to methodological quality, the intervention conducted, and the evaluation design. Therefore, a summary of the findings was only possible in a qualitative manner. Possibilities of adapting existing intervention programs as well as chances and limits of an implementation in the German health care system are to be discussed in the following.

Conclusion Overall, interventions including self-management support seem to be a profitable complement to sole technical device supply and should be further fostered in German-speaking countries as well.



Publikationsverlauf

Eingereicht: 31. Mai 2023

Angenommen: 13. Mai 2024

Artikel online veröffentlicht:
12. Juli 2024

© 2024. Thieme. All rights reserved.

Georg Thieme Verlag KG
Rüdigerstraße 14, 70469 Stuttgart, Germany

 
  • Literatur

  • 1 GBD 2019 Hearing Loss Collaborators. Hearing loss prevalence and years lived with disability, 1990–2019: findings from the Global Burden of Disease Study 2019. Lancet 2021; 397: 996-1009
  • 2 Hickson L, Scarinci N. Older adults with acquired hearing impairment: applying the ICF in rehabilitation. Semin Speech Lang 2007; 28: 283-290
  • 3 Blazer DG, Tucci DL. Hearing loss and psychiatric disorders: a review. Psychol Med 2018; 49: 891-897
  • 4 Iwagami M, Kobayashi Y, Tsukazaki E. et al. Associations between self-reported hearing loss and outdoor activity limitations, psychological distress and self-reported memory loss among older people: Analysis of the 2016 Comprehensive Survey of Living Conditions in Japan. Geriatr Gerontol Int 2019; 19: 747-754
  • 5 Mick P, Kawachi I, Frank RL. The association between hearing loss and social isolation in older adults. Otolaryngol Head Neck Surg 2014; 150: 378-384
  • 6 Akram B, Nawaz J, Rafi Z. et al. Social exclusion, mental health and suicidal ideation among adults with hearing loss: protective and risk factors. J Pak Med Assoc 2018; 68: 388-393
  • 7 Hogan A, Reynolds KJ, Byrne D. Identity, Social Position, Well-Being, and Health: Insights from Australians Living with Hearing Loss. In: Banwell C (ed). When Culture Impacts Health: Global Lessons for Effective Health Research. Elsevier; 2013: 95-104
  • 8 Uchida Y, Sugiura S, Nishita Y. et al. Age-related hearing loss and cognitive decline – The potential mechanisms linking the two. Auris Nasus Larynx 2019; 46: 1-9
  • 9 Cosh S, Helmer C, Delcourt C. et al. Depression in elderly patients with hearing loss: current perspectives. Clin Interv Aging 2019; 14: 1471-1480
  • 10 Shoham N, Lewis G, Favarato G. et al. Prevalence of anxiety disorders and symptoms in people with hearing impairment: a systematic review. Soc Psychiatry Psychiatr Epidemiol 2019; 54: 649-660
  • 11 Zahnert T. Schwerhörigkeit – Ätiologie, Diagnostik und auditive Rehabilitation. Laryngorhinootologie 2010; 89: 669-693
  • 12 Dornhoffer JR, Meyer TA, Dubno JR. et al. Assessment of hearing-aid benefit using patient-reported outcomes and audiologic measures. Audiol Neurotol 2020; 25: 215-223
  • 13 Brodie A, Smith B, Ray J. The impact of rehabilitation on quality of life after hearing loss: a systematic review. Eur Arch Otorhinolaryngol 2018; 275: 2435-2440
  • 14 Ferguson MA, Kitterick P, Chong LY. et al. Hearing aids for mild to moderate hearing loss in adults. Cochrane Database of Systematic Reviews 2017; 9: CD012023
  • 15 Convery E, Meyer C, Keidser G. et al. Assessing hearing loss self-management in older adults. Int J Audiol 2017; 57: 313-320
  • 16 Allegrante JP, Wells MT, Peterson JC. Interventions to support behavioral self-management of chronic diseases. Annu Rev Public Health 2019; 40: 127-146
