Applied Clinical Informatics, Inhaltsverzeichnis Appl Clin Inform 2015; 06(03): 466-477DOI: 10.4338/ACI-2014-09-SOA-0081 State of the Art–Special Topic: Health Information Management Schattauer GmbH Informed ConsentDoes Anyone Really Understand What Is Contained In The Medical Record?Autor*innen Institutsangaben S. H. Fenton 1 UT School of Biomedical Informatics, Houston, Texas, United States F. Manion 2 University of Michigan Comprehensive Cancer Center, Chief Information Officer, Ann Arbor, Michigan, United States K. Hsieh 1 UT School of Biomedical Informatics, Houston, Texas, United States M. Harris 3 University of Michigan, School of Nursing, Ann Arbor, Michigan, United States Artikel empfehlen Abstract Volltext als PDF herunterladen(opens in new window) Keywords KeywordsMedical records - informed consent - information management Referenzen References 1 Committee on Improving the Patient Record.. The Computer-based Patient Record: An Essential Technology for Health Care. Washington, D. C.: National Academies Press; 1997 2 Cohasset Associates, AHIMA.. 2014 Information Governance in Healthcare: A Call to Adopt Information Governance Practices. Minneapolis, MN: 2014. p. 38. 3 Eiseman E, Haga SB. Handbook of Human Tissue Sources 1999. www.rand.org/pubs/monograph_reports MR954.html 4 International Cancer Genome Consortium. Hudson TJ, Anderson W, Artez A. et al. International network of cancer genome projects. Nature 2010; 464 7291 993-998. 5 Cancer Genome Atlas Research Network. Weinstein JN, Collisson EA, Mills GB, Shaw KRM, Ozenberger BA, Ellrott K, Shmulevich I, Sander C, Stuart JM. The Cancer Genome Atlas Pan-Cancer analysis project. Nat Genet 2013; 45 (10) 1113-1120. 6 Scott CT, Caulfield T, Borgelt E, Illes J. Personal medicine--the new banking crisis. Nat Biotechnol 2012; 30 (02) 141-147. 7 Institute of Medicine (US) Roundtable on Evidence-Based Medicine.. The Learning Healthcare System: Workshop Summary. Olsen L, Aisner D, McGinnis JM. editors. Washington (DC): National Academies Press (US); 2007 www.ncbi.nlm.nih.gov/books/NBK53494 8 Institute of Medicine [US].. Digital Infrastructure for the Learning Health System: The Foundation for Continuous Improvement in Health and Health Care: Workshop Series Summary. Grossmann C, Powers B, McGinnis JM. editors. Washington (DC): National Academies Press (US); 2011 www.ncbi.nlm.nih.govbooks/NBK83569/ 9 President’s Council of Advisors on Science and Technology. Designing a Digital Future: Federally Funded Research and Development in Networking and Information Technology. Washington (DC): Executive Office of the President; 2013. Jan p. 60. www.whitehouse.gov/sites/default/files/microsites/ostp/pcastnitrd2013.pdf 10 Faden RR, Kass NE, Goodman SN, Pronovost P, Tunis S, Beauchamp TL. An ethics framework for a learning health care system: a departure from traditional research ethics and clinical ethics. Hastings Cent Rep 2013; S16-S27. 11 Sanderson IC, Obeid JS, Madathil KC, Gerken K, Fryar K, Rugg D, Alstad CE, Alexander R, Brady KT, Gramopadhye AK, Moskowitz J. Managing clinical research permissions electronically: A novel approach to enhancing recruitment and managing consents. Clin Trials 2013; 10 (04) 604-611. 12 Chalil Madathil K, Koikkara R, Obeid J, Greenstein JS, Sanderson IC, Fryar K, Moskowitz J. An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting. Int J Med Inf 2013; 82 (09) 854-863.
