Keywords
problem-oriented model - patient safety - human factors engineering - pediatric trauma
            - care coordination
 
         
         Background and Significance
          
         Background and Significance
            Context of Pediatric Trauma
            
            Pediatric trauma is the leading cause of death among children aged 1 to 18 years.[1] The emergent and complex pediatric trauma care process can be hazardous to children.[2] In particular, communication and coordination among care team members can be affected
               by incomplete information, uncertainty, and time pressure.[3] Traumatically injured children generally experience many transitions of care and
               are treated by multiple clinicians including physicians from different services.[4]
               [5] We previously identified 53 roles involved in the pediatric trauma care process
               at a children's hospital.[5]
               [6] These roles include different groups of physicians that may not be involved in every
               transition but still require a clear assessment of the patient's hospital course,
               including a list of the patient's injuries, treatments, current status, and relevant
               past medical history. One consequence of suboptimal information flow, for example,
               known injuries and suspected problems, are missed injuries, which, according to one
               study, occur in 16% of pediatric trauma patients.[7]
               
            
            Emergence of the Electronic Problem List
            
            A possible solution for documenting and communicating information about the patient
               and his/her injuries is use of the electronic problem list (PL), a standard part of
               the electronic health record (EHR). In 1968, Dr. Larry Weed introduced the concept
               of the PL, which has become the focus of the problem-oriented medical record in a
               computerized system. Weed[8] advocated that physicians take a systematic approach to the medical record by organizing
               data around each problem to avoid missing details and improving continuity of care.
               The increased use of the EHR offers an opportunity for physician notes to be organized
               around problems on the PL and associated patient data (e.g., imaging and medications).[9] For example, the problem-oriented model allows EHR users to click on the PL and
               view a dynamic display of relevant labs, imaging, procedure data, and consultant notes.[10] Another approach is problem-based documentation, where clinicians document assessments
               and plans for each problem on the PL.[11]
               [12] The increasing use of the EHR may help to implement Weed's vision and better support
               physician work so that recorded problems are connected to the relevant patient information
               in other parts of the EHR.[10]
               [13]
               
            
            Research on the Electronic Problem List: Outpatient Settings
            
            Most studies on the electronic PL are performed in outpatient care settings.[14]
               [15]
               [16]
               [17]
               [18]
               [19]
               [20]
               [21] Makam et al[18] reported that 70% of primary care providers (PCPs) who responded to a survey on
               the use of and satisfaction with the EHR thought that the PL was helpful. Research
               in the outpatient setting has also examined physician use of the PL. Analysis of a
               random selection of 100,000 medical records demonstrated that PCPs were more likely
               to add problems to the PL than specialists.[22] Accuracy and completeness of the PL remain major issues.[15]
               [17] For example, PL completeness for diabetes patients was measured in a retrospective
               analysis of EHR data from 10 healthcare facilities (e.g., academic medical center,
               community hospital, and regional health system). Results showed that PL completeness
               ranged from 60 to 99%, as measured by the ratio of outpatients having diabetes coded
               on their PL to the number of patients with HbA1c levels greater than 7%.[21] A survey with mostly PCPs incorporated clinical scenarios to understand their actions
               toward the PL,[23] showing differing opinions about PL content, particularly which problems to include
               (e.g., family history and surgeries), and whether the PL should be structured with
               discrete or free-text fields. To address issues of PL accuracy and completeness, informatics
               methods such as natural language processing have been used to populate the electronic
               PL.[16]
               [19]
               [24]
               [25]
               [26]
               [27] Electronic alerts in 28 primary care clinics used medication and laboratory-problem
               associations to identify undocumented problems for 17 conditions;[27] subsequent alerts for physicians to add these problems increased documentation during
               a 6-month period from 3,739 problems to 10,016 problems. PL accuracy and completeness
               can also be improved by better understanding how physicians perceive and would like
               to use the PL.
            
            Extending Research on the Electronic Problem List from Outpatient to Inpatient Settings
            
            Differences between outpatient and inpatient settings may shed light on variations
               in physician PL usage and help understand why PL content may be incomplete or inaccurate.
               Wright et al[28] performed 264 hours of observations and interviewed 63 clinicians across multiple
               specialties to understand their PL use. They identified several themes that described
               PL utilization behaviors, especially noting (1) ownership and responsibility for maintaining
               the PL, (2) presentation and organization to support automatically sorting or grouping
               problems in the EHR, and (3) accuracy of the PL as a reliable source of information.
               Zhou et al[29] studied how the PL supported information sharing between different clinicians, for
               example, specialist, general medicine hospitalists, and PCPs. They performed more
               than 750 hours of field observations, reviewed patient medical records, and interviewed
               physicians and nurse practitioners. They found that PCPs were more likely to update
               the PL because it saved time during the patient's next visit and helped to maintain
               continuity of care. Some specialists thought that because they spent significant time
               writing clinical notes, spending extra time adding problems to the PL was unnecessary.
               Zhou et al[29] argued that mixed perceptions about PL content results in not all clinicians using
               it for the same purpose. For example, one group of physicians used the PL as a place
               to put comments about patients they wanted another physician to know about. Understanding
               physician views and perceptions of the PL is necessary to improve its design and better
               support physicians' information needs.
            
