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CC BY-NC-ND 4.0 · Arq Neuropsiquiatr 2022; 80(S 05): 328-335
DOI: 10.1590/0004-282X-ANP-2022-S119
DOI: 10.1590/0004-282X-ANP-2022-S119
NEUROPALLIATIVISM
Palliative care and neurology: a path to neuropalliativism
Cuidados Paliativos e Neurologia: um caminho para o neuropaliativismo
ABSTRACT
This article aims to expand the understanding of how it is possible to alleviate suffering and enable a dignified life trajectory for patients with progressive neurological diseases or with severe and permanent neurological impairment. The four most common disease trajectories described for people with chronic and progressive disease used to advance care planning, Brazilian normative ethical resolutions, evidence-based benefits of palliative care (PC), as well as particularities of PC in neurology, such as neurological symptom control, caring for existential and psychological suffering, care provider’s needs and particularities of pediatric neurologic PC are reviewed.
RESUMO
Este artigo visa ampliar a compreensão de como é possível aliviar o sofrimento e possibilitar uma trajetória de vida digna para pacientes com doenças neurológicas progressivas ou com comprometimento neurológico grave e permanente. As quatro trajetórias de doença mais comuns descritas para pessoas com doença crônica e progressiva utilizadas no planejamento antecipado do cuidado, resoluções éticas normativas brasileiras, benefícios baseados em evidências dos cuidados paliativos (CP), além de particularidades dos CP em neurologia, como controle de sintomas neurológicos, cuidados existenciais e sofrimento psicológico, necessidades do cuidador e particularidades do CP neurológico pediátrico são revistos.
Authors’ contributions:
Both authors conceived and designed the paper and wrote the paper.
Publication History
Received: 18 March 2022
Accepted: 29 April 2022
Article published online:
06 February 2023
© 2022. Academia Brasileira de Neurologia. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commecial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/)
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