German Registry for Acute Aortic Dissection Type A (GERAADA) – New Software Design, Parameters and Their Definitions

Abstract

Background: The working group for aortic surgery and interventional vascular surgery of the German Society for Thoracic and Cardiovascular Surgery (GSTCVS) initiated the web-based German Registry for Acute Aortic Dissection type A (GERAADA). It is the project's aim to collect standardized data from a large pool of patients with acute aortic dissections type A (AADA) to gain a deeper insight and knowledge to improve surgical therapies and perioperative management for these patients in the future. Methods: In addition to new medical insights, the working group has gained more experience over the last 4 years in how to collect valid and high-quality data. This experience led us to revise the database completely. In this article we describe the new version of GERAADA, providing an overview as well as defining the parameters, and explaining the new features. This overview fulfills a request by the users of GERAADA in the participating centers. Results: Since its inception, 50 cardiac centers in Germany, Austria and Switzerland have provided over 2000 records and the first statistical results have been published. Conclusion: GERAADA's new design allows it to stay abreast of changes in medicine and to focus on the essentials necessary for statistically relevant results, while keeping the work load low for the data providers at each cardiac center.

Key words

database - acute aortic dissection type A - registry - parameters and their definitions

References

• 1 Hagan P G, Nienaber C A, Isselbacher E M et al. The International Registry of Acute Aortic Dissection (IRAD): new insights into an old disease.  JAMA. 2000;  283 897-903
• 2 Weigang E, Nienaber C A, Rehders T C, Ince H, Vahl C F, Beyersdorf F. Management of patients with aortic dissection.  Dtsch Arztebl Int. 2008;  105 639-645
• 3 Weigang E, Conzelmann L O, Kallenbach K, Dapunt O, Karck M. German registry for acute aortic dissection type A (GERAADA) – lessons learned from the registry.  Thorac Cardiovasc Surg. 2010;  58 154-158
• 4 Rylski B, Suedkamp M, Beyersdorf F et al. Outcome after surgery for acute aortic dissection type A in patients over 70: data analysis from the GErman Registry for Acute Aortic Dissection Type A (GERAADA).  Eur J Cardiothorac Surg. 2011;  (in press)
• 5 Weigang E. for the GERAADA study group . Registro Alemán de la Disección Aguda de Aorta Tipo A (GERAADA) – German Registry for Acute Aortic Dissection Type A (GERAADA).  Cir Cardiov. 2009;  16 231-234
• 6 Conzelmann L O, Dapunt O, Kallenbach K, Karck M, Weigang E. Deutsches Register für akute Aortendissektion Typ A (GERAADA) – Motiv, Entwicklung, erste Erkenntnisse und Vision.  Z Herz-Thorax-Gefäßchir. 2009;  23 298-304
• 7 Baumgartner H, Hung J, Bermejo J et al. Echocardiographic assessment of valve stenosis: EAE/ASE recommendations for clinical practice.  Eur J Echocardiogr. 2009;  10 1-25
• 8 Hoppe U C, Böhm M, Dietz R et al. [Guidelines for therapy of chronic heart failure].  Z Kardiol. 2005;  94 488-509
• 9 Mészáros I, Mórocz J, Szlávi J et al. Epidemiology and clinicopathology of aortic dissection – a population-based longitudinal study over 27 years.  Chest. 2000;  117 1271-1278
• 10 Weigang E, Parker J, Czerny M et al. Endovascular aortic arch repair after aortic arch de-branching.  Ann Thorac Surg. 2009;  87 603-607
• 11 Tsaiab T T, Trimarchic S, Nienaber C A et al. Acute aortic dissection: perspectives from the International Registry of Acute Aortic Dissection (IRAD).  Eur J Vasc Endovasc Surg. 2009;  37 149-159
• 12 Buth J. Endovascular repair of abdominal aortic aneurysms. Results from the EUROSTAR registry. EUROpean collaborators on Stent-graft Techniques for abdominal aortic Aneurysm Repair.  Semin Interv Cardiol. 2000;  5 29-33
• 13 Dokholyan R S, Muhlbaier L H, Falletta J M et al. Regulatory and ethical considerations for linking clinical and administrative databases.  Am Heart J. 2009;  157 971-982
• 14 Corone S, Iliou M C, Pierre B et al. French registry of cases of type I acute aortic dissection admitted to a cardiac rehabilitation center after surgery.  Eur J Cardiovasc Prev Rehabil. 2009;  16 91-95
• 15 Eggebrecht H, Thompson M, Rousseau H et al. Retrograde ascending aortic dissection during or after thoracic aortic stent graft placement: insight from the European Registry on Endovascular Aortic Repair Complications.  Circulation. 2009;  120 276-281