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CC BY-NC-ND 4.0 · Hamostaseologie
DOI: 10.1055/a-2410-8557
Original Article

Leitlinie der Gesellschaft für Thrombose- und Hämostaseforschung (GTH) zur Struktur- und Prozessqualität von Hämophilie-Zentren

1. Aktualisierung 06/2024
H. Eichler
1   Institut für Klinische Hämostaseologie und Transfusionsmedizin, Universität und Universitätsklinikum des Saarlandes, Homburg/Saar, Germany
,
M. Albisetti
2   Medizinische Poliklinik und Tagesklinik, Universitäts-Kinderspital Zürich, Zürich, Switzerland
,
S. Halimeh
3   Gerinnungszentrum Rhein-Ruhr, Duisburg, Germany
,
R. Knöfler
4   Klinik und Poliklinik für Kinder- und Jugendmedizin, Pädiatrische Hämostaseologie, Medizinische Fakultät Universitätsklinikum Carl Gustav Carus der TU Dresden, Dresden, Germany
,
C. Königs
5   Goethe Universität, Universitätsmedizin Frankfurt, Klinik für Kinder- und Jugendmedizin, Klinische und Molekulare Hämostaseologie, Frankfurt am Main, Germany
,
F. Langer
6   II. Medizinische Klinik und Poliklinik, Bereich Hämostaseologie, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany
,
W. Miesbach
7   Hämophilie-Zentrum Frankfurt, Universitätsklinikum Frankfurt, Frankfurt am Main, Germany
,
J. Oldenburg
8   Institut für Experimentelle Hämatologie und Transfusionsmedizin, Universitätsklinikum Bonn, Bonn, Germany
,
U. Scholz
9   Zentrum für Blutgerinnungsstörungen Leipzig, Leipzig, Germany
,
W. Streif
10   Universitätsklinik für Kinder- u. Jugendheilkunde, Innsbruck, Austria
,
R. Klamroth
11   Vivantes Klinikum im Friedrichshain, Zentrum für Hämophilie und Hämostaseologie, Berlin, Germany
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Abstract

Since the 1970s, specialized hemophilia centers have been established to optimize the complex and costly treatment of patients with severe bleeding disorders. In 2019, the first GTH guidelines on the structural and process quality of hemophilia centers were published. On this basis, a procedure for the certification of hemophilia centers has been established under the technical leadership of the GTH. These GTH guidelines are essentially based on the European Guidelines for the Certification of Haemophilia Centers published in 2013, created by the European Haemophilia Network (EUHANET). In 2023, this European guideline was revised by the EAHAD Accreditation and Audit of Haemophilia Centers Working Group. On this background, the GTH guidelines have now been revised to take relevant updates to the European guidelines into account.

Keywords

haemophilia therapy - haemophilia comprehensive care - bleeding disorders - guidelines


Publication History

Received: 13 June 2024

Accepted: 06 September 2024

Article published online:
04 December 2024

© 2024. The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/)

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