Subscribe to RSS
DOI: 10.1055/s-0043-1768727
How Participatory Health Informatics Catalyzes One Digital Health
Summary
Objective: To identify links between Participatory Health Informatics (PHI) and the One Digital Health framework (ODH) and to show how PHI could be used as a catalyst or contributor to ODH.
Methods: We have analyzed the addressed topics within the ODH framework in previous IMIA Yearbook contributions from our working group during the last 10 years. We have matched main themes with the ODH's framework three perspectives (individual health and wellbeing, population and society, and ecosystem).
Results: PHI catalysts ODH individual health and wellbeing perspective by providing a more comprehensive view on human health, attitudes, and relations between human health and animal health. Integration of specific behavior change techniques or gamification strategies in digital solutions are effective to change behaviors which address the P5 paradigm. PHI supports the population and society perspective through the engagement of the various stakeholders in healthcare. At the same time, PHI might increase a risk for health inequities due to technologies inaccessible to all equally and challenges associated with this. PHI is a catalyst for the ecosystem perspective by contributing data into the digital health data ecosystem allowing for analysis of interrelations between the various data which in turn might provide links among all components of the healthcare ecosystem.
Conclusion: Our results suggest that PHI can and will involve topics relating to ODH. As the ODH concept crystalizes and becomes increasingly influential, its themes will permeate and become embedded in PHI even more. We look forward to these developments and co-evolution of the two frameworks.
Publication History
Article published online:
26 December 2023
© 2023. IMIA and Thieme. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/)
Georg Thieme Verlag KG
Rüdigerstraße 14, 70469 Stuttgart, Germany
-
References
- 1 Zinsstag J, Schelling E, Waltner-Toews D, Tanner M. From “one medicine” to “one health” and systemic approaches to health and well-being. Prev Vet Med 2011 Sep 1;101(3-4):148-56. doi: 10.1016/j.prevetmed.2010.07.003.
- 2 Osterhaus A. Welcome to One Health Outlook. One Health Outlook 2019 Nov 27;1:1. doi: 10.1186/s42522-019-0005-y.
- 3 Cook RA, Karesh WB, Osofsky SA. The Manhattan Principles on One World, One Health [Internet]. [Available from: http://www.wcs-ahead.org/manhattan_principles.html].
- 4 Mackenzie JS, Jeggo M. The One Health Approach-Why Is It So Important? Trop Med Infect Dis 2019 May 31;4(2):88. doi: 10.3390/tropicalmed4020088.
- 5 Food and Agricultural Organization of the United Nations. Sustainable development goals. [Internet]. 2022. [Available from: https://www.fao.org/sustainable-development-goals/overview/en/].
- 6 Gostin LO, Friedman EA. The Sustainable Development Goals: One-Health in the World's Development Agenda. JAMA 2015 Dec 22-29;314(24):2621-2. doi: 10.1001/jama.2015.16281.
- 7 Denecke K, Romero OR, Petersen C, Benham-Hutchins M, Cabrer M, Davies S et al. Defining and Scoping Participatory Health Informatics: An eDelphi Study. Methods Inf Med 2023 Mar 14. doi: 10.1055/a-2035-3008.
- 8 Benis A, Tamburis O, Chronaki C, Moen A. One Digital Health: A Unified Framework for Future Health Ecosystems. J Med Internet Res 2021 Feb 5;23(2):e22189. doi: 10.2196/22189.
- 9 Rivera-Romero O, Gabarron E, Miron-Shatz T, Petersen C, Denecke K. Social Media, Digital Health Literacy, and Digital Ethics in the Light of Health Equity. Yearb Med Inform 2022 Aug;31(1):82-7. doi: 10.1055/s-0042-1742503.
- 10 Gabarron E, Rivera-Romero O, Miron-Shatz T, Grainger R, Denecke K. Role of Participatory Health Informatics in Detecting and Managing Pandemics: Literature Review. Yearb Med Inform 2021 Aug;30(1):200-9. doi: 10.1055/s-0041-1726486.