  • 17 Lorig KR, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 2003; 26: 1-7
  • 18 Erdman SA. Biopsychosocial approaches to audiologic counseling – patient-, person-, family-, and relationship centered care. In: Montano JJ, Spitzer JB (eds). Adult audiological rehabilitation, 3rd edn. San Diego: Plural Publishing; 2021: 199-247
  • 19 Preminger JE, Rothpelz AM. Design considerations for internet-delivered self-management programs for adults with hearing impairment. Am J Audiol 2016; 25: 272-277
  • 20 Hawkins DB. Effectiveness of counseling-based adult group aural rehabilitation programs: a systematic review of evidence. J Am Acad Audiol 2005; 16: 485-493
  • 21 Michaud HN, Duchesne L. Aural rehabilitation for older adults with hearing loss: impacts on quality of life – a systematic review of randomized controlled trials. J Am Acad Audiol 2017; 28: 596-609
  • 22 Moher D, Liberati A, Tetzlaff J. et al. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PloS Med 2009; 6: e1000097
  • 23 Laplante-Lévesque A, Hickson L, Worrall L. Rehabilitation of older adults with hearing impairment: a critical review. J Aging Health 2010; 22: 143-153
  • 24 National Institute of Health: Study Quality Assessment Tools (2021), URL: https://www.nhlbi.nih.gov/health-topics/study-quality-assessment-tools (Stand: 06.02.2024)
  • 25 Abrams HB, Hnath-Chisolm T, Guerreiro SM. et al. The effects of intervention strategy on self-perception of hearing handicap. Ear Hear 1992; 13: 371-377
  • 26 Abrams HB, Chisolm TH, McArdle R. A cost-utility analysis of adult group audiologic rehabilitation: are the benefits worth the cost?. J Rehabil Res Dev 2002; 39: 549-557
  • 27 Andersson G, Melin L, Scott B. et al. Behavioural counselling for subjects with acquired hearing loss: a new approach to hearing tactics. Scand Audiol 1994; 23: 249-256
  • 28 Andersson G, Melin L, Scott B. et al. An evaluation of a behavioral treatment approach to hearing impairment. Behav Res Ther 1995; 33: 283-292
  • 29 Andersson G, Melin L, Scott B. et al. A two-year follow-up examination of a behavioural treatment approach to hearing tactics. Br J Audiol 1995; 29: 347-354
  • 30 Bernstein CM, Brewer DM, Bakke MH. et al. Maximizing cochlear implant outcomes with short-term aural rehabilitation. J Am Acad Audiol 2021; 32: 144-156
  • 31 Beynon GJ, Thornton FL, Poole C. A randomized, controlled trial of the efficacy of a communication course for first time hearing aid users. Br J Audiol 1997; 31: 345-351
  • 32 Chisolm TH, Abrams HB, McArdle R. Short- and long-term outcomes of adult audiological rehabilitation. Ear Hear 2004; 25: 464-477
  • 33 Ferguson M, Brandreth M, Brassington W. et al. A randomized controlled trial to evaluate the benefits of a multimedia educational program for first-time hearing aid users. Ear Hear 2016; 37: 123-136
  • 34 Garnefski N, Kraaij V. Effects of a cognitive behavioral self-help program on emotional problems for people with acquired hearing loss: a randomized controlled trial. J Deaf Stud Deaf Educ 2012; 17: 75-84
  • 35 Habanec OL, Kelly-Campbell RJ. Outcomes of group audiological rehabilitation for unaided adults with hearing impairment and their significant others. Am J Audiol 2015; 24: 40-52
  • 36 Hallberg LRM, Barrenas ML. Group rehabilitation of middle-aged males with noise-induced hearing loss and their spouses: evaluation of short- and long-term effects. Br J Audiol 1994; 28: 71-79
  • 37 Hickson L, Worrall L, Scarinci N. A randomized controlled trial evaluating the active communication education program for older people with hearing impairment. Ear Hear 2007; 28: 212-230
