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Eur J Pediatr Surg 2017; 27(05): 388-394
DOI: 10.1055/s-0037-1607057
Review Article
Georg Thieme Verlag KG Stuttgart · New York

European Reference Networks: Share, Care, and Cure—Future or Dream?

Rene Wijnen
1   Department of Pediatric Surgery, Erasmus MC Sophia, Rotterdam, The Netherlands
,
Stefan Michał Anzelewicz
2   Department of Surgery and Urology for Children and Adolescents, Medical University of Gdansk, Pomerania, Poland
,
Claus Petersen
3   Department of Pediatric Surgery, Medical School Hannover, Hannover, Germany
,
Piotr Czauderna
2   Department of Surgery and Urology for Children and Adolescents, Medical University of Gdansk, Pomerania, Poland
› Institutsangaben
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Publikationsverlauf

28. August 2017

30. August 2017

Publikationsdatum:
04. Oktober 2017 (online)

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Abstract

European Reference Networks (ERNs) are virtual networks that involve healthcare providers across Europe. The aim of ERNs is to tackle complex or rare diseases and conditions that necessitate highly specialized treatment, knowledge and resources.

This article summarizes the concept of European Reference Networks in the European Union, legislation and policy behind ERNs from the standpoint of pediatric surgical specialty. There are seven ERNs in which pediatric surgeons are involved, four of which are being discussed, namely ERN PaedCan, eUROGEN ERN, ERN RARE-LIVER and ERNICA. ERNs program is a step towards improving health care quality, reducing access inequalities, and increasing overall medical experience and knowledge but its final impact is yet to be determined.

Keywords

rare diseases - children - networking
 

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