            The PL could be designed to avoid fragmented care planning and support care coordination
               by integrating priorities from various clinical disciplines. Collins et al[30] argued that the collaborative nature of a shared PL among different disciplines
               has design implications to support clinicians with overlapping information needs.
               Based on a literature review, they proposed five sociotechnical requirements to support
               the patient-centered PL. One of the sociotechnical requirements is to categorize problems
               based on priority ranking for discipline-specific needs. The researchers suggested
               that PL users view their priority rankings of problems alongside others' to understand
               different perspectives and improve PL management. Improving PL use for different groups
               of users could result in a more complete and accurate PL and, therefore, enhanced
               care coordination.
            
            Only one study evaluated PL use in an inpatient pediatric setting; PL use was measured
               by at least one problem documented on the PL at the time of discharge.[11] A series of interventions, for example, resident and fellow training on the PL,
               handouts, and teaching about PL use during rounds, was implemented to improve PL documentation.
               Hospitalists and residents on the documentation committee provided feedback on interventions
               by sending biweekly e-mails with daily PL usage graphs; PL use improved from 27 to
               97%.[11] Research on the PL in pediatric settings is limited, especially studies describing
               how physicians think it could be used in a pediatric inpatient setting.
             
         
         
         Objectives
            Our study aims to describe perceptions of physicians from different services involved
               in acute pediatric trauma (i.e., physicians in pediatric emergency department [ED],
               pediatric surgery, pediatric anesthesiology, and pediatric intensive care unit [PICU])
               about the potential PL functionality. We identify how physicians define the PL and
               its goals, characteristics, and information elements and compare PL perceptions of
               physicians from different services involved in the acute pediatric trauma care process.
          
         
         
         Methods
            Setting and Participants
            
            This study is part of a larger project aimed at developing health IT (information
               technology) design requirements to support care transitions for pediatric trauma.[31] The participating hospital is an American College of Surgeons certified level 1
               pediatric and adult trauma center[32]
               [33] with an 87-bed children's hospital, a 21-bed PICU, and 8 pediatric operating rooms.
               The pediatric trauma center receives between 250 and 300 level 1 and 2 pediatric trauma
               cases per year (∼50 level 1 patients and 250 level 2 patients per year) and between
               400 and 450 unleveled traumas per year. There were 1,487 pediatric traumas between
               2013 and 2017.[5] The participating hospital implemented a system-wide EHR (Epic Systems Corporation,
               Verona, Wisconsin, United States) in 2008. This preliminary, exploratory study was
               granted exemption from the University of Wisconsin-Madison Institutional Review Board.
            
            Interview data collection occurred between July and November 2016. We used purposive
               sampling to interview three various physicians (resident, fellow, attending) in each
               of the four services: ED, surgery, anesthesia, and PICU.[34] We asked members of our research team, that is, attending physicians from pediatric
               emergency medicine (EM), surgery, anesthesia, critical care, and hospitalist services,
               and the hospital's pediatric trauma nursing program manager, for suggestions on how
               to identify potential participants. We e-mailed potential participants with a description
               of the project. Participation was voluntary, and all participants provided verbal
               consent. We interviewed seven males and five females.
            
            Data Collection Methods
            
            Based on discussion with experts at the Johns Hopkins University and the University
               of Wisconsin-Madison and on the literature, we developed an initial version of the
               PL interview guide. Using the initial version of the interview guide, we interviewed
               three physicians on our research team and, based on their feedback, we made some minor
               revisions to questions in the guide ([Appendix A]). We used the updated version of the interview guide for the rest of the interviews.
            
            Pairs of human factors researchers conducted the 12 semistructured interviews. The
               average interview duration was 54 minutes (range: 41 to 88 minutes), for a total of
               10 hours and 44 minutes. Interviews were audio-recorded and transcribed by a professional
               transcription service. The interview guide contained questions on the ideal PL, not
               the current PL functionality, including definition, use and content that should be
               included. See [Appendix A] for the full interview guide.
            
