Download PDF
Psychiatr Prax 2006; 33(2): 59-66
DOI: 10.1055/s-2005-866932
Übersicht
© Georg Thieme Verlag KG Stuttgart · New York

Der Einbezug von Nutzern psychiatrischer Angebote in die psychiatrische Versorgungsforschung

User Involvement in Mental Health Services ResearchSilvia  Krumm1 , Thomas  Becker1
  • 1Abteilung Psychiatrie II der Universität Ulm, Bezirkskrankenhaus Günzburg
Further Information

Publication History

Publication Date:
24 February 2006 (online)

Also available at
    Permissions and Reprints

Zusammenfassung

Hintergrund: Das Konzept des Einbezugs von Nutzern in Projekte der psychiatrischen Versorgungsforschung wird insbesondere in Großbritannien diskutiert und praktiziert. Methode: Literaturübersicht. Das Konzept wird unter Berücksichtigung der relevanten Literatur vorgestellt und anhand von Praxisbeispielen aus Großbritannien veranschaulicht. Ergebnis/Diskussion: Inhaltliche Schwerpunkte nutzergeleiteter Studien sind subjektive Bewertung psychiatrischer Angebote, Lebenssituationen und Bewältigungsstrategien. Diskutiert werden problematische Aspekte des Konzepts. Obwohl weiterer Forschungsbedarf besteht, scheint das Konzept an Bedeutung zu gewinnen.

Abstract

Background: User involvement in mental health services research is discussed in Great Britain, and a number of user-led research initiatives can be found. In Germany, less attention is paid to the concept while virtually no initiatives can be found. Method: The concept of user involvement is introduced by reviewing the relevant literature. After discussion of theoretical and methodological implications, practicability of the concept for mental health services research is illustrated by some examples from Great Britain. Results/Discussion: User involvement in mental health services may promote the provision of user focused services. User involvement aims at the empowerment of mental health service users and can also improve the quality of mental health services research. Frequently, user-led/collaborative studies are focused on mental health service assessment. Some problematic aspects (e. g. representativeness, knowledge/skills of users) are discussed. Although more research is needed to document the additional benefit of user involvement in mental health services research it is conceivable that the concept will gain in importance.

