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DOI: 10.1055/s-0044-1781424
A Survey on Epilepsy and Work: Profiles and Challenges
Abstract
Objective Epilepsy can have a chronic course in a subgroup of people and may impact the ability to study, marry or earn a living thereby increasing significantly the burden of the illness. For a person with epilepsy (PWE), beyond seizure control, being participative and productive in life is a crucial factor for a good quality of life. The aim of the study was to explore factors that help and/or hinder PWE find work / employment.
Materials and Methods Data was collected via a self-reported structured questionnaire from PWE in the age group 21 to 60 years, who had completed their education, and had a confirmed diagnosis of epilepsy for at least a year with no known psychiatric ailment or psychiatric morbidity. Binomial logistic regression was used to determine factors that impact employment.
Results Sixty-three percent of our cohorts (n = 119/190) were employed. Factors that supported employment were higher education, late age of epilepsy onset, and better maternal education. The odds of being employed decreased significantly with increasing seizure frequency (odds ratio [OR] = 0.749; 95% confidence interval [CI] = 0.586–0.957) and occurrence of cluster seizures (OR = 0.348; 95% CI = 0.163–0.742; p < 0.05).
Conclusion PWE can secure employment when their seizure frequency is low and epilepsy onset is after the age of 5 years. However, high job stress and cognitive and emotional difficulties are barriers and reasons for resignation from work. PWEs and their caregivers need to be empowered with psychoeducation and receive counselling support for their mood and cognitive issues to help them reach their full work potential.
Publication History
Article published online:
26 February 2024
© 2024. Indian Epilepsy Society. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/)
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References
- 1 de Boer HM, Mula M, Sander JW. The global burden and stigma of epilepsy. Epilepsy Behav 2008; 12 (04) 540-546
- 2 Santhosh NS, Sinha S, Satishchandra P. Epilepsy: Indian perspective. Ann Indian Acad Neurol 2014; 17 (Suppl. 01) S3-S11
- 3 Smeets VMJ, van Lierop BAG, Vanhoutvin JPG, Aldenkamp AP, Nijhuis FJN. Epilepsy and employment: literature review. Epilepsy Behav 2007; 10 (03) 354-362
- 4 Wo MCM, Lim KS, Choo WY, Tan CT. Employability in people with epilepsy: A systematic review. Epilepsy Res 2015; 116: 67-78
- 5 Varma NP, Sylaja PN, George L, Sankara Sarma P, Radhakrishnan K. Employment concerns of people with epilepsy in Kerala, south India. Epilepsy Behav 2007; 10 (02) 250-254
- 6 Kaur J, Paul BS, Goel P, Singh G. Educational achievement, employment, marriage, and driving in adults with childhood-onset epilepsy. Epilepsy Behav 2019; 97: 149-153
- 7 Fisher RS, Acevedo C, Arzimanoglou A. et al. ILAE official report: a practical clinical definition of epilepsy. Epilepsia 2014; 55 (04) 475-482
- 8 Ngugi AK, Bottomley C, Kleinschmidt I, Sander JW, Newton CR. Estimation of the burden of active and life-time epilepsy: a meta-analytic approach. Epilepsia 2010; 51 (05) 883-890
- 9 Periodic Labour Force Survey (PLFS) Annual Report 2019–20, Government of India, Ministry of Statistics and Programme Implementation, National Statistical Office. Accessed February 8, 2024 at: https://mospi.gov.in/sites/default/files/publication_reports/Annual_Report_PLFS_2019_20F1.pdf
- 10 Marinas A, Elices E, Gil-Nagel A. et al. Socio-occupational and employment profile of patients with epilepsy. Epilepsy Behav 2011; 21 (03) 223-227
- 11 Chaplin JE, Wester A, Tomson T. Factors associated with the employment problems of people with established epilepsy. Seizure 1998; 7 (04) 299-303
- 12 Bautista RED, Wludyka P. Factors associated with employment in epilepsy patients. Epilepsy Behav 2007; 10 (01) 89-95
- 13 Wo MCM, Lim KS, Choo WY, Tan CT. Employability among people with uncontrolled seizures: an interpretative phenomenological approach. Epilepsy Behav 2015; 45: 21-30
- 14 Falip M, Artazcoz L, de la Peña P, Pérez-Sempere A, Codina M. Epilepsy Study Group of the Spanish Society of Neurology. Clinical characteristics associated with psychosocial functioning among patients with uncomplicated epilepsy in Spain. Seizure 2007; 16 (03) 195-203
- 15 Collings JA, Chappell B. Correlates of employment history and employability in a British epilepsy sample. Seizure 1994; 3 (04) 255-262
- 16 Fisher RS, Vickrey BG, Gibson P. et al. The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions. Epilepsy Res 2000; 41 (01) 39-51
- 17 Strine TW, Kobau R, Chapman DP, Thurman DJ, Price P, Balluz LS. Psychological distress, comorbidities, and health behaviors among U.S. adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia 2005; 46 (07) 1133-1139
- 18 Gosain K, Samanta T. Understanding the role of stigma and misconceptions in the experience of epilepsy in India: findings from a mixed-methods study. Front Sociol 2022; 7: 790145
- 19 Indian Epilepsy Association-18th International Epilepsy Congress Trust – Epilepsy and Law in India. 2017 . Accessed February 8, 2024 at: https://www.ilae.org/files/ilaeGuideline/Epilepsy-and-Law-in-India-2017.pdf