Yearbook of Medical Informatics
Issue 01 · August 2017
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Cover IMIA Yearbook of Medical Informatics 2017
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Cover IMIA Yearbook of Medical Informatics 2017
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Contents IMIA Yearbook of Medical Informatics 2017
I
Contents IMIA Yearbook of Medical Informatics 2017
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President’s Statement
1
Park, Hyeoun-Ae:
President’s Statement
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Obituary
3
van Bemmel, Jan H.; Ball, Marion; Hasman, Arie:
Remembering Jana Zvárová (1943-2017)
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Editorial
4
Séroussi, B; Soualmia, L. F; Holmes, J. H:
Transforming Data into Knowledge: How to Improve the Efficiency of Clinical Care?
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07
Lehmann, C. U.; Park, H.-A.; Shortliffe, E. H.; Degoulet, P.:
The International Academy of Health Sciences Informatics: An Academy of Excellence
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9
Haux, R.; Geissbuhler, A.; Holmes, J.; Jaulent, M.-C.; Koch, S.; Kulikowski, C. A.; Lehmann, C. U.; McCray, A. T.; Séroussi, B.; Soualmia, L. F.; van Bemmel, J. H.:
On Contributing to the Progress of Medical Informatics as Publisher
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Keynote
16
Friedman, C. P.; Rubin, J. C.; Sullivan, K. J.:
Toward an Information Infrastructure for Global Health Improvement
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Special Section: Learning from Experience: Secondary Use of Patient Data
Survey
24
Safran, C.:
Update on Data Reuse in Health Care
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Working Group Contributions
28
Martin-Sanchez, F. J.; Aguiar-Pulido, V.; Lopez-Campos, G. H.; Peek, N.; Sacchi, L.:
Secondary Use and Analysis of Big Data Collected for Patient Care
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38
Meystre, S. M.; Lovis, C.; Bürkle, T.; Tognola, G.; Budrionis, A.; Lehmann, C. U.:
Clinical Data Reuse or Secondary Use: Current Status and Potential Future Progress
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53
Paton, C.; Karopka, T.:
The Role of Free/Libre and Open Source Software in Learning Health Systems
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59
Scott, P. J.; Rigby, M.; Ammenwerth, E.; McNair, J. Brender; Georgiou, A.; Hyppönen, H.; de Keizer, N.; Magrabi, F.; Nykänen, P.; Gude, W. T.; Hackl, W.:
Evaluation Considerations for Secondary Uses of Clinical Data: Principles for an Evidence-based Approach to Policy and Implementation of Secondary Analysis
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68
Schlegel, D. R.; Ficheur, G.; Section Editors for the IMIA Yearbook Special Section “Secondary Use of Patient Data”:
Secondary Use of Patient Data: Review of the Literature Published in 2016
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e1
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Section 1: Health Information Management
Survey
72
Fenton, S. H.; Low, S.; Abrams, K. J.; Butler-Henderson, K.:
Health Information Management: Changing with Time
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Synopsis
78
Bloomrosen, M.; Berner, E. S.; Section Editors for the IMIA Yearbook Section on Health Information Management:
Findings from the 2017 Yearbook Section on Health Information Management
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e3
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Section 2: Human Factors and Organizational Issues
Survey
84
Turner, P.; Kushniruk, A.; Nohr, C.:
Are We There Yet? Human Factors Knowledge and Health Information Technology – the Challenges of Implementation and Impact
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Synopsis
92
Pelayo, S.; Santos, R.; Section Editors for the IMIA Yearbook Section on Human Factors and Organizational Issues:
Trends and Progress in Human Factors and Organizational Issues in 2016: Learning from Experience
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e5
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Section 3: Clinical Information Systems
Survey
96
Murphy, S.; Castro, V.; Mandl, K.:
Grappling with the Future Use of Big Data for Translational Medicine and Clinical Care
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Synopsis
103
Hackl, W.O.; Ganslandt, T.; Section Editors for the IMIA Yearbook Section on Clinical Information Systems:
Clinical Information Systems as the Backbone of a Complex Information Logistics Process: Findings from the Clinical Information Systems Perspective for 2016
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e7
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Section 4: Sensor, Signal and Imaging Informatics
Survey
110