            Data Analysis Methods
            
            Interview transcripts were uploaded to Dedoose, a qualitative data analysis software,
               and coded by the human factors researchers. Excerpts from the interview transcripts
               related to the PL were coded in three categories: (1) goals, (2) characteristics,
               and (3) patient-related information. Multiple goals, characteristics, and patient-related
               information elements emerged from the inductive, multistep coding process; these lists
               were created and used in Dedoose. Two researchers first individually coded a single
               interview in Dedoose and met to review their coding. The researchers discussed disagreement
               in coding and reached consensus about the coding structure after discussion. The process
               was repeated in Dedoose for a second interview. This allowed refinement of the three
               categories of (1) goals, (2) characteristics, and (3) patient-related information.
               Two researchers separately coded the rest of the interviews in Dedoose and continually
               discussed their coding to assure consistency. Four researchers reviewed the coding
               iteratively, and refined or combined codes and revised definitions as the data analysis
               proceeded until saturation was achieved.[35]
               
            
            We presented our preliminary findings to all research team members, a form of member
               checking, which is a strategy to ensure rigor in qualitative data analysis.[34] Members of the research team reviewed the definitions and suggested combining certain
               codes (e.g. pain with medications); their feedback was incorporated in the final coding.
               We computed frequencies for each goal and characteristic (see the Total column in
               [Tables 1] and [2]), and patient-related information (see the Include/exclude column in [Table 3]) across all the four services. We computed totals for the four different services
               across all goals, as well as all characteristics to compare which service mentioned
               goals or characteristics more often.
            
            
               
                  Table 1 
                     PL Goals by Service and Policy sorted by frequency
                     
                  
                     
                     
                        
                        | 
                            PL goals 
                         | 
                        
                        
                            Definitions 
                         | 
                        
                        
                            Services 
                         | 
                        
                     
                     
                        
                        | 
                            ED, N = 3 
                         | 
                        
                        
                            Surgery, N = 3 
                         | 
                        
                        
                            Anesthesia, N = 3 
                         | 
                        
                        
                            PICU, N = 3 
                         | 
                        
                        
                            Total, N = 12 
                         | 
                        
                     
                  
                     
                     
                        
                        | 
                            1. To communicate with others 
                         | 
                        
                        
                            The PL helps physicians communicate with other clinicians involved or getting involved
                              in the patient's care (i.e., what has been done and needs to be done). These clinicians
                              may be distributed across services, environments, time, etc. 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            9 
                         | 
                        
                     
                     
                        
                        | 
                            2. To make sense of the patient's problems[a]
                               
                         | 
                        
                        
                            The PL provides an overall assessment of what's going on with the patient; this is
                              particularly helpful when meeting or caring for the patient the first time. 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            8 
                         | 
                        
                     
                     
                        
                        | 
                            3. To document the patient's problems[a]
                               
                         | 
                        
                        
                            Patient's injuries and problems are recorded as they are identified; this helps to
                              avoid missed injuries. All problems, big and small, should be captured. 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            7 
                         | 
                        
                     
                     
                        
                        | 
                            4. To make decisions about the care plan[a]
                               
                         | 
                        
                        
                            The PL helps with what to do next to care for the patient, e.g., to define, review,
                              and revise the care plan. It is helpful to anticipate and plan how to proceed with
                              caring for the patient. 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            5 
                         | 
                        
                     
                     
                        
                        | 
                            5. To know who is involved in the patient's care 
                         | 
                        
                        
                            The PL helps to identify who is caring for the patient. 
                         | 
                        
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            4 
                         | 
                        
                     
                     
                        
                        | 
                            Total 
                         | 
                        
                         | 
                        
                        
                            7 
                         | 
                        
                        
                            7 
                         | 
                        
                        
                            6 
                         | 
                        
                        
                            13 
                         | 
                        
                         | 
                        
                     
               
               
               
               Abbreviations: ED, emergency department; PICU, pediatric intensive care unit; PL,
                  problem list.
               
               
               Note: A checkmark indicates that one interviewee mentioned that goal.
               
               
               a Indicates that the goal was mentioned in the hospital policy.
               
                
            
            
            
            
               
                  Table 2 
                     PL Characteristics by Service and Policy sorted by frequency
                     
                  
                     
                     
                        
                        | 
                            PL characteristics 
                         | 
                        
                        
                            Definitions 
                         | 
                        
                        
                            Services 
                         | 
                        
                     
                     
                        
                        | 
                            ED, N = 3 
                         | 
                        
                        
                            Surgery, N = 3 
                         | 
                        
                        
                            Anesthesia, N = 3 
                         | 
                        
                        
                            PICU, N = 3 
                         | 
                        
                        
                            Total 
                         | 
                        
                     
                  
                     
                     
                        
                        | 
                            1. Completeness[a]
                               
                         | 
                        
                        
                            Reflecting changes over time, since trauma occurred 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            11 
                         | 
                        
                     
                     
                        
                        | 
                            2. Efficiency 
                         | 
                        
                        
                            Fast to use; not too much information 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            10 
                         | 
                        
                     
                     
                        
                        | 
                            3. Accessibility 
                         | 
                        
                        
                            Available when and where needed 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            9 
                         | 
                        
                     
                     
                        
                        | 
                            4. Multiple users[a]
                               
                         | 
                        
                        
                            Shared and supporting multiple roles and their perspectives 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            7 
                         | 
                        
                     
                     
                        
                        | 
                            5. Organized 
                         | 
                        
                        
                            Order of the problems structured by organ system or injury priority 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            7 
                         | 
                        
                     
                     
                        
                        | 
                            6. Created before arrival 
                         | 
                        
                        
                            To prepare before patient arrival 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            6 
                         | 
                        
                     
                     
                        
                        | 
                            7. Representing uncertainty[a]
                               
                         | 
                        
                        
                            Represents uncertainty of patient's problem 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            4 
                         | 
                        
                     
                     
                        
                        | 
                            Total 
                         | 
                        
                         | 
                        
                        
                            15 
                         | 
                        
                        
                            14 
                         | 
                        
                        
                            11 
                         | 
                        
                        
                            14 
                         | 
                        
                         | 
                        
                     
               
               
               
               Abbreviations: ED, emergency department; PICU, pediatric intensive care unit; PL,
                  problem list.
               
               
               Note: A checkmark indicates that one interviewee mentioned the characteristic.
               
               
               a Indicates that the characteristic was mentioned in the hospital policy.
               
                
            
            
            
            
               
                  Table 3 
                     Patient-related Information by Service and Policy (sorted by frequency)
                     
                  
                     
                     
                        
                        | 
                            Patient-related Information 
                         | 
                        
                        
                            Definition 
                         | 
                        
                        
                            Services 
                         | 
                        
                     
                     
                        
                        | 
                            ED, N = 3 
                         | 
                        
                        
                            Surgery, N = 3 
                         | 
                        
                        
                            Anesthesia, N = 3 
                         | 
                        
                        
                            PICU, N = 3 
                         | 
                        
                        
                            Include/exclude 
                         | 
                        
                     
                  
                     
                     
                        
                        | 
                            1. Medications 
                         | 
                        
                        
                            Patient's medications 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓✓✓XX 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            11 include, 2 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            2. Injuries[a]
                               
                         | 
                        
                        
                            List of the patient's injuries 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            10 include 
                         | 
                        
                     
                     
                        
                        | 
                            3. Past medical history 
                         | 
                        
                        
                            Patient's past medical history 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓XX 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            9 include, 2 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            4. Plan of care 
                         | 
                        
                        
                            Ongoing management of patient's problem 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓✓X 
                         | 
                        
                        
                            ✓X 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            9 Include, 2 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            5. Allergies 
                         | 
                        
                        
                            Patient's allergies 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓X 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            8 include, 1 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            6. Care completed 
                         | 
                        
                        
                            What has been done, specifically the care the patient has received 
                         | 
                        
                        
                            ✓✓✓X 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓X 
                         | 
                        
                        
                            8 include, 2 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            7. Vitals 
                         | 
                        
                        
                            Patient's vitals 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓XXX 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓✓XX 
                         | 
                        
                        
                            8 include, 5 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            8. Events 
                         | 
                        
                        
                            What happened to the trauma patient (i.e., the events) 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            7 include 
                         | 
                        
                     
                     
                        
                        | 
                            9. Labs and imaging 
                         | 
                        
                        
                            Tests performed to detect, diagnose, or monitor any injury 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓X 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓X 
                         | 
                        
                        
                            7 include, 2 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            10. Teams involved 
                         | 
                        
                        
                            List of teams caring for the patient 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                        
                            6 include 
                         | 
                        
                     
                     
                        
                        | 
                            11. Non-trauma issues[a]
                               
                         | 
                        
                        
                            Active, ongoing issues are unrelated to the trauma (e.g., diabetes or asthma) 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓XX 
                         | 
                        
                        
                            ✓✓X 
                         | 
                        
                        
                            ✓✓X 
                         | 
                        
                        
                            6 include, 4 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            12. Difficult airways 
                         | 
                        
                        
                            Patient's breathing status 
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            5 include 
                         | 
                        
                     
                     
                        
                        | 
                            13. Date of birth 
                         | 
                        
                        
                            Patient's date of birth 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            4 include 
                         | 
                        
                     
                     
                        
                        | 
                            14. Patient name 
                         | 
                        
                        
                            Patient's name 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                        
                            2 include 
                         | 
                        
                     
                     
                        
                        | 
                            15. Patient weight 
                         | 
                        
                        
                            Patient's weight 
                         | 
                        
                         | 
                        
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                         | 
                        
                        
                            2 include 
                         | 
                        
                     
                     
                        
                        | 
                            16. Immunizations 
                         | 
                        
                        
                            Immunizations the patient has 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            2 include 
                         | 
                        
                     
                     
                        
                        | 
                            17. Last meal 
                         | 
                        
                        
                            The last meal the patient had 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                        
                            2 include 
                         | 
                        
                     
                     