  • 38 Kramer SE, Allessie GHM, Dondorp AW. et al. A home education program for older adults with hearing impairment and their significant others: a randomized trial evaluating short- and long-term effects. Int J Audiol 2005; 44: 255-264
  • 39 Lundberg M, Andersson G, Lunner T. A randomized, controlled trial of the short-term effects of complementing an educational program for hearing aid users with telephone consultations. J Am Acad Audiol 2011; 22: 654-662
  • 40 Malmberg M, Lunner T, Kähäri K. et al. Evaluating the short-term and long-term effects of an internet-based aural rehabilitation programme for hearing aid users in general clinical practice: A randomized controlled trial. BMJ Open 2017; 7: e013047
  • 41 Norman M, George CR, Downie A. et al. Evaluation of a communication course for new hearing aid users. Scand Audiol 1995; 24: 63-69
  • 42 Preminger JE. Should significant others be encouraged to join adult group audiologic rehabilitation classes?. J Am Acad Audiol 2003; 14: 545-555
  • 43 Preminger JE, Meeks S. Evaluation of an audiological rehabilitation program for spouses of people with hearing loss. J Am Acad Audiol 2010; 21: 315-328
  • 44 Preminger JE, Yoo JK. Do group audiologic rehabilitation activities influence psychosocial outcomes?. Am J Audiol 2010; 19: 109-125
  • 45 Thorén E, Svensson M, Törnqvist A. et al. Rehabilitative online education versus internet discussion group for hearing aid users: a randomized controlled trial. J Am Acad Audiol 2011; 22: 274-285
  • 46 Thorén ES, Öberg M, Wänström G. et al. A randomized controlled trial evaluating the effects of online rehabilitative intervention for adult hearing-aid users. Int J Audiol 2014; 53: 452-461
  • 47 Williams KC, Falkum E, Martinsen EW. A cognitive therapy program for hearing-impaired employees suffering from mental distress. Int J Audiol 2015; 54: 227-233
  • 48 Ventry IM, Weinstein BE. The Hearing Handicap Inventory for the Elderly: a new tool. Ear Hear 1982; 3: 128-134
  • 49 Zigmond AS, Snalth RP. The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand 1983; 67: 361-370
  • 50 Helvik AS, Jacobsen G, Hallberg LRM. Psychological well-being of adults with acquired hearing impairment. Disabil Rehabil 2006; 28: 535-545
  • 51 Hallberg LRM, Hallberg U, Kramer SE. Self-reported hearing difficulties, communication strategies and psychological general well-being (quality of life) in patients with acquired hearing impairment. Disabil Rehabil 2008; 30: 203-212
  • 52 Barker AB, Leighton P, Ferguson MA. Coping together with hearing loss: a qualitative meta-synthesis of the psychosocial experiences of people with hearing loss and their communication partners. Int J Audiol 2017; 56: 297-305
  • 53 McCormack A, Fortnum H. Why do people fitted with hearing aids not wear them?. Int J Audiol 2013; 52: 360-368
  • 54 Alhanbali S, Dawes P, Lloyd S. et al. Self-Reported Listening-Related Effort and Fatigue in Hearing-Impaired Adults. Ear Hear 2017; 38: e39-e48
  • 55 Ohlenforst B, Zekveld AA, Jansma EP. et al. Effects of Hearing Impairment and Hearing Aid Amplification on Listening Effort: A Systematic Review. Ear Hear 2017; 38: 267-281
  • 56 Holman JA, Drummond A, Naylor G. The Effect of Hearing Loss and Hearing Device Fitting on Fatigue in Adults: A Systematic Review. Ear Hear 2021; 42: 1-11
  • 57 Ekberg K, Hickson L. To tell or not to tell? Exploring the social process of stigma for adults with hearing loss and their families: introduction to the special issue. Int J Audiol 2023; 28: 1-11