Literatur

  • 1 Truman C, Raine P. Experience and meaning of user involvement: some explorations from a community mental health project.  Health and Social Care in the Community. 2002;  10 136-143
    CrossrefPubMedSearch in Google Scholar
  • 2 Kilian R, Lindenbach I, Lobig U, Uhle M, Petscheleit A, Angermeyer M C. Indicators of empowerment and disempowerment in the subjective evaluation of the psychiatric treatment process by persons with severe and persistent mental illness: a qualitative and quantitative analysis.  Social Science and Medicine. 2003;  57 (6) 1127-1142
    PubMedSearch in Google Scholar
  • 3 Knuf A. Empowerment fördern - Beispiel Psychiatrie.  Managed Care. 2003;  7 17-19
    PubMedSearch in Google Scholar
  • 4 Bruce S, Paxton R. Ethical principals for evaluating mental health services: a critical examination.  Journal of Mental Health. 2002;  11 (3) 267-279
    CrossrefPubMedSearch in Google Scholar
  • 5 Boote J, Telford R, Cooper C. Consumer involvement in health research: a review and research agenda.  Health Policy. 2002;  61 213-236
    CrossrefPubMedSearch in Google Scholar
  • 6 Oliver S, Clarke-Jones L, Rees R, Milne R, Buchanan P, Gabbay J. et al . Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach.  Health Technology Assessment. 2004;  8 (15) 1-48
    PubMedSearch in Google Scholar
  • 7 Bundesministerium für Gesundheit und Soziale Sicherung .Gutachten 2003 des Sachverständigenrates für die Konzertierte Aktion im Gesundheitswesen. Drucksache 143/03 vom 26.02.03. http://www1.bundesrat.de/coremedia/generator/Inhalt/Drucksachen/2003/0143_2D03,property=Dokument.pdf 15-6-2005
    Search in Google Scholar
  • 8 Anselm R. Partner oder Person?. In: Scheibler F, Pfaff H (eds) Shared decision-making. Der Patient als Partner im medizinischen Entscheidungsprozess. Weinheim, München; Juventus Verlag 2003: 26-33
    Search in Google Scholar
  • 9 Bertelsmann Wörterbuch der deutschen Sprache. Gütersloh, München; Wissen Media Verlag 2004
    Search in Google Scholar
  • 10 Naidoo J, Wills J. Lehrbuch der Gesundheitsförderung. Köln; 2003
    Search in Google Scholar
  • 11 Schürmann I. Beziehungsformen zwischen Langzeitnutzern und Professionellen im Kontext der Moderne. In: Zaumseil M, Leferink K (Hrsg) Schizophrenie in der Moderne. Modernisierung der Schizophrenie. Bonn; Psychiatrie-Verlag 1997: 239-279
    Search in Google Scholar
  • 12 Scheibler F, Pfaff H. Shared decision-making. In: Scheibler F, Pfaff H (eds) Shared decision-making. Der Patient als Partner im medizinischen Entscheidungsprozess. Weinheim, München; Juventus Verlag 2003: 11-22
    Search in Google Scholar
  • 13 Thornton H, Edwards A, Elwyn G. Evolving the multiple roles of ,patients‘ in health-care research: reflections after involvement in a trial of shared decision-making.  Health expectations. 2003;  6 189-197
    CrossrefPubMedSearch in Google Scholar
  • 14 Hamann J, Leucht S, Kissling W. Shared decision making in psychiatry.  Acta Psychiatr Scand. 2004;  107 403-409
    PubMedSearch in Google Scholar
  • 15 Schmidt-Zadel R, Kunze H. Die Zukunft hat begonnen. Personenzentrierte Hilfen - Erfahrungen und Perspektiven. Bonn; Psychiatrie-Verlag 2004
    Search in Google Scholar
  • 16 Bundesministerium für Gesundheit (Hrsg) .Von institutions- zu personenzentrierten Hilfen in der psychiatrischen Versorgung. Bericht zum Forschungsprojekt des Bundesministeriums für Gesundheit. Baden-Baden; Nomos-Verlag 1999
    Search in Google Scholar
  • 17 Aktion psychisch Kranke (Hrsg) .Der personenzentrierte Ansatz in der psychiatrischen Versorgung. Individuelle Hilfeplanung (IBRP) und personenzentriert-integriertes Hilfesystem. 5 ed. Bonn; Psychiatrie-Verlag 2005
    Search in Google Scholar
  • 18 Bundesverband Psychiatrie-Erfahrener (BPE) e. V. .http://www.bpe-online.de/ 15-6-2005
  • 19 Die Aktion Psychisch Kranke (APK) .http://www.psychiatrie.de/apk/wir/ 15-6-2005
  • 20 Bundesverband der Angehörigen psychisch Kranker e. V. .http://www.bapk.de/ 15-6-2005
  • 21 Simpson E, House A. Involving users in the delivery and evaluation of mental health services: systematic review.  BMJ. 2002;  325 (30) 1265-1268
    CrossrefPubMedSearch in Google Scholar
  • 22 Bombosch J, Hansen H, Blume J. Trialog praktisch. Psychiatrie-Erfahrene, Angehörige und Professionelle gemeinsam auf dem Weg zur demokratischen Psychiatrie. Neumünster; Paranus Verlag 2004
    Search in Google Scholar
  • 23 Middleton P, Stanton P, Renouf N. Consumer consultants in mental health services: addressing the challenges.  Journal of Mental Health. 2004;  13 (5) 507-518
    CrossrefPubMedSearch in Google Scholar
  • 24 Leimkühler A M, Müller U. Patientenzufriedenheit - Artefakt oder soziale Tatsache?.  Nervenarzt. 1996;  67 765-773
    CrossrefPubMedSearch in Google Scholar
  • 25 O'Donnell M, Entwistle V. Consumer involvement in decisions about what health-related research is funded.  Health Policy. 2004;  70 281-290
    CrossrefPubMedSearch in Google Scholar
  • 26 Birkel R, Hall L, Lane T, Cohan K, Miller J. Consumers and families as partners in implementing evidence-based practice.  Psychiatric Clinics of North America. 2003;  26 867-881
    CrossrefPubMedSearch in Google Scholar
  • 27 Thornicroft G, Rose D, Huxley P, Dale G, Wykes T. What are the research priorities of mental health service users?.  Journal of Mental Health. 2002;  11 (1) 1-5
    CrossrefPubMedSearch in Google Scholar
  • 28 Cohen C, D'Onofrio A, Larkin L, Berkholder P, Fishman H. A comparison of consumer and provider preferences for research on homeless veterans.  Community Mental Health Journal. 1999;  35 (3) 273-280
    CrossrefPubMedSearch in Google Scholar
  • 29 Williamson C. What does involving consumers in research mean?.  QJM: An International Journal of Medicine. 2001;  94 661-664
    PubMedSearch in Google Scholar
  • 30 Townend M, Braithwaite T. Mental health research - the value of user involvement.  Journal of Mental Health. 2002;  11 (2) 117-119
    CrossrefPubMedSearch in Google Scholar
  • 31 Rose D. Collaborative research between users and professionals: peaks and pitfalls.  Psychiatric Bulletin. 2003;  27 404-406
    CrossrefPubMedSearch in Google Scholar
  • 32 Trivedi P, Wykes T. From passive subjects to equal partners.  British Journal of Psychiatry. 2002;  181 468-472
    CrossrefPubMedSearch in Google Scholar
  • 33 Consumers in NHS Research Support Unit .Involving consumers in research and development in the NHS: Briefing Notes for Researchers. London; Consumers in NHS Support Unit 2001
    Search in Google Scholar
  • 34 Consumers in NHS Research Support Unit .Getting involved in research: a guide for consumers. http://www.invo.org.uk/pdfs/guide_for_consumers.pdf 15-6-2005
    Search in Google Scholar
  • 35 Telford R, Faulkner A. Learning about service user involvement in mental health research.  Journal of Mental Health. 2004;  13 (6) 549-559
    CrossrefPubMedSearch in Google Scholar
  • 36 Deutsches Netzwerk Evidenzbasierte Medizin DNEbM e. V. .http://www.ebm-netzwerk.de/ 15-6-2005
  • 37 Bleuler J P. EBM - ein Paradigmenwechsel.  Schweizerische Ärztezeitung. 2000;  81 (9) 454-456
    PubMedSearch in Google Scholar
  • 38 Brown C, Lloyd K. Qualitative methods in psychiatric research.  Advances in Psychiatric Treatment. 2001;  7 350-356
    CrossrefPubMedSearch in Google Scholar
  • 39 Faulkner A, Thomas P. User-led research and evicence-based medicine.  British Journal of Psychiatry. 2002;  180 1-3
    CrossrefPubMedSearch in Google Scholar
  • 40 Bohnsack R. Rekonstruktive Sozialforschung. Einführung in qualitative Methoden. Opladen; 2003
    Search in Google Scholar
  • 41 Flick U. Qualitative Forschung in der Sozialpsychiatrie - Methoden und Anwendungen.  Psychiat Prax. 1995;  22 91-96
