The Canadian Pediatric Surgery Network (CAPSNet): Lessons Learned from a National Registry Devoted to the Study of Congenital Diaphragmatic Hernia and Gastroschisis

Alison E. Butler; Pramod S. Puligandla; Erik D. Skarsgard

doi:10.1055/s-0035-1569477

European Journal of Pediatric Surgery, Table of Contents

Eur J Pediatr Surg 2015; 25(06): 474-480
DOI: 10.1055/s-0035-1569477

Review Article

Georg Thieme Verlag KG Stuttgart · New York

The Canadian Pediatric Surgery Network (CAPSNet): Lessons Learned from a National Registry Devoted to the Study of Congenital Diaphragmatic Hernia and Gastroschisis

Authors

Alison E. Butler

¹Department of Surgery, University of British Columbia, Vancouver, British Columbia, Canada
Pramod S. Puligandla

²Department of Surgery, McGill University, Montreal, Quebec, Canada
Erik D. Skarsgard

¹Department of Surgery, University of British Columbia, Vancouver, British Columbia, Canada

Abstract

The Canadian Pediatric Surgery Network (CAPSNet) was created in 2005 by a geographically representative, multidisciplinary group of clinicians and researchers with the intent of establishing a national research registry for gastroschisis (GS) and congenital diaphragmatic hernia (CDH). Since then, CAPSNet has used this registry and its 16-center network to make contributions to the knowledge base informing best practices for GS and CDH care. More recently, CAPSNet has expanded its focus to include quality assurance and improvement at each of its sites, by issuing a benchmarked outcomes “report card” with its annual report. Finally, a major objective of CAPSNet has been to establish and adopt standardized, evidence-based practice guidelines for GS and CDH across all Canadian perinatal centers.

Keywords

congenital diaphragmatic hernia - gastroschisis - registry

Full Text

References

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