RSS-Feed abonnieren
PDF herunterladen
DOI: 10.1055/s-0042-1742444
Building a Foundation for the Care of Children with Cancer in Rural North India
Funding None required.
Abstract
One of India's biggest challenges is to improve its global standing by increasing healthcare access and outcomes for children with cancer, with inferior overall survivorship compared with its Western counterparts. In conjunction with the government's efforts, private enterprise is crucial in delivering optimal cancer care consistently to its vast and diverse pediatric population, despite existing limitations. This article describes the successful implementation of a value-based, collaborative clinical and research framework by a philanthropic foundation in a rural Northern Indian city to establish and run a local childhood cancer service. It is proof of concept that substantial change could be brought about at grass roots level through resourceful partnerships and reduce prevailing imbalance in pediatric oncology service provision.
Authors' Contributions
SN was involved in conceptualization, designing, definition of content, literature review, manuscript preparation, editing and review. PJR edited and reviewed the manuscript. RG acquired data and edited and reviewed the manuscript. SC was involved in conceptualization, designing, definition of content, manuscript preparation, editing and review.
Publikationsverlauf
Artikel online veröffentlicht:
15. Februar 2022
© 2022. Indian Society of Medical and Paediatric Oncology. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/)
Thieme Medical and Scientific Publishers Pvt. Ltd.
A-12, 2nd Floor, Sector 2, Noida-201301 UP, India
-
References
- 1 Sung H, Ferlay J, Siegel RL. et al. Global Cancer Statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA Cancer J Clin 2021; 71 (03) 209-249
- 2 Arora RS, Bagai P, Bhakta N. Estimated national and state level incidence of childhood and adolescent cancer in India. Indian Pediatr 2021; 58 (05) 417-423
- 3 Gupta S, Morris SK, Suraweera W, Aleksandrowicz L, Dikshit R, Jha P. Childhood cancer mortality in India: direct estimates from a nationally representative survey of childhood deaths. J Glob Oncol 2016; 2 (06) 403-411
- 4 Siegel DA, Richardson LC, Henley SJ. et al. Pediatric cancer mortality and survival in the United States, 2001-2016. Cancer 2020; 126 (19) 4379-4389
- 5 Force LMAI, Advani SM. et al; GBD 2017 Childhood Cancer Collaborators. The global burden of childhood and adolescent cancer in 2017: an analysis of the Global Burden of Disease Study 2017. Lancet Oncol 2019; 20 (09) 1211-1225
- 6 Ganguly S, Kinsey S, Bakhshi S. Childhood cancer in India. Cancer Epidemiol. Apr 2021; 71 (Pt B): 101679
- 7 Vaughn VM, Saint S, Krein SL. et al. Characteristics of healthcare organisations struggling to improve quality: results from a systematic review of qualitative studies. BMJ Qual Saf 2019; 28 (01) 74-84
- 8 Fowler S. Toward a new curriculum of leadership competencies: advances in motivation science call for rethinking leadership development. Adv Dev Hum Resour 2018; 20 (02)
- 9 Gagne M, Deci EL. Self-determination theory and work motivation. J Organ Behav 2005; 26: 331-362
- 10 Tamir DI, Hughes BL. Social rewards: from basic social building blocks to complex social behavior. Perspect Psychol Sci 2018; 13 (06) 700-717
- 11 WHO Global Initiative for childhood cancer – India responds. Pediatric Hematology Oncology Journal 2020; 5 (04) 145-150
- 12 Faruqui N, Bernays S, Martiniuk A. et al. Access to care for childhood cancers in India: perspectives of health care providers and the implications for universal health coverage. BMC Public Health 2020; 20 (01) 1641
- 13 Ganguly S, Bakhshi S. Teleconsultations and shared care in pediatric oncology during COVID-19. Indian J Pediatr 2021; 88 (01) 1-2
- 14 Othman MY, Blair S, Nah SA. et al. Pediatric solid tumor care and multidisciplinary tumor boards in low- and middle-income countries in Southeast Asia. JCO Glob Oncol 2020; 6: 1328-1345
- 15 Maris JM. Defining why cancer develops in children. N Engl J Med 2015; 373 (24) 2373-2375
- 16 Rao VN, Anantharaman Rajeshwari R, Rajagopal R, Normen M. Inception of a pediatric cancer caregiver support group guided by parental needs. Cancer Rep (Hoboken) Jun 6 2021; e1469
- 17 Mathur P, Sathishkumar K, Chaturvedi M. et al; ICMR-NCDIR-NCRP Investigator Group. Cancer Statistics, 2020: report from National Cancer Registry Programme, India. JCO Glob Oncol 2020; 6: 1063-1075
- 18 Patil S, Majumdar B, Awan KH. et al. Cancer oriented biobanks: a comprehensive review. Oncol Rev 2018; 12 (01) 357
- 19 Loucaides EM, Fitchett EJA, Sullivan R, Atun R. Global public and philanthropic investment in childhood cancer research: systematic analysis of research funding, 2008-16. Lancet Oncol 2019; 20 (12) e672-e684
- 20 Magrath I, Shanta V, Advani S. et al. Treatment of acute lymphoblastic leukaemia in countries with limited resources; lessons from use of a single protocol in India over a twenty year period [corrected]. European journal of cancer (Oxford, England: 1990) Jul 2005; 41 (11) 1570-83
- 21 Arora RS, Raj R, Mahajan A, Radhakrishnan N, Chinnaswamy G, Banavali S. Collaborative cancer research: progress report from the Indian Pediatric Oncology Group. Lancet Child Adolesc Health 2021; 5 (04) 239-240
- 22 Wong M, Mayoh C, Lau LMS. et al. Whole genome, transcriptome and methylome profiling enhances actionable target discovery in high-risk pediatric cancer. Nature medicine 2020/10/05 2020;