                        
                        | 
                            18. Prior anesthetics 
                         | 
                        
                        
                            Prior anesthetics that have been given 
                         | 
                        
                         | 
                        
                         | 
                        
                        
                            ✓✓ 
                         | 
                        
                         | 
                        
                        
                            2 include 
                         | 
                        
                     
                     
                        
                        | 
                            19. IV access 
                         | 
                        
                        
                            IV access the patient has 
                         | 
                        
                         | 
                        
                        
                            X 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                        
                            2 include, 1 exclude 
                         | 
                        
                     
                     
                        
                        | 
                            20. Gender 
                         | 
                        
                        
                            Patient's gender 
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                         | 
                        
                         | 
                        
                        
                            1 include 
                         | 
                        
                     
                     
                        
                        | 
                            21. All inputs and outputs 
                         | 
                        
                        
                            The problem list should include urine output and intake 
                         | 
                        
                         | 
                        
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                        
                            1 include 
                         | 
                        
                     
                     
                        
                        | 
                            22. Social support 
                         | 
                        
                        
                            Social support of the patient, who is with the patient, etc. 
                         | 
                        
                         | 
                        
                         | 
                        
                        
                            ✓ 
                         | 
                        
                         | 
                        
                        
                            1 include 
                         | 
                        
                     
               
               
               
               Abbreviations: ED, emergency department; IV, intravenous; PICU, pediatric intensive
                  care unit.
               
               
               Note: A checkmark (✓) indicates that one interviewee mentioned the information. The
                  number in front of “include” indicates a row total for how many interviewees mentioned
                  to include that information on the PL. An X indicates that one participant said that
                  piece of information should not be included on the PL. The number in front of “exclude”
                  indicates a row total for how many interviewees mentioned to not include that information
                  on the PL. Occasionally, an interviewee mentioned to include and exclude a piece of
                  information in the same interview.
               
               
               a Indicates the patient-related information was mentioned in hospital policy to be
                  included on the PL.
               
                
            
            
            
            We obtained a copy of the hospital's PL policy (formally called “PL etiquette”), which
               was also coded for goals, characteristics, and patient-related information. We compared
               our interview results to the coded hospital's PL policy.
             
         
         
         Results
            Goals of the Problem List
            
            
               [Table 1] shows the five PL goals, their definitions, and the frequencies with which each
               PL goal was mentioned across the four services (EM, surgery, anesthesia, PICU), as
               well as whether the specific PL goal was included in the hospital's PL policy. Four
               of the five PL goals were mentioned by at least one participant in each service: documenting
               the patient's problems, making sense of the patient's problems, making decisions about
               the care plan, and communicating with others. PICU physicians mentioned goals of the
               PL more frequently than physicians in other services (see the Total column in [Table 1]).
            
            Nine of the 12 participants mentioned the PL goal of communicating with others. A
               PICU fellow mentioned that the PL should be used to communicate with physicians involved
               in the child's care, “…closing the loop … getting the word out to everybody … what's important to a surgeon
                  … [and] what's important to me when I'm trying to take care of the patient overnight.”
            
            Eight of the 12 participants mentioned the PL goal of making sense of the patient's
               problems. An EM attending said the PL allows him to know of other medical problems,
               “So a problem list for me is … a quick way to assess, does this patient have any other
                  medical problems?” A PICU attending talked about how the PL can inform him of treatment, “So a good problem list really informs all of the treatment and who is needed to be
                  part of the care team as well.”
            
            Of the 12 participants, seven mentioned the PL goal of documenting the patient's problems;
               these participants were mostly from EM, surgery, and PICU. A surgery resident mentioned
               that the PL helps to distinguish who has what injury, “… especially trauma patients, all the patients tend to kind of blend together so it
                  helps us distinguish who has what injury, what side is the injury on, who's managing
                  that injury, what do we need to do for that injury?” A PICU resident said that the PL is a list of the patient's medical problems, “… A list of what the patient's medical problem [are] and conditions are … that are
                  being addressed in their current hospitalization.”
            
            Five of the 12 participants, mostly from surgery and PICU, mentioned the PL goal of
               making decisions about the care plan. An EM resident said that the PL helps in decisions
               regarding next steps, “Any pertinent labs … [are] vital information [that] guides your next step … if they
                  don't know that information, they don't know what they're doing.” A surgery resident talked about the PL including the care plan, “…Our problem list is a list of injuries that the patient has. … if it's well updated
                  … the plan for those injuries, who's consulting,.... [and] what follow-up or further
                  things that they need.”
            
            Four of the 12 participants, all from surgery and the PICU, mentioned the PL goal
               of knowing who is involved in care. One surgery attending described the usefulness
               of knowing the other surgical services involved in the child's care, “It would be helpful to … know where everybody is at … this bone fracture … was managed
                  by orthopedics …”
            
            Characteristics of the Problem List
            
            
               [Table 2] shows the seven PL characteristics, their definitions, and frequencies across all
               four services (EM, surgery, anesthesia, PICU), as well as the coding of the hospital's
               PL policy. Six of the seven PL characteristics were mentioned by at least one participant
               in each service: completeness, efficiency, accessibility, multiple users, organized,
               PL created before arrival, and PL representing uncertainty. Overall, physicians in
               all four services mentioned most of the characteristics (see the Total row in [Table 2]).
            
            Of the 12 participants, 11 mentioned the PL characteristic of completeness. A PICU
               resident talked about how it was helpful to have a PL with all of the problems there,
               “Patients who are medically complex … have a very, very thorough problem list ... And
                  it's very helpful … that all the problems are in there.” An EM resident mentioned the need for every problem to be addressed, “Because a lot of times, what happens is you get these little injuries. They go to
                  the next phase, and it gets forgotten about … I don't think any problem is too small.
                  I think it all needs to be addressed, especially in kids.”
            
            Of the 12 participants, 10 mentioned the PL characteristic of efficiency. An EM attending
               talked about the need to communicate information efficiently, “How do we continue to communicate that information efficiently in a way that's value-added
                  and helpful to handoffs in those transitions of care?” An anesthesia attending mentioned the challenge of getting to key information quickly,
               “I have to sift through telephone encounters … nurses calling the family … It's hard
                  to get the pertinent points quickly.”
            
            Of the 12 participants, nine mentioned the PL characteristic of accessibility. An
               anesthesia resident indicated that the PL should be easy to find, “Something that would be streamlined … [and] accessible … when you log into [EHR],
                  it comes up, or … you can find easily that's clear and concise.” A PICU fellow talked about the fact that information needs to be easily accessible,
               for example, in a paper format, “If it's an easy-to-access thing, before the patient arrives … we could print it off
                  … I could have that sheet with me in the room and … then I'm not tied to a computer.”
            
            Of the 12 participants, seven mentioned the PL characteristic of multiple users; these
               interviewees were mostly from EM, surgery, and PICU. A PICU attending said, “We're always building that problem list. It's always … a construct in all of our minds.
                  The question is, how do we take all of our minds and put it into a ‘group think’,
                  a group-[generated] list that we can all sign off and say … I agree, that adequately
                  describes this patient.”
            
            Seven of the 12 participants, mostly from EM and surgery, mentioned the PL characteristic
               of organized. The PL could, for instance, be organized by organ system, as indicated
               by a surgery attending, “I would rather have it by organ systems, because it makes you think … am I missing
                  something somewhere?” A PICU attending talked about organizing the PL in the context of other important
               information, “So a problem existing just by itself is not enough. There needs to be subcategories
                  under that in terms of … what is the degree of that injury and what has [been] done
                  about it, and then, ideally, what is planned to be done about it.”
            
            Of the 12 participants, six mentioned the need for the PL to be created before arrival.
               A surgery resident said, “I think we should gather all the information that we can from that time when the trauma
                  happened and input it into our system.”
            
            Four of the 12 participants from EM, anesthesia, and PICU mentioned the PL characteristic
               of representing uncertainty. An EM resident talked about the need to indicate that
               certain problems may not be fully identified and have a degree of uncertainty, “We don't know at that time, what all the problems are. We could say trauma or spleen
                  injury, but we don't know exactly [what] that spleen injury is going to be, [maybe]
                  they're going to remove the spleen.”
            
            Patient-Related Information Associated with the Problem List
            
            Physicians described a total of 22 information elements. [Table 3] lists the patient-related information, their definitions, and frequencies, denoted
               by “include” and “exclude,” across all four services (EM, surgery, anesthesia, PICU),
               as well as the coding of the hospital's PL policy. The 22 PL patient-related information
               elements ranged from situation/background, such as patient name and gender, to objective
               data such as medications and vitals, as well as assessment information such as injuries
               and plan of care. Of the 22 PL patient-related information elements, 10 were mentioned
               by physicians in the four services: medications, injuries, plan of care, past medical
               history, allergies, care completed, vitals, labs and imaging, non-trauma issue, and
               date of birth. A few participants mentioned information elements that should be excluded
               from the PL, and other physicians could mention the same information elements as elements
               that should be included in the PL. For example, a surgery resident mentioned that
               vitals should be excluded and later mentioned that vitals should be included, “I can't see an injury that a vital sign is going to necessarily line up … in those
                  situations … even vitals in the field versus vitals when they arrive, that's important.”
            
            There is general agreement about medications, injuries, and past medical history to
               be included on or connected to the PL, as these elements were mentioned by 11, 10,
               and 9 participants, respectively. There is less agreement about including in the PL
               or connecting the PL to gender, all inputs and outputs, and social support, as these
               information elements were each mentioned by one participant.
            
