Yearbook of Medical Informatics, Table of Contents Yearb Med Inform 2013; 22(01): 93-102DOI: 10.1055/s-0038-1638838 Original Article Georg Thieme Verlag KG Stuttgart A Review of the Empirical Evidence of the Healthcare Benefits of Personal Health Records D. Kalra 1 Centre of Health Informatics and Multiprofessional Education, University College London, London, United Kingdom , B. Fernando 1 Centre of Health Informatics and Multiprofessional Education, University College London, London, United Kingdom › Author Affiliations Recommend Article Abstract Full Text PDF Download Keywords KeywordsPersonal health records - evaluation research - review - evidence-based health care - empirical research References References 1 https://healthy.kaiserpermanente.org/health/care/consumer/my-health-manager (accessed January 2013). 2 https://www.myhealth.va.gov/index.html (accessed January 2013). 3 The European Commission. Strategic implementation plan for the European Innovation Partnership on active and healthy ageing. November 2011, Brussels Available from: http://ec.europa.eu/research/innovation-union/pdf/active-healthy-ageing/steering-group/implementation_plan.pdf (accessed January 2013). 4 Please see http://www.nhs.uk/NHSEngland/About-NHSservices/doctors/Pages/expert-patients-programme.aspx (accessed January 2013). 5 U.S. Personal Health Records Market 2010 to 2015. Frost & Sullivan Research. Summarised at http://www.frost.com/prod/servlet/report-brochure.pag?id=N98D-01-00-00-00 (accessed January 2013). 6 Connecting for Health. Connecting Americans to their healthcare. Final report ofthe working group on policies for electronic information sharing between doctors and patients. New York: Markle Foundation; 2004. http://www.markle.org/health/ publications-briefs-health/1250-connecting-americans-their-health-care (accessed January 2013). 7 Tang P, Ash J, Bates D, Overhage M, Sands D. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc 2006; 13: 121-6. 8 Pagliari C, Detmer D, Singleton P. Potential of electronic personal health records. BMJ 2007; 335: 330-3. 9 International Organization for Standardization. ISO TR 14292. Personal Health Records — Definition, Scope and Context. Geneva: 2011 10 International Organization for Standardization. ISO 18308. Requirements for an Electronic Health Record Architecture. Geneva: 2010 11 Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity. WHO. Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference. New York: 19-22 June 1946, and entered into force on 7 April 1948. Available from: http://www.who.int/governance/eb/who_constitution_en.pdf 12 Long T-Y. Toward patient-centered, personalised and personal decision support and knowledge management: a survey. Yearb Med Inform 2012; 104-12. 13 Please see: http://cordis.europa.eu/fp7/ict/programme/challenge5_en.html (accessed December 2012). 14 Rigby M. Personal health, person centred health and personalised medicine — concepts, consumers, confusion and challenges in the informatics world. Yearb Med Inform 2012; 7-15. 15 Kalra D, Fernando B, Morrison Z, Sheikh A. A review of the empirical evidence of the value of structuring and coding of clinical information within electronic health records for direct patient care. [In press]. 16 Kim J, Jung H, Bates D. History and Trends of “Personal Health Record” Research in PubMed. Healthc Inform Res 2011; March 17 (1) 3-17. 17 Cochrane Effective Practice and Organisation of Care Group. Please see http://epoc.cochrane.org/ 18 Institute of Medicine. Crossing the quality chasm: A new health systems for the 21st Century. National Academy Press; 2001 19 Nagykaldi Z, Aspy C, Chou A, Mold J. Impact of a wellness portal on the delivery of patient-centered preventive care. J Am Board Fam Med 2012; 25: 158-67. 20 Wagner PJ, Dias J, Howard S, Kintziger KW, Hudson MF, Seol YH. et al. Personal health records and hypertension control: a randomized trial. J Am Med Inform Assoc 2012; 19: 626-34. 21 Lau A, Sintchenko V, Crimmins J, Magrabi F, Gallego B, Coiera E. Impact of a web-based personally controlled health management system on influenza vaccination and health services utilization rates: a randomized controlled trial. J Am Med Inform Assoc 2012; 19: 719-27. 22 Grant RW, Wald JS, Schnipper JL, Gandhi TK, Poon EG, Orav EJ. et al. Practice-linked online personal health records for type 2 diabetes mellitus. Arch Intern Med 2008; 168 (16) 1776-82. 23 Kim E, Mayani A, Modi S, Kim Y, Soh C. Evaluation of a patient-centered electronic health record to overcome the digital divide. Conf Proc IEEE Eng Med Biol Soc 2005; 1: 593-6. 24 Gysels M, Richardson A, Higginson I. Does the patient-held record improve continuity and related outcomes in cancer care: a systematic review. Health Expect 2006; 10: 75-91. 25 Archer N, Fevrier-Thomas U, Lokker C, McKibbon K, Straus S. Personal health records: a scoping review. J Am Med Inform Assoc 2011; 18: 515-22. 26 Schnipper JL, Gandhi TK, Wald JS, Grant RW, Poon EG, Volk LA. et al. Effects of an online personal health record on medication accuracy and safety: a cluster-randomised trial. J Am Med Inform Assoc 2012; 19 (5) 728-34. 27 Turvey CL, Zulman DM, Nazi KM, Wakefield BJ, Woods SS, Hogan TP. et al. Transfer of Information from Personal Health Records: A Survey of Veterans Using My HealtheVet. Telemed J E Health 2012; Mar 18 (2) 109-14. 28 Tenforde M, Nowacki A, Jain A, Hickner J. The Association Between Personal Health Record Use and Diabetes Quality Measures. J Gen Intern Med 2011; 27 (4) 420-4. 29 Krogsboll L, Juhl K, Larsen C, Gotzsche P. General health checks in adults for reducing morbidity and mortality from disease: Cochrane systematic review and meta-analysis. BMJ 2012; 345: e7191. 30 Friedman CP, Wyatt J. Evaluation Methods in Biomedical Informatics (Health Informatics). Springer; 2010 31 Greenhalgh T, Hinder S, Stramer K, Bratan T, Russell J. Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace. BMJ 2010; 341: c5814.