DNVF-Memorandum Versorgungsforschung im letzten
                    Lebensjahr

Kerstin Kremeike; Claudia Bausewein; Antje Freytag; Christian Junghanss; Gabriella Marx; Rieke Schnakenberg; Nils Schneider; Holger Schulz; Ulrich Wedding; Raymond Voltz

doi:10.1055/a-1889-4705

Das Gesundheitswesen, Table of Contents

CC BY-NC-ND 4.0 · Gesundheitswesen
DOI: 10.1055/a-1889-4705

Konsensstatement

DNVF-Memorandum Versorgungsforschung im letzten Lebensjahr

DNVF Memorandum: Health Services Research in the Last Year of Life

Authors

Kerstin Kremeike

¹Zentrum für Palliativmedizin, Universitätsklinikum Köln, Köln, Deutschland
Claudia Bausewein

²Klinik und Poliklinik für Palliativmedizin, LMU Klinikum München, München, Deutschland
Antje Freytag

³Institut für Allgemeinmedizin, Universitätsklinikum Jena, Jena, Deutschland
Christian Junghanss

⁴Hämatologie, Onkologie und Palliativmedizin, Zentrum für Innere Medizin, Universitätsmedizin Rostock, Rostock, Deutschland
Gabriella Marx

⁵Institut und Poliklinik Allgemeinmedizin, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland
Rieke Schnakenberg

⁶Hospiz- und PalliativVerband Niedersachsen e.V., Celle, Deutschland
Nils Schneider

⁷Institut für Allgemeinmedizin und Palliativmedizin, Medizinische Hochschule Hannover, Hannover, Deutschland
Holger Schulz

⁸Institut und Poliklinik für Medizinische Psychologie, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Deutschland
Ulrich Wedding

⁹Abteilung Palliativmedizin, Universitätsklinikum Jena, Jena, Deutschland
Raymond Voltz

¹Zentrum für Palliativmedizin, Universitätsklinikum Köln, Köln, Deutschland

Abstract

Zusammenfassung

Versorgungsforschung im letzten Lebensjahr beschäftigt sich mit der wissenschaftlichen Erfassung der Begleitung und Betreuung von schwerstkranken und sterbenden Menschen sowie ihrer An- und Zugehörigen. Patientinnen und Patienten in der letzten Lebensphase können unterschiedlichen Erkrankungsgruppen angehören, besondere Charakteristika aufweisen (z. B. Menschen mit kognitiver und komplexer Beeinträchtigung, ökonomischer Benachteiligung oder Migrationshintergrund) sowie in bestimmten Lebensphasen sein (z. B. Eltern minderjähriger Kinder, (hohes) Alter). Aus der besonderen Situation der Betroffenen sowie aus den Besonderheiten der Versorgung im letzten Lebensjahr ergibt sich das Erfordernis für ein eigenes Memorandum zur Versorgungsforschung in dieser Lebensphase. Dieses Memorandum beschreibt diesbezüglich ethische und methodische Spezifika sowie aktuelle Fragestellungen der Versorgungsforschung und wie diese angemessen mittels quantitativer, qualitativer und gemischter Methoden bearbeitet werden können. Es wurde von der Fachgruppe Palliativmedizin des Deutschen Netzwerk für Versorgungsforschung e.V. (DNVF) entsprechend der Vorgaben für DNVF-Memoranden erarbeitet.

Abstract

This memorandum outlines current issues concerning health services research on seriously ill and dying people in the last year of their lives as well as support available for their relatives. Patients in the last phase of life can belong to different disease groups, they may have special characteristics (e. g., people with cognitive and complex impairments, economic disadvantage or migration background) and be in certain phases of life (e. g., parents of minor children, (old) age). The need for a designated memorandum on health services research in the last year of life results from the special situation of those affected and from the special features of health services in this phase of life. With reference to these special features, this memorandum describes methodological and ethical specifics as well as current issues in health services research and how these can be adequately addressed using quantitative, qualitative and mixed methods. It has been developed by the palliative medicine section of the German Network for Health Services Research (DNVF) according to the guidelines for DNVF memoranda.

Schlüsselwörter

Versorgungsforschung - Forschungsmethoden - Letztes Lebensjahr - Palliativversorgung

Key words

Health services research - research methods - last year of life - palliative care

Full Text

References

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