Nomenklatur für Nierenfunktion und Nierenkrankheiten – Durch Präzision und Verständlichkeit zu besserer Erfassung und Prognose

Zusammenfassung

Nierenkrankheiten stellen ein zunehmendes Gesundheitsproblem dar, dessen Eindämmung eine effektive Kommunikation zwischen den an Erfassung, Diagnostik und Therapie Beteiligten sowie den betroffenen Patientinnen und Patienten erfordert. Die Nomenklatur für Nierenfunktion und Nierenkrankheiten ist jedoch bislang nicht einheitlich. Die internationale, gemeinnützige Organisation Kidney Disease: Improving Global Outcomes (KDIGO) hat deshalb 2019 in einem Konsensus-Prozess ein englischsprachiges Glossar entwickelt, um die Begriffe zur Beschreibung von Nierenfunktion, Nierenstruktur und Nierenkrankheiten zu vereinheitlichen. Leitprinzipien bei der Entwicklung dieser Nomenklatur waren (1) Präzision, (2) Patientenzentrierung und (3) Konsistenz mit bisherigen KDIGO-Leitlinien. Das vorliegende Positionspapier beinhaltet eine deutsche Übersetzung dieses Glossars, die im Auftrag der nephrologischen Fachgesellschaften in Deutschland, Österreich und der Schweiz entwickelt wurde.

Abstract

Kidney disease represents an increasing global health problem. Its mitigation requires effective communication between all stakeholders involved in assessment, diagnosis and therapy and individuals affected by kidney disease. However, as of today the nomenclature for kidney function and kidney disease is far from uniform. In 2019, the international non-profit organization Kidney Disease: Improving Global Outcomes (KDIGO) has implemented a consensus process to develop a glossary in English language to standardize the nomenclature for kidney function, kidney structure and kidney disease. Guiding principles for this process were (1) precision, (2) patient-centeredness and (3) consistency with KDIGO guidelines. The current position paper includes a translation of this nomenclature into German that was developed on behalf of the national societies for nephrology in Germany, Austria and Switzerland.

Schlüsselwörter

Terminologie - Begriffe - Nomenklatur - Niere - Funktion - Struktur - Krankheit

Key words

terminology - terms - nomenclature - kidney - function - structure - disease

Publikationsverlauf

Artikel online veröffentlicht:
29. September 2022

• Literatur

• 1 GBD 2019 Diseases and Injuries Collaborators. Global burden of 369 diseases and injuries in 204 countries and territories, 1990-2019: a systematic analysis for the Global Burden of Disease Study 2019. Lancet 2020; 396: 1204-1222
• 2 Foreman KJ, Marquez N, Dolgert A. et al Forecasting life expectancy, years of life lost, and all-cause and cause-specific mortality for 250 causes of death: reference and alternative scenarios for 2016-40 for 195 countries and territories. Lancet 2018; 392 (10159): 2052-2090
• 3 Eckardt KU, Coresh J, Devuyst O. et al Evolving importance of kidney disease: from subspecialty to global health burden. Lancet 2013; 382 (9887): 158-169
• 4 Levin A, Tonelli M, Bonventre J. et al Global kidney health 2017 and beyond: a roadmap for closing gaps in care, research, and policy. Lancet 2017; 390 (10105): 1888-1917
• 5 Hsu CY, Chertow GM. Chronic renal confusion: insufficiency, failure, dysfunction, or disease. Am J Kidney Dis 2000; 36 (02) 415-418
• 6 Levin A, Stevens PE, Bilous RW. et al. Kidney disease: Improving global outcomes (KDIGO) CKD work group. KDIGO 2012 clinical practice guideline for the evaluation and management of chronic kidney disease. Kidney Int Suppl 2013; 3 (01) 1-150
• 7 Kellum JA, Aspelin P, Barsoum RