CC BY-NC-ND 4.0 · Annals of Otology and Neurotology 2022; 05(02): 062-068
DOI: 10.1055/s-0043-1764172
Original Article

Identification and Intervention of Hearing Loss in Maharashtra: A Survey of Parental Experience

Shweta Deshpande
1   School of Audiology and Speech-Language Pathology, Bharati Vidyapeeth (Deemed to be University), Pune, Maharashtra, India
,
Madhuri Ramdas Bhogade
1   School of Audiology and Speech-Language Pathology, Bharati Vidyapeeth (Deemed to be University), Pune, Maharashtra, India
› Author Affiliations

Abstract

Background Universal newborn hearing screening is not yet fully implemented in India at a national level due to many challenges like cost, limited specialist staff, loss to follow-up, and importance of hearing in speech language development. Most often the parents identify and initiate intervention for the child's hearing loss after the critical period of development is over. There is a need to explore the age at which children are detected and identified with hearing loss, fitted with appropriate intervention, and the barriers faced during this process.

Method Data was collected from parents of 60 children with hearing loss aged between 2 and 6 years. A questionnaire comprising of 27 items was developed and administered on parents through face-to-face and telephonic interviews. The data was descriptively analyzed to study the parents’ responses.

Results The median age at suspicion was 12 months, median age at identification was 18 months, and age at initiation of intervention was 24 months in children with hearing loss between the age range of 2 to 6 years. Financial constraint was reported to be the most common barrier among the others faced by the parents.

Conclusion This study highlights the current status of the age at identification and intervention of hearing loss in children in Maharashtra. These findings can help to create awareness regarding the need for early identification and appropriate management in children with hearing loss for development of adequate verbal communication skills.



Publication History

Article published online:
26 May 2023

© 2023. Indian Society of Otology. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial-License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/).

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  • References

  • 1 Helfand M, Thompson DC, Davis R, McPhillips H, Homer CJ, Lieu TL. Newborn Hearing Screening. Oregon Health Sciences University Evidence-based Practice Center, Portland, Oregon: Agency for Healthcare Research and Quality (US), Rockville (MD); 2001. Accessed January 22, 2023 at: http://europepmc.org/abstract/MED/20722147.
  • 2 Moeller MP. Early intervention and language development in children who are deaf and hard of hearing. Pediatrics 2000; 106 (03) E43 DOI: 10.1542/peds.106.3.e43.
  • 3 Marschark M, Wauters L. Cognitive functioning in deaf adults and children 2012;1: 10.1093/oxfordhb/9780199750986.013.0034
  • 4 Theunissen SCPM, Rieffe C, Kouwenberg M. et al. Behavioral problems in school-aged hearing-impaired children: the influence of sociodemographic, linguistic, and medical factors. Eur Child Adolesc Psychiatry 2014; 23 (04) 187-196
  • 5 Deafness prevention. Accessed January 22, 2023 at: https://www.who.int/deafness/estimates/en/. Published 2018.
  • 6 Provisional Population, Rural Urban Distribution. Vol 1. Census of India; 2011.
  • 7 National Sample Survey Office. Disabled Persons in India: A Statistical Profile; 2016. Accessed January 22, 2023 at: http://mospi.nic.in/sites/default/files/publication_reports/Disabled_persons_in_India_2016.pdf.
  • 8 National Sample Survey Organisation I. A Report on “disabled persons” Based on Data Colleted in State Sample on 58th Round of National Sample Survey. Vol I.; 2002
  • 9 Bubbico L, Di Castelbianco FB, Tangucci M, Salvinelli F. Early hearing detection and intervention in children with prelingual deafness, effects on language development. Minerva Pediatr 2007; 59 (04) 307-313
  • 10 Gupta S, Sah S, Som T. et al. Challenges of implementing universal newborn hearing screening at a tertiary care centre from India. Indian J Pediatr 2015; 82 (08) 688-693
  • 11 Sirur GS, Rangasayee R. Age of identification of hearing impairment in Mumbai--a trend analysis. Int J Pediatr Otorhinolaryngol 2011; 75 (12) 1549-1552
  • 12 Kumar S, Kolethekkat AA, Kurien M. Challenges in the detection and intervention of childhood deafness: experience from a developing country Suresh. Int J Biomed Res 2015; 6 (01) 40-45
  • 13 Rout N, Singh U. Age of suspicion, identification and intervention for rural Indian children with hearing loss. East J Med 2010; 15 (03) 97-102
  • 14 Merugumala SV, Pothula V, Cooper M. Barriers to timely diagnosis and treatment for children with hearing impairment in a southern Indian city: a qualitative study of parents and clinic staff. Int J Audiol 2017; 56 (10) 733-739
  • 15 Kumar KA, Mathew D, Hemraj S, Jeppu K. Age at diagnosis of hearing impairment in deaf children attending special schools in South India. Indian J Med Sci 2018; 70 (01) 12-14
  • 16 Harrison M, Roush J. Age of suspicion, identification, and intervention for infants and young children with hearing loss: a national study. Ear Hear 1996; 17 (01) 55-62
  • 17 Jafari Z, Malayeri S, Ashayeri H. The ages of suspicion, diagnosis, amplification, and intervention in deaf children. Int J Pediatr Otorhinolaryngol 2007; 71 (01) 35-40
  • 18 Thakre SB, Thakre SS, Alone S. Qualitative analysis of parents’ experience of hearing loss of their school going children of a rural area of Nagpur. J Res Med Sci 2012; 17 (08) 764-771
  • 19 Rout N, Parveen S, Chattopadhyay D, Kishore MT. Risk factors of hearing impairment in Indian children: a retrospective case-file study. Int J Rehabil Res 2008; 31 (04) 293-296
  • 20 JCIH. Year 2019 Position Statement : Principles and Guidelines for Early Hearing Detection and Intervention Programs. J Early Hear Detect Interv 2019; 4 (02) 1-44
  • 21 Kampfe CM. Parental reaction to a child’s hearing impairment. Am Ann Deaf 1989; 134 (04) 255-259
  • 22 Prendergast SG, Lartz MN, Fiedler BC. Ages of diagnosis, amplification, and early intervention of infants and young children with hearing loss: findings from parent interviews. Am Ann Deaf 2002; 147 (01) 24-30
  • 23 Ozcebe E, Sevinc S, Belgin E. The ages of suspicion, identification, amplification and intervention in children with hearing loss. Int J Pediatr Otorhinolaryngol 2005; 69 (08) 1081-1087
  • 24 Sjoblad S, Harrison M, Roush J, McWilliam RA. Parents’ reactions and recommendations after diagnosis and hearing aid fitting. Am J Audiol 2001; 10 (01) 24-31
  • 25 Harrison M, Roush J, Wallace J. Trends in age of identification and intervention in infants with hearing loss. Ear Hear 2003; 24 (01) 89-95 Video Occulography-Assisted Diagnosis of BPPV Khan et al.