    PubMedSearch in Google Scholar
  • 42 Wykes T. Blue skies in the Journal of Mental Health? Consumers in research.  Journal of Mental Health. 2003;  12 (1) 1-6
    CrossrefPubMedSearch in Google Scholar
  • 43 Robinson J. Access to employment for people with disabilities: findings of a consumer-led project.  Disability and Rehabilitation. 2000;  22 (5) 246-253
    CrossrefPubMedSearch in Google Scholar
  • 44 Stevens T, Wilde D, Hunt J, Ahmedzai S. Overcoming the challenges to consumer involvement in cancer research.  Health Expectations. 2003;  6 81-88
    CrossrefPubMedSearch in Google Scholar
  • 45 National Health Service .Health Research: What's in it for consumers? Report of the standing advisory group on consumer involvement in the NHS research and development programme. London; Department of Health 1998
    Search in Google Scholar
  • 46 Rose D. User's voices. The perspectives of mental health service users on community and hospital care. London; The Sainsbury Centre for Mental Health 2001
    Search in Google Scholar
  • 47 Rose D. ,Having a diagnosis is a qualification for the job‘.  British Medical Journal. 2003;  326 1331
    PubMedSearch in Google Scholar
  • 48 SURE - Service User Research Enterprise .Annual Report 2002 - 2003. London; 2004
    Search in Google Scholar
  • 49 Faulkner A. Knowing our own minds. A survey of how people in emotional distress take control of their lives. London; Mental Health Foundation 1997
    Search in Google Scholar
  • 50 Faulkner A, Layzell S. Strategies for Living: The Research Report. London; The Mental Health Foundation 2000
    Search in Google Scholar
  • 51 McCourt C. Life after hospital closure: user's views of living in residential ,resettlement‘ projects. A case study in consumer-led research.  Health Expectations. 2000;  3 192-202
    CrossrefPubMedSearch in Google Scholar
  • 52 Rose D, Wykes T, Bindman J, Fleischmann P. Information, consent, and perceived coercion: patients' perspectives on electroconvulsive therapy.  British Journal of Psychiatry. 2005;  180 549-550
    PubMedSearch in Google Scholar
  • 53 Rose D, Wykes T, Bindman J, Fleischman P. Information, consent and perceived coercion: patients' perspectives on electroconvulsive therapy.  British Journal of Psychiatry. 2005;  186 54-59
    CrossrefPubMedSearch in Google Scholar
  • 54 Beinum M van. User-led research and evidence in psychiatry. Correspondence.  British Journal of Psychiatry. 2002;  180 549-550
    CrossrefPubMedSearch in Google Scholar
  • 55 Entwistle V, Renfrew M, Yearley S, Forrester J, Lamont L. Lay perspectives: advantages for health research.  BMJ. 1998;  316 (7 February) 463-466
    PubMedSearch in Google Scholar
  • 56 Crawford M, Rutter D. Are the views of members of mental health user groups representative of those of ,ordinary‘ patients? A cross-sectional survey of service users and providers.  Journal of Mental Health. 2004;  13 (6) 561-568
    CrossrefPubMedSearch in Google Scholar
  • 57 Service User Research Enterprise (SURE) .http://www.iop.kcl.ac.uk/iopweb/departments/home/default.aspx?locator=300 15-6-2005
  • 58 Griffiths K, Jorm A, Christensen H. Academic consumers researchers: a bridge between consumers and researchers.  Australian and New Zealand Journal of Psychiatry. 2004;  38 191-196
    CrossrefPubMedSearch in Google Scholar
  • 59 The Australian National University, Centre for Mental Health Research, Consumer Research Unit .http://www.anu.edu.au/cmhr/graduate.php 15-6-2005
  • 60 World Health Organization .Mental Health Declaration for Europe. Facing the challenges, building solutions. http://www.euro.who.int/document/mnh/edoc06.pdf 15-6-2005
    Search in Google Scholar

Silvia Krumm(M.A.soz.) 

Abteilung Psychiatrie II der Universität Ulm · Bezirkskrankenhaus Günzburg

Ludwig-Heilmeyer-Straße 2

89312 Günzburg

Email: silvia.krumm@bkh-guenzburg.de