An Individualized Educational Package for Improving Knowledge and Practices of Caregivers of Patients with Spinal Cord Injury: A Quasiexperimental Study

Abstract

Introduction Globally, traumatic spinal cord injury occurs at a rate of 13 to 53 cases per million populations. These patients tend to get dependent on hospital staff as well as caregivers for their activities of daily living. There are insufficient data available on whether the caregivers have adequate knowledge and required skills to perform the same.

Aim Our aim was to evaluate the impact of an individualized educational package on the knowledge and practices of caregivers of patients with spinal cord injury.

Methods The caregivers (n = 30) were recruited in the quasi-experimental study by using a nonequivalent, control group design using the TREND checklist. Study subjects were divided into two groups, that is, control and experimental. The intervention was delivered through an educational package in the experimental group, and no intervention was given to the control group. The educational package was delivered by dedicated registered nurse. Ethical approval was taken from the ethical committee, and informed consent was obtained from the study participants. Data were analyzed using STATA version 16 and SPSS version 20.

Result The mean age of patients was 34.6 + 2.7 years, and majority (90%) were males. The most common cause of spinal cord injury was fall from height in 53.3% patients followed by road traffic accidents in 36.6% patients. The mean posttest knowledge score (30.7 + 8.6) of subjects in the experimental group was significantly higher than the control group (18.4 + 5.3). Also, the mean posttest practice score (54.3 + 9) of subjects in the experimental group was significantly higher than the control group (35.9 + 6.8).

Conclusion Educating caregivers (relatives) can dramatically improve the quality of life of patients as well as prevent complications and rehospitalizations. A dedicated nurse educator should be posted in spinal cord injury wards to deliver such educational packages.

Keywords

spinal cord injury - knowledge - practices - caregivers - individualized educational package

Authors' Contributions

I.P., M.A.K.R., D.C.K., and D.A. contributed to conceptualization, design, definition of intellectual content, methodology, validation, investigation, supervision, data analysis, writing (review and editing), and manuscript review. I.P. contributed to data acquisition. I.P. and M.A.K.R. contributed to literature search, statistical analysis, and writing the original draft. D.C.K. also contributed to writing the original draft.

Ethical Approval

The study received ethical approval from the Institutional Ethics Committee, with ref. no. IECPG- 131/28.02.2019 dated 05.03.2019.

Publikationsverlauf

Artikel online veröffentlicht:
31. Januar 2024

• References

• 1 Khazaeipour Z, Abouie A, Zarei F. et al. Personal, family and societal educational needs assessment of individuals with spinal cord injury in Iran. Neurosciences (Riyadh) 2018; 23 (03) 216-222
• 2 WHO. International perspectives on spinal cord injury [Internet]. WHO; . [cited 2020]. Accessed October 20, 2023 at: https://www.who.int/publications/i/item/international-perspectives-on-spinal-cord-injury
• 3 Yang R, Guo L, Wang P. et al. Epidemiology of spinal cord injuries and risk factors for complete injuries in Guangdong, China: a retrospective study. PLoS One 2014; 9 (01) e84733
• 4 Hoffman J, Salzman C, Garbaccio C, Burns SP, Crane D, Bombardier C. Use of on-demand video to provide patient education on spinal cord injury. J Spinal Cord Med 2011; 34 (04) 404-409
• 5 Krueger H, Noonan VK, Trenaman LM, Joshi P, Rivers CS. The economic burden of traumatic spinal cord injury in Canada. Chronic Dis Inj Can 2013; 33 (03) 113-122
• 6 Emerich L, Parsons KC, Stein A. Competent care for persons with spinal cord injury and dysfunction in acute inpatient rehabilitation. Top Spinal Cord Inj Rehabil 2012; 18 (02) 149-166
• 7 Singh R, Yadav S, Meena V. Community reintegration postspinal cord injury: Indian scenario. J Orthop Allied Sci 2020. Accessed October 20, 2023 at: http://www.joas.in/article.asp?issn=2319-2585;year=2017;volume=5;issue=1;spage=15;epage=20;aulast=Singh
• 8 Home care of discharged postoperative neurosurgery patients: are the caregivers responsible?. [cited 2020 Jan 25]. Accessed October 20, 2023 at: https://www.researchgate.net/publication/283657773_Home_care_of_discharged_Postoperative_Neurosurgery_Pa tients_Are_the_caregivers_responsible
• 9 Leavitt MB, Lamb SA, Voss BS. Brain tumor support group: content themes and mechanisms of support. Oncol Nurs Forum 1996; 23 (08) 1247-1256
• 10 Levine C. The loneliness of the long-term care giver. N Engl J Med 1999; 340 (20) 1587-1590
• 11 Kumar SV. Elderly in the changing traditional family structure: an Indian scenario. Soc Change 1999; 29 (1–2): 77-89
• 12 Madhanraj K, Sharma U, Kaur S, Tewari MK, Singh A. Impact of self-instruction manual-based training of family caregivers of neurosurgery patients on their knowledge and care practices—a randomized controlled trial. J Family Med Prim Care 2019; 8 (01) 209-214
• 13 Kanmani J, Laly K, Nila K. The effectiveness of planned educational intervention on knowledge and skills in home care management among care givers of patients with spinal cord injury. Indian J Public Health Res Dev 2019; 10: 56
• 14 Weheida SM, Shabaan E, Fehr A. Effect of pre-discharge instructions on patients' activities and functional ability post spinal cord injury. Egyptian Nursing Journal 2018; 15 (02) 135-143
• 15 Khanal N. Knowledge and practice among the caretakers of bedridden patients on prevention of urinary tract infection. J Univers Coll Med Sci 2014; 2 (01) 24-29 . Accessed October 20, 2023 at: https://www.nepjol.info/index.php/JUCMS/article/view/10488
• 16 Shrestha C, Khatiwada S. Educational intervention on pressure ulcer among caregivers of immobilized patient. Int J Nurs Res Pract IJNRP [Internet] 2018;5(01): Accessed October 20, 2023 at: https://uphtr.com/files/issue_files/ijnrp_18_vol5_no1_4chanda.pdf
• 17 Schubart J. An e-learning program to prevent pressure ulcers in adults with spinal cord injury: a pre- and post- pilot test among rehabilitation patients following discharge to home. Ostomy Wound Manage 2012; 58 (10) 38-49
• 18 Karaca T, Altinbas Y, Aslan S. Tracheostomy care education and its effect on knowledge and burden of caregivers of elderly patients: a quasi-experimental study. Scand J Caring Sci 2019; 33 (04) 878-884
• 19 Nagi M, Kaur S, Kapoor S, Gupta SK. Skill development in suctioning technique among caregivers of patients going to be discharged with tracheostomy tube in situ. J Nurs Sci Pract 2019; 2 (01) 147-151 Accessed October 20, 2023 at: http://medicaljournals.stmjournals.in/index.php/JoNSP/article/view/944
• 20 Carvalho DP, Rodrigues RM, Braz E. Health education strategies directed to caregivers during patient hospitalization. Acta Paul Enferm 2013; 26 (05) 455-459