- 11 Rivera-Romero O, Konstantinidis S, Denecke K, Gabarrón E, Petersen C, Househ M, Merolli M, Mayer MÁ. Ethical Considerations for Participatory Health through Social Media: Healthcare Workforce and Policy Maker Perspectives. Yearb Med Inform 2020 Aug;29(1):71-6. doi: 10.1055/s-0040-1701981.
- 12 Denecke K, Gabarron E, Grainger R, Konstantinidis ST, Lau A, Rivera-Romero O, Miron-Shatz T, Merolli M. Artificial Intelligence for Participatory Health: Applications, Impact, and Future Implications. Yearb Med Inform 2019 Aug;28(1):165-73. doi: 10.1055/s-0039-1677902.
- 13 Househ M, Grainger R, Petersen C, Bamidis P, Merolli M. Balancing Between Privacy and Patient Needs for Health Information in the Age of Participatory Health and Social Media: A Scoping Review. Yearb Med Inform 2018 Aug;27(1):29-36. doi: 10.1055/s-0038-1641197.
- 14 Staccini P, Fernandez-Luque L. Secondary Use of Recorded or Self-expressed Personal Data: Consumer Health Informatics and Education in the Era of Social Media and Health Apps. Yearb Med Inform 2017 Aug;26(1):172-77. doi: 10.15265/IY-2017-037.
- 15 Hors-Fraile S, Atique S, Mayer MA, Denecke K, Merolli M, Househ M. The Unintended Consequences of Social Media in Healthcare: New Problems and New Solutions. Yearb Med Inform 2016 Nov 10;(1):47-52. doi: 10.15265/IY-2016-009.
- 16 Denecke K, Bamidis P, Bond C, Gabarron E, Househ M, Lau AY, Mayer MA, Merolli M, Hansen M. Ethical Issues of Social Media Usage in Healthcare. Yearb Med Inform 2015 Aug 13;10(1):137-47. doi: 10.15265/IY-2015-001.
- 17 Sands DZ, Wald JS. Transforming health care delivery through consumer engagement, health data transparency, and patient-generated health information. Yearb Med Inform 2014 Aug 15;9(1):170-6. doi: 10.15265/IY-2014-0017.
- 18 Miron-Shatz T, Hansen MM, Grajales FJ, Martin-Sanchez F, Bamidis PD. Social Media for the Promotion of Holistic Self-Participatory Care: An Evidence Based Approach. Contribution of the IMIA Social Media Working Group. Yearb Med Inform 2013;8:162–8.
- 19 deBronkart D. From patient centred to people powered: autonomy on the rise. BMJ 2015 Feb 10;350:h148. doi: 10.1136/bmj.h148.
- 20 Merolli M, Gray K, Martin-Sanchez F. Therapeutic affordances of social media: emergent themes from a global online survey of people with chronic pain. J Med Internet Res 2014 Dec 22;16(12):e284. doi: 10.2196/jmir.3494.
- 21 Gabarron E, Oyeyemi SO, Wynn R. COVID-19-related misinformation on social media: a systematic review. Bull World Health Organ 2021 Jun 1;99(6):455-463A. doi: 10.2471/BLT.20.276782.
- 22 Edwards EA, Lumsden J, Rivas C, Steed L, Edwards LA, Thiyagarajan A, et al. Gamification for health promotion: systematic review of behaviour change techniques in smartphone apps. BMJ Open 2016 Oct 4;6(10):e012447. doi: 10.1136/bmjopen-2016-012447.
- 23 Laranjo L. Social Media and Health Behavior Change. Participatory Health Through Social Media [Internet]. Elsevier; 2016 [cited 2022 Oct 18]. p. 83–111. [Available from: https://linkinghub.elsevier.com/retrieve/pii/B9780128092699000062].