            Of 12 participants, 10 mentioned injuries as one of the PL patient-related information
               elements. An EM attending suggested that blood and pain control for injuries should
               be on the PL, “… If I have a critical patient … with shock, head injury, belly trauma … we gave blood
                  … We gave pain control … not everything falls in perfectly in a problem list.” An anesthesia resident mentioned having “a story” of the injuries on the PL, including
               information about what happened, airway access, blood given, and allergies, “… Having … more of a story of the injuries, what happened … they have an airway … two
                  IVs. They're getting a unit of blood... They have multiple long bone fractures. They're
                  known to have asthma and are allergic to sulfa.”
            
            Coding of the Hospital's Problem List Policy
            
            Three of the five PL goals identified by the interviewees are addressed in the PL
               policy: documenting the patient's problems, making sense of the patient's problems,
               and making decisions about the care plan ([Table 1]). Three of the seven characteristics are also mentioned in the PL policy: completeness,
               multiple users, and uncertainty ([Table 2]). The PL policy includes 2 of the 22 patient-related information: injuries and non-trauma
               issues ([Table 3]).
             
         
         
         Discussion
            When interviewed about the ideal electronic PL, 12 physicians across four services
               involved in pediatric trauma care mentioned five goals for the PL, seven characteristics
               of the PL, and 22 patient-related information elements. Many of the characteristics
               and patient-related information elements were not found in the hospital's PL policy,
               suggesting a gap in the formal PL functionality (as described in the policy) to meet
               physician information needs.
            Previous studies, primarily conducted in outpatient care settings, have described
               a lack of consensus about what should be included on the PL.[23]
               [28]
               [29] Our results also demonstrate challenges in achieving consensus about information
               elements that should be included in or connected to the PL. Nine of the 22 patient-related
               information were identified by some physicians as related to the PL or as elements
               that should be excluded from the PL ([Table 3]): for example, medications, past medical history, plan of care, and allergies. In
               all instances, there were more mentions of inclusion in the PL than exclusion from
               the PL. Physicians from different services involved in pediatric trauma care somewhat
               agree that many information elements in the EHR are related to the PL. More than 75%
               of the 22 patient-related information elements were mentioned by at least two participants
               from different services ([Table 3]). These findings have design implications for the electronic PL to be organized
               around related patient data, for example, imaging and medications. Organizing the
               PL around other relevant patient data besides diagnoses and injuries could help support
               physician clinical thinking and coordination of care.[8]
               [9]
               [10]
               [13]
               
            Our results confirm findings of previous PL research[14]
               [15]
               [16]
               [17]
               [18]
               [19]
               [21]
               [28] that completeness and accuracy are two important characteristics of the PL. The
               PL should be designed to support overlapping information needs between physicians
               involved in the complex pediatric trauma care process as most participants mentioned
               the PL goal of communicating with others and PL characteristic of completeness ([Tables 1] and [2]). Physicians described using the PL to communicate with other physicians distributed
               across services and environments. The amount of information and organization of the
               PL may depend on the child's stage of care, for example, ED versus PICU. Therefore,
               PL goals and characteristics must not be considered independently as they interact.
               In light of the systems approach recommended by human factors and systems engineering,[36]
               [37] the PL should be designed to support interactions between goals and characteristics
               to have a positive impact on patient safety by avoiding missed injuries while supporting
               effective and efficient communication and coordination during in-hospital transitions,
               for example, from the ED to the operating room to PICU.
            There are some limitations to this study. First, our findings are limited by the small
               sample size of 12 interviews with physicians involved in pediatric trauma. The data
               may not capture the entire range of physicians' perceptions of the PL, for example,
               hospitalists who may care for children with trauma injuries after a PICU stay. Second,
               we collected data at a single, academic institution. Third, we interviewed only physicians
               who are the primary users and generators of the PL; understanding the perspective
               of other healthcare professions, for example, nurses, who interact with the child
               and use the PL in the EHR would be useful. Fourth, we focused on in-hospital transitions.
               Therefore, it is difficult to determine whether our results are generalizable to other
               children's hospitals of varying trauma level verification or nonteaching hospitals.
               More work is needed to evaluate and improve the design of the PL so that it accomplishes
               the goals and characteristics identified in this study.
          
         
         
         Conclusion
            Physicians described the PL as more than a tool to document and share a list of problems
               or injuries suffered by pediatric trauma patients. Physicians from four services involved
               in pediatric trauma mentioned many other information elements connected to problems
               on the PL, for example, medications and past medical history. A PL should support
               physician cognitive work and the collaborative nature of the pediatric trauma care
               process. Future studies could build on our results and examine the importance of the
               goals, characteristics, and information elements of the PL as perceived by physicians
               involved in pediatric trauma in other children's hospitals.
          
         
         Clinical Relevance Statement
          
         Clinical Relevance Statement
            Our results have design implications for the electronic PL to be organized around
               relevant patient data that could help support physician clinical thinking and coordination
               of care. The electronic PL should be designed to balance its goals and characteristics
               and have a positive impact on patient safety, for example, avoid missed injuries,
               and support communication and coordination during transitions.
          
         
         Multiple Choice Questions
          
         Multiple Choice Questions
            
               
               - 
                  
                  
Physicians think of the PL as follows:
                  
                  
                     
                     - 
                        
                        
The PL is just a list of problems, injuries, and diagnoses of the patient, which are
                           not related to any other parts of the EHR.
                         
                     
                     - 
                        
                        
The PL is a list of problems, injuries, and diagnoses of the patient, which should
                           be connected to other parts of the EHR, such as imaging and medications.
                         
                     
                  
                  
                     Correct Answer: The correct answer is option b. The results of our study clearly show that physicians
                     talk about the PL in relation to many other patient-related information elements.
                   
               
               - 
                  
                  
The literature shows that the following characteristics of PL remain an issue.
                  
                  
                     
                     - 
                        
                        
Completeness.
                         
                     
                     - 
                        
                        
Customizable.
                         
                     
                     - 
                        
                        
Not shareable.
                         
                     
                     - 
                        
                        
Duplicative.
                         
                     
                  
                  
                     Correct Answer: The correct answer is option a. PL completeness is often mentioned in the literature,
                     as well as by our study participants.
                   
               
               - 
                  
                  
The hospital policy on PL describes the following information elements:
                  
                  
                     
                     - 
                        
                        
List of injuries and non-trauma issues.
                         
                     
                     - 
                        
                        
List of non-trauma issues and medications.
                         
                     
                     - 
                        
                        
List of medications and vitals.
                         
                     
                     - 
                        
                        
List of vitals and allergies.
                         
                     
                  
                  
                     Correct Answer: The correct answer is option a. The results of our study show that hospital policy
                     mentioned to include injuries and non-trauma issues on the PL.
                   
               
          
         
         
            
 
         
         
            
               Appendix A: Interview Guide
 
               
                  
                        
                           
                              Pediatric trauma expert interview guide
                              
                           
                              
                              
                                 
                                 | 
                                     Interviewee code: 
                                  | 
                                 
                                  | 
                                 
                              
                              
                                 
                                 | 
                                     Interviewee service: 
                                  | 
                                 
                                  | 
                                 
                              
                              
                                 
                                 | 
                                     Interview date, time and duration: 
                                  | 
                                 
                                  | 
                                 
                              
                              
                                 
                                 | 
                                     Interviewers: 
                                  | 
                                 
                                  | 
                                 
                              
                        
                      
                     Reminder: any examples (based on your previous experiences of pediatric trauma admission and discharge
                           processes) you can provide that can help us understand your responses to our questions would
                        be helpful.
                     
                        Job title/expertise
                        
                     (ED charge nurse, peds transport team member, PICU nurse manager, etc.)
                     
                        Your job/role
                        
                     Can you please describe your role as related to pediatric trauma admissions and transfers?
                     
                        Service Information
                        
                     Can you please provide us with some background info about your service/unit?
                     
                        Problem List
                        
                     We would like to talk about the current problem list: how you would define it, what
                        it is, what it contains, what you do with it, and why it is important.
                     
                        
                        - 
                           
                           
What is a problem list for you?
                           
                           
                              
                              - 
                                 
                                 
Terms they mentioned in the first interview: injuries, surgical issues, problems,
                                    vitals (blood pressure), the “story,” burns, fractured bones, picture, neurologic
                                    things, multiple issues, broken arms, lost consciousness, concerns, issues, multitrauma,
                                    blunt injuries, missed injuries, what they are concerned about
                                  
                              
                              - 
                                 
                                 
What would you call that list?
                                  
                              
                            
                        
                        - 
                           
                           
What do you do with the problem list?
                           
                           
                            
                        
                        - 
                           
                           
What does (or should) the list include?
                           
                           
                              
                              - 
                                 
                                 
What is the content of the problem list?
                                  
                              
                              - 
                                 
                                 
What information would you like to have?
                                  
                              
                              - 
                                 
                                 
What is not included in the problem list? What does not belong to the problem list?
                                  
                              
                            
                        
                        - 
                           
                           
Additional process questions, time permitting:
                           
                           
                              
                              - 
                                 
                                 
Who uses it?
                                  
                              
                              - 
                                 
                                 
Is it used by a single person or by a team? How does it get updated?
                                  
                              
                              - 
                                 
                                 
When does it get used?
                                  
                              
                              - 
                                 
                                 
Where does it get used (physical location)?
                                  
                              
                              - 
                                 
                                 
What technology is used for the problem list (electronic health record)?
                                  
                              
                              - 
                                 
                                 
Is there any information that is currently not contained in the problem list that
                                    you wish would be captured? Why?
                                  
                              
                            
                        
                        - 
                           
                           
Whom else should we interview in your service/unit (e.g., other attending, fellow,
                              resident)?