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CC BY-NC-ND 4.0 · Int Arch Otorhinolaryngol 2021; 25(04): e536-e544
DOI: 10.1055/s-0040-1718963
Original Research

Quality of Life of the Patient with Head and Neck Cancer Submitted to Radiotherapy and the Overload of Their Caregivers

Daniela Delalibera 
1   Centro Universitário das Faculdades Associadas de Ensino (UNIFAE), São João da Boa Vista, SP, Brazil
,
Alessandra Cristine Ribeiro Carvalho 
1   Centro Universitário das Faculdades Associadas de Ensino (UNIFAE), São João da Boa Vista, SP, Brazil
,
Bruna Luiza Thesolim 
1   Centro Universitário das Faculdades Associadas de Ensino (UNIFAE), São João da Boa Vista, SP, Brazil
,
Laura Ferreira de Rezende 
1   Centro Universitário das Faculdades Associadas de Ensino (UNIFAE), São João da Boa Vista, SP, Brazil
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Abstract

Introduction Esthetic and functional changes are frequent in patients with head and neck cancer, and they can be caused by both tumor and treatment. Physical and functional impairment often requires the need of a caregiver, who may feel overwhelmed with the tasks of care.

Objective This study aims to evaluate the quality of life of patients with head and neck cancer submitted to radiotherapy and the overload of their caregivers.

Method This is a quantitative cross-sectional study with 42 patients with head and neck cancer and 17 caregivers evaluated during the radiotherapy treatment. Patients responded to the following questionnaires: Functional Assessment of Cancer Therapy for Head and Neck Cancer (FACT-H&N) and Shame and Stigma Scale (SSS), while the caregivers responded to the Zarit Burden Interview Scale (ZBI) and Palliative Performance Scale (PPS).

Results Head and neck cancer patients showed a decline in the quality of life in all FACT-H&N domains, with the domain of additional concerns having the worst outcome. Among the feelings reported by patients, the most important was penitence. Less than half of the patients needed caregivers. It was observed that the greater the degree of commitment of the patient, the greater the degree of overload of the caregiver.

Conclusion Therefore, the quality of life of the patient with head and neck cancer is an important aspect to be considered during the therapeutic choice and in the follow-up of the patient, since it has influenced both the patient and his caregiver.

Keywords

head and neck neoplasms - quality of life - caregivers - radiotherapy


Publikationsverlauf

Eingereicht: 25. November 2019

Angenommen: 30. August 2020

Artikel online veröffentlicht:
29. März 2021

© 2021. Fundação Otorrinolaringologia. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commecial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/)

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