- 24 Bamidis PD, Gabarron E, Hors-Fraile S, Konstantinidis E, Konstantinidis S, Rivera O. Gamification and Behavioral Change. Participatory Health Through Social Media [Internet]. Elsevier; 2016 [cited 2022 Oct 18]. p. 112–35. [Available from: https://linkinghub.elsevier.com/retrieve/pii/B9780128092699000074].
- 25 Carey RN, Connell LE, Johnston M, Rothman AJ, de Bruin M, Kelly MP, et al. Behavior Change Techniques and Their Mechanisms of Action: A Synthesis of Links Described in Published Intervention Literature. Ann Behav Med 2019 Jul 17;53(8):693-707. doi: 10.1093/abm/kay078.
- 26 Wideman TH, Sullivan MJL, Inada S, McIntyre D, Kumagai M, Yahagi N, et al. Behavior Change Techniques. In: Gellman MD, Turner JR, editors. Encyclopedia of Behavioral Medicine [Internet]. New York, NY: Springer New York; 2013 [cited 2022 Oct 18]. p. 182–7. [Available from: http://link.springer.com/10.1007/978-1-4419-1005-9_1661].
- 27 Deterding S, Sicart M, Nacke L, O'Hara K, Dixon D. Gamification. using game-design elements in non-gaming contexts. Proceedings of the 2011 annual conference extended abstracts on Human factors in computing systems - CHI EA '11 [Internet]. Vancouver, BC, Canada: ACM Press; 2011 [cited 2022 Oct 18]. p. 2425. [Available from: http://portal.acm.org/citation.cfm?doid=1979742.1979575].
- 28 Deterding S, Dixon D, Khaled R, Nacke L. From game design elements to gamefulness: defining “gamification.” Proceedings of the 15th International Academic MindTrek Conference on Envisioning Future Media Environments - MindTrek '11 [Internet]. Tampere, Finland: ACM Press; 2011 [cited 2022 Oct 18]. p. 9. [Available from: http://dl.acm.org/citation.cfm?doid=2181037.2181040].
- 29 Laranjo L, Ding D, Heleno B, Kocaballi B, Quiroz JC, Tong HL, et al. Do smartphone applications and activity trackers increase physical activity in adults? Systematic review, meta-analysis and metaregression. Br J Sports Med 2021 Apr;55(8):422-32. doi: 10.1136/bjsports-2020-102892.
- 30 Chow CY, Riantiningtyas RR, Kanstrup MB, Papavasileiou M, Liem GD, Olsen A. Can games change children's eating behaviour? A review of gamification and serious games. Food Quality and Preference. 2020;80:103823.
- 31 Miele G, Straccia G, Moccia M, Leocani L, Tedeschi G, Bonavita S, et al. Telemedicine in Parkinson's Disease: How to Ensure Patient Needs and Continuity of Care at the Time of COVID-19 Pandemic. Telemed J E Health 2020 Dec;26(12):1533-6. doi: 10.1089/tmj.2020.0184.
- 32 Kataria S, Ravindran V. Digital health: a new dimension in rheumatology patient care. Rheumatol Int 2018 Nov;38(11):1949-57. doi: 10.1007/s00296-018-4037-x.
- 33 Zhukovsky P, Ruggeri K, Garcia-Garzon E, Plakolm S, Haller E, Petrova D, et al. Global Health Policy and Access to Care: Investigating Patient Choice on an International Level Using Social Media. Front Public Health 2016 Jan 25;3:284. doi: 10.3389/fpubh.2015.00284.
- 34 Shimkhada R, Attai D, Scheitler AJ, Babey S, Glenn B, Ponce N. Using a Twitter Chat to Rapidly Identify Barriers and Policy Solutions for Metastatic Breast Cancer Care: Qualitative Study. JMIR Public Health Surveill 2021 Jan 15;7(1):e23178. doi: 10.2196/23178.
- 35 Gewirtz O'Brien J, McPherson L, Miller K, Svetaz MV. Adolescent Health: Media Use. FP Essent 2021;507:33–8.
- 36 Hellstrand K, Rogers SC, DiVietro S, Clough M, Sturm J. Prevalence of Cyberbullying in Patients Presenting to the Pediatric Emergency Department. Pediatr Emerg Care 2021 Jun 1;37(6):e334-e338. doi: 10.1097/PEC.0000000000002243.
- 37 Chiew AL, Raubenheimer JE, Berling I, Buckley NA, Becker T, Chan B, et al. Just “nanging” around - harmful nitrous oxide use: a retrospective case series and review of Internet searches, social media posts and the coroner's database. Intern Med J 2022 Oct;52(10):1724-32. doi: 10.1111/imj.15391.
- 38 Kriegel ER, Lazarevic B, Athanasian CE, Milanaik RL. TikTok, Tide Pods and Tiger King: health implications of trends taking over pediatric populations. Curr Opin Pediatr 2021 Feb 1;33(1):170-7. doi: 10.1097/MOP.0000000000000989.
- 39 Chauhan B, George R, Coffin J. Social media and you: what every physician needs to know. J Med Pract Manage 2012;28(3):206–9.
- 40 Ashton KS. Teaching nursing students about terminating professional relationships, boundaries, and social media. Nurse Educ Today 2016 Feb;37:170-2. doi: 10.1016/j.nedt.2015.11.007.
- 41 Sharma AE, Mann Z, Cherian R, Del Rosario JB, Yang J, Sarkar U. Recommendations From the Twitter Hashtag #DoctorsAreDickheads: Qualitative Analysis. J Med Internet Res 2020 Oct 28;22(10):e17595. doi: 10.2196/17595.
- 42 Crane GM, Gardner JM. Pathology Image-Sharing on Social Media: Recommendations for Protecting Privacy While Motivating Education. AMA J Ethics 2016 Aug 1;18(8):817-25. doi: 10.1001/journalofethics.2016.18.8.stas1-1608.
- 43 Kobayashi T, Nishina Y, Tomoi H, Harada K, Tanaka K, Matsumoto E, et al. Corowa-kun: A messenger app chatbot delivers COVID-19 vaccine information, Japan 2021. Vaccine 2022 Jul 30;40(32):4654-62. doi: 10.1016/j.vaccine.2022.06.007.
- 44 Haggerty J, Chin MH, Katz A, Young K, Foley J, Groulx A, et al. Proactive Strategies to Address Health Equity and Disparities: Recommendations from a Bi-National Symposium. J Am Board Fam Med 2018 May-Jun;31(3):479-83. doi: 10.3122/jabfm.2018.03.170299.
- 45 Johnstone PW. A case study of new approaches to address health inequalities: Due North five years on. Br Med Bull 2019 Dec 11;132(1):17-31. doi: 10.1093/bmb/ldz037.
- 46 Petersen C, Austin RR, Backonja U, Campos H, Chung AE, Hekler EB, et al. Citizen science to further precision medicine: from vision to implementation. JAMIA Open 2019 Dec 3;3(1):2-8. doi: 10.1093/jamiaopen/ooz060.
- 47 van Kessel R, Wong BLH, Clemens T, Brand H. Digital health literacy as a super determinant of health: More than simply the sum of its parts. Internet Interv 2022 Feb 7;27:100500. doi: 10.1016/j.invent.2022.100500.
- 48 Meskó B, deBronkart D. Patient Design: The Importance of Including Patients in Designing Health Care. J Med Internet Res 2022 Aug 31;24(8):e39178. doi: 10.2196/39178.
- 49 Osborne R, Kayser L. Skills and characteristics of the e-health literate patient. BMJ 2018 Apr 16;361:k1656. doi: 10.1136/bmj.k1656.