Standards und Richtlinien für Hospiz- und Palliativversorgung in Europa: Teil 1[1]

Zusammenfassung

Die Europäische Gesellschaft für Palliative Care (EAPC) legt mit diesem Weißbuch Standards und Normen für Hospize und Palliative Care in Europa vor. Der Inhalt richtet sich an die Fachgesellschaften und das Personal, die direkt mit der Palliativversorgung zu tun haben. Selbstverständlich spielen – neben der allgemeinen Struktur der Versorgung – auch andere Merkmale bei der Qualität der Versorgung von Schwerkranken und Sterbenden eine wichtige Rolle. Dazu gehören u. a. Behandlungsmethoden, Qualitätsmessungen, Therapieerfolge, Forschung, Bildung, Finanzierung, Verfahrensweisen und Organisation sowie Gesetzgebungen. Mit der vorliegenden Richtlinie, die in einem Konsens mit den europäischen Fachgesellschaften formuliert wurden, kann die EAPC Empfehlungen für einen einheitlichen Qualitätsstandard geben. Themenrelevante Inhalte werden in einer Reihe zukünftiger Publikationen detaillierter behandelt.

Abstract

The focus of this White Paper is on norms and standards for hospice and palliative care in Europe as recommended by the EAPC. In addition to the structure of care, many other dimensions play an important role in the provision of quality hospice and palliative care – such as treatment methods, quality and outcome measurement, research, education, funding, policy and organisation, and legislation. The White Paper presents a common terminology and standards that have been formulated in a consensus procedure with the European palliative care associations. Relevant topics will be examined in more depth in a series of future papers.

Schlüsselwörter

Standards - Normen - Qualität - Delphi Prozedur - European Association for Palliative Care

Keywords

standards - norms - quality - Delphi procedure - European Association for Palliative Care

1 Translated from the article „White Paper on standards and norms for hospice and palliative care in Europe: part 1” first published in the European Journal of Palliative Care 2009; 16 (6): 278–289 and 2010; 17 (1): 22–33. Kindly reproduced by permission of the publishers of the EJPC, who retain the copyright. All rights reserved. www.ejpc.eu.com

1 Übersetzung des Artikels „White Paper on standards and norms for hospice and palliative care in Europe: part 1”. Erstpublikation im European Journal of Palliative Care 2009; 16 (6): 278–289 and 2010; 17 (1): 22–33. Mit freundlicher Genehmigung der Herausgeber der EJPC, die das Copyright behalten. Alle Rechte vorbehalten. www.ejpc.eu.com

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1 Translated from the article „White Paper on standards and norms for hospice and palliative care in Europe: part 1” first published in the European Journal of Palliative Care 2009; 16 (6): 278–289 and 2010; 17 (1): 22–33. Kindly reproduced by permission of the publishers of the EJPC, who retain the copyright. All rights reserved. www.ejpc.eu.com

1 Übersetzung des Artikels „White Paper on standards and norms for hospice and palliative care in Europe: part 1”. Erstpublikation im European Journal of Palliative Care 2009; 16 (6): 278–289 and 2010; 17 (1): 22–33. Mit freundlicher Genehmigung der Herausgeber der EJPC, die das Copyright behalten. Alle Rechte vorbehalten. www.ejpc.eu.com

2 In dieser Übersetzung wird der Begriff „Palliativversorgung” als Übersetzung für „Palliative Care” verwendet.

3 Inwieweit Kinder mit einer zystischen Fibrose im Laufe ihrer Erkrankung einer Palliativversorgung bedürfen, wird kontrovers diskutiert. Aufgrund der verbesserten Therapiemöglichkeiten und der Option einer Lungentransplantation wird die zystische Fibrose heute von einigen Fachleuten nicht mehr zwangsläufig als lebenslimitierende Erkrankung betrachtet. Der Nutzen einer Lungentransplantation bei dieser Indikation ist jedoch empirisch umstritten [46].