Chennubhotla, C.; Clarke, L. P.; Fedorov, A.; Foran, D.; Harris, G.; Helton, E.; Nordstrom, R.; Prior, F.; Rubin, D.; Saltz, J. H.; Shalley, E.; Sharma, A.:
An Assessment of Imaging Informatics for Precision Medicine in Cancer
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Synopsis
120
Hsu, W.; Park, S.; Kahn, Charles E.; Section Editors for the IMIA Yearbook Section on Sensor, Signal, and Imaging Informatics:
Sensor, Signal, and Imaging Informatics
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e9
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Section 5: Decision Support
Survey
125
Jenders, R. A.:
Advances in Clinical Decision Support: Highlights of Practice and the Literature 2015-2016
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Synopsis
133
Koutkias, V.; Bouaud, J.; Section Editors of the IMIA Yearbook Section on Decision Support:
Contributions from the 2016 Literature on Clinical Decision Support
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e11
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Section 6: Knowledge Representation and Management
Survey
139
Rosenbloom, S. T.; Carroll, R. J.; Warner, J. L.; Matheny, M. E.; Denny, J. C.:
Representing Knowledge Consistently Across Health Systems
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Synopsis
148
Dhombres, F.; Charlet, J.; Section Editors for the IMIA Yearbook Section on Knowledge Representation and Management:
Knowledge Representation and Management, It’s Time to Integrate!
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e13
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Section 7: Consumer Health Informatics
Survey
152
Lai, A. M.; Hsueh, P.-Y. S.; Choi, Y. K.; Austin, R. R.:
Present and Future Trends in Consumer Health Informatics and Patient-Generated Health Data
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Working Group Contribution
160
Hsueh, P.-Y.; Cheung, Y.-K.; Dey, S.; Kim, K. K.; Martin-Sanchez, F. J.; Petersen, S. K.; Wetter, T.:
Added Value from Secondary Use of Person Generated Health Data in Consumer Health Informatics
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Synopsis
172
Staccini, P.; Fernandez-Luque, L.; Findings from the 2017 Yearbook Section on Education and Consumer Health Informatics:
Secondary Use of Recorded or Self-expressed Personal Data: Consumer Health Informatics and Education in the Era of Social Media and Health Apps
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e15
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Section 8: Bioinformatics and Translational Informatics
Survey
178
Vamathevan, J.; Birney, E.:
A Review of Recent Advances in Translational Bioinformatics: Bridges from Biology to Medicine
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Synopsis
188
Dauchel, H.; Lecroq, T.; Section Editors for the IMIA Yearbook Section on Bioinformatics and Translational Informatics:
Findings from the Section on Bioinformatics and Translational Informatics
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e17
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Section 9: Clinical Research Informatics
Survey
193
Johnson, S. B.:
Clinical Research Informatics: Supporting the Research Study Lifecycle
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Working Group Contribution
201
Hinton, W.; Liyanage, H.; McGovern, A.; Liaw, S.-T.; Kuziemsky, C.; Munro, N.; de Lusignan, S.:
Measuring Quality of Healthcare Outcomes in Type 2 Diabetes from Routine Data: a Seven-nation Survey Conducted by the IMIA Primary Health Care Working Group
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Synopsis
209
Daniel, C.; Choquet, R.; Section Editors for the IMIA Yearbook Section on Clinical Research Informatics:
Clinical Research Informatics: Contributions from 2016
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e19
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Section 10: Natural Language Processing
Survey
214
Gonzalez-Hernandez, G.; Sarker, A.; O’Connor, K.; Savova, G.:
Capturing the Patient’s Perspective: a Review of Advances in Natural Language Processing of Health-Related Text
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Synopsis
228
Névéol, A.; Zweigenbaum, P.; Section Editors for the IMIA Yearbook Section on Clinical Natural Language Processing:
Making Sense of Big Textual Data for Health Care: Findings from the Section on Clinical Natural Language Processing
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e21
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Section 11: Public Health and Epidemiology Informatics
Surveys
235
Burgun, A.; Bernal-Delgado, E.; Kuchinke, W.; van Staa, T.; Cunningham, J.; Lettieri, E.; Mazzali, C.; Oksen, D.; Estupiñan, F.; Barone, A.; Chène, G.:
Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe
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241
Massoudi, B. L.; Chester, K. G.:
Public Health, Population Health, and Epidemiology Informatics: Recent Research and Trends in the United States
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PDF (840 kb)
Synopsis
248
Thiébaut, R.; Thiessard, F.; Section Editors for the IMIA Yearbook Section on Public Health and Epidemiology Informatics:
Public Health and Epidemiology Informatics
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PDF (651 kb)
e23
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Research & Education
252
Jaspers, M.W.; Mantas, J.; Borycki, E.; Hasman, A.:
IMIA Accreditation of Biomedical and Health Informatics Education: Current State and Future Directions
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History of Medical Informatics
257
Kulikowski, C. A.:
Historical Roots of International Biomedical and Health Informatics: The Road to IFIP-TC4 and IMIA through Cybernetic Medicine and the Elsinore Meetings
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Working Group Contribution
263
Kulikowski, C. A.; Mihalas, G.; Greenes, R. A.; Yacubsohn, V.; Park, H.-A.:
The IMIA History Working Group: Inception through the IMIA History Taskforce, and Major Events Leading Up to the 50th Anniversary of IMIA
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Information on IMIA
269
Welcome to IMIA
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PDF (602 kb)
272
Information on IMIA Members
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272
Honorary Fellows
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273
IMIA Member Societies and Corresponding Members
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PDF (554 kb)
274
Institutional Members
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PDF (575 kb)
276
Addresses of IMIA Member Societies
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PDF (1001 kb)
Information on IMIA Regional Groups
292
APAMI Asia Pacific Association for Medical Informatics
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PDF (1143 kb)
298
Helina Activities of the Pan African Health Informatics Association
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PDF (605 kb)
299
Espinosa, Amado:
IMIA-LAC Health Informatics Association for Latin-America and Caribbean
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PDF (598 kb)
301
North American Medical Informatics (NAMI)
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PDF (672 kb)
309
Hörbst, Alexander; Winter, Alfred; Lovis, Christian:
European Federation for Medical Informatics (EFMI) - A Brief Outline
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EFMI Working and Project Groups – Overview and Current Activities
311
Hörbst, Alexander; Winter, Alfred; Stoicu-Tivadar, Lacramioara:
EFMI Working and Project Groups – Overview and Current Activities
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National Contribution
323
Parra-Calderón, C. L.; Gómez-Soriano, G.; Galván-Romo, J.; Sáez-Ayerra, L.:
Innovation in Health Informatics Conference in Spain: Conclusions on the Responsibility to Use Patient Data and Big Data Methods to Improve Healthcare
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Contributors to the 2017 IMIA Yearbook of Medical Informatics
326
Contributors to the 2017 IMIA Yearbook of Medical Informatics
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IMIA Yearbook Special Topics
327
IMIA Yearbook Special Topics
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PDF (538 kb)
Section 11: Public Health and Epidemiology Informatics
250
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PDF (575 kb)
Section 9: Clinical Research Informatics
212
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PDF (583 kb)
Section 10: Natural Language Processing
233
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PDF (572 kb)
Section 8: Bioinformatics and Translational Informatics
191
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PDF (629 kb)
Section 4: Sensor, Signal and Imaging Informatics
123
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PDF (582 kb)
Section 7: Consumer Health Informatics
175
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PDF (628 kb)
Special Section “Learning from Experience: Secondary Use of Patient Data”
70
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PDF (611 kb)
Section 1: Health Information Management
82
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PDF (567 kb)
Section 6: Knowledge Representation and Management
151
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PDF (561 kb)
Section 2: Human Factors and Organizational Issues
94
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PDF (604 kb)
Section 3: Clinical Information Systems
109
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PDF (558 kb)
Section 5: Decision Support
137
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PDF (574 kb)
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