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Semin Reprod Med 2018; 36(01): 042-049
DOI: 10.1055/s-0038-1667308
Review Article
Thieme Medical Publishers 333 Seventh Avenue, New York, NY 10001, USA.

Evaluation of a Center of Research Excellence in Polycystic Ovary Syndrome as a Large-Scale Collaborative Research Translation Initiative, Including Evaluating Translation of Guideline Impact

Rhonda Garad
1   Monash Centre for Health Research and Implementation, School of Public Health and Preventive Medicine, Monash University, Clayton, Victoria, Australia
,
Samantha Kozica-Olenski
1   Monash Centre for Health Research and Implementation, School of Public Health and Preventive Medicine, Monash University, Clayton, Victoria, Australia
2   Internal Medicine Research Unit, The Royal Brisbane and Women's Hospital, Brisbane, Queensland, Australia
,
Helena J. Teede
1   Monash Centre for Health Research and Implementation, School of Public Health and Preventive Medicine, Monash University, Clayton, Victoria, Australia
3   National Health and Medical Research Council Centre for Research Excellence in PCOS, Monash and Adelaide Universities, Melbourne, Victoria, Australia
› Author Affiliations
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Publication History

Publication Date:
06 September 2018 (online)

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Abstract

Research translation and evaluation are often underconsidered in research design and implementation thus limiting research benefit to the end user. In this article, we first describe a best practice approach to evaluation, for a center of research excellence in polycystic ovary syndrome. Within this, we outline a comprehensive research translation program with inbuilt evaluation of the first International Evidence-based Guideline for the Assessment and Management of Polycystic Ovary Syndrome (2018). We seek to provide a real-world example of comprehensive approaches to evaluation and research translation.

Keywords

polycystic ovary syndrome - evaluation - research translation - best practice
 

  • References

  • 1 March WA, Moore VM, Willson KJ, Phillips DI, Norman RJ, Davies MJ. The prevalence of polycystic ovary syndrome in a community sample assessed under contrasting diagnostic criteria. Hum Reprod 2010; 25 (02) 544-551
    CrossrefPubMedSearch in Google Scholar
  • 2 Boyle JA, Cunningham J, O'Dea K, Dunbar T, Norman RJ. Prevalence of polycystic ovary syndrome in a sample of indigenous women in Darwin, Australia. Med J Aust 2012; 196 (01) 62-66
    CrossrefPubMedSearch in Google Scholar
  • 3 Yildiz BO, Bozdag G, Yapici Z, Esinler I, Yarali H. Prevalence, phenotype and cardiometabolic risk of polycystic ovary syndrome under different diagnostic criteria. Hum Reprod 2012; 27 (10) 3067-3073
    CrossrefPubMedSearch in Google Scholar
  • 4 Norman RJ, Dewailly D, Legro RS, Hickey TE. Polycystic ovary syndrome. Lancet 2007; 370 (9588): 685-697
    CrossrefPubMedSearch in Google Scholar
  • 5 Teede H, Deeks A, Moran L. Polycystic ovary syndrome: a complex condition with psychological, reproductive and metabolic manifestations that impacts on health across the lifespan. BMC Med 2010; 8: 41
    CrossrefPubMedSearch in Google Scholar
  • 6 Dokras A, Saini S, Gibson-Helm M, Schulkin J, Cooney L, Teede H. Gaps in knowledge among physicians regarding diagnostic criteria and management of polycystic ovary syndrome. Fertil Steril 2017; 107 (06) 1380-1386.e1
    CrossrefPubMedSearch in Google Scholar
  • 7 Cooney LG, Lee I, Sammel MD, Dokras A. High prevalence of moderate and severe depressive and anxiety symptoms in polycystic ovary syndrome: a systematic review and meta-analysis. Hum Reprod 2017; 32 (05) 1075-1091
    CrossrefPubMedSearch in Google Scholar
  • 8 Teede HJ, Misso ML, Deeks AA. , et al; Guideline Development Groups. Assessment and management of polycystic ovary syndrome: summary of an evidence-based guideline. Med J Aust 2011; 195 (06) S65-S112
    CrossrefPubMedSearch in Google Scholar
  • 9 Gibson-Helm M, Teede H, Dunaif A, Dokras A. Delayed diagnosis and a lack of information associated with dissatisfaction in women with polycystic ovary syndrome. J Clin Endocrinol Metab 2017; 102 (02) 604-612
    PubMedSearch in Google Scholar
  • 10 Boyle J, Xu R, Gilbert E. , et al. AskPCOS: Identifying need to inform evidence-based app development for polycystic ovary syndrome Semin. Reprod Med 2018; 36 (01) 64-73
    PubMedSearch in Google Scholar
  • 11 Misso ML, Tassone EC, Costello MF. , et al. Large scale evidence-based guideline development engaging the international PCOS community. Semin Reprod Med 2018; 36 (01) 30-36
    PubMedSearch in Google Scholar
  • 12 Xie J, Burstein F, Garad R, Teede H, Boyle J. Personalized mobile tool AskPCOS delivering evidence-based quality information about polycystic ovary syndrome. Semin Reprod Med 2018; 36 (01) 74-80
    PubMedSearch in Google Scholar
  • 13 Teede HJ, Costello MF, Dokras A. , et al. Recommendations from the international evidence-based guideline for the assessment and management of polycystic ovary syndrome. Fertil Steril 2018;11(03)
    PubMed
  • 14 Robinson T, Skouteris H, Melder A. , et al. Application of Monash Centre for Health Research and Implementation framework to development of PCOS guideline: a case study on implementation. Semin Reprod Med 2018; 36 (01) 13-18
    Thieme ConnectPubMedSearch in Google Scholar
  • 15 Francis LJ, Smith BJ. Toward best practice in evaluation: a study of Australian health promotion agencies. Health Promot Pract 2015; 16 (05) 715-723
    CrossrefPubMedSearch in Google Scholar
  • 16 Lobo R, Petrich M, Burns SK. Supporting health promotion practitioners to undertake evaluation for program development. BMC Public Health 2014; 14: 1315
    CrossrefPubMedSearch in Google Scholar
  • 17 Swinburn B, Bell C, King L, Magarey A, O'Brien K, Waters E. ; Primary Prevention Group of the Australian Childhood and Adolescent Obesity Research Network. Obesity prevention programs demand high-quality evaluations. Aust N Z J Public Health 2007; 31 (04) 305-307
    CrossrefPubMedSearch in Google Scholar
  • 18 Owen JM. Program Evaluation: Forms and Approaches. 3rd ed. New South Wales, Australia: Allen & Unwin; 2006
    Search in Google Scholar
  • 19 Moore G, Audrey S, Barker M. , et al. Process evaluation of complex interventions: Medical Research Council guidance. British Medical Journal 2015;350(h1258)
    PubMed
  • 20 A Framework for Program Evaluation. Centers for Disease Control and Prevention. . Available at: https://www.cdc.gov/mmwr/PDF/rr/rr4811.pdf . Updated May 15, 2017. Accessed July 18, 2018
    PubMed
  • 21 Centre for Disease Control and Prevention. A Framework for Program Evaluation. Atlanta, USA. Available at: http://www.cdc.gov/eval/framework/ . Accessed August 15, 2015
    PubMed
  • 22 Lingard L, Albert M, Levinson W. Grounded theory, mixed methods, and action research. British Medical Journal 2008; 337(a567)
    PubMedSearch in Google Scholar
  • 23 Straus SE, Tetroe J, Graham I. Defining knowledge translation. CMAJ 2009; 181 (3-4): 165-168
    CrossrefPubMedSearch in Google Scholar
  • 24 Graham ID, Logan J, Harrison MB. , et al. Lost in knowledge translation: time for a map?. J Contin Educ Health Prof 2006; 26 (01) 13-24
    CrossrefPubMedSearch in Google Scholar
  • 25 Greenhalgh T. What is this knowledge that we seek to “exchange”?. Milbank Q 2010; 88 (04) 492-499
    CrossrefPubMedSearch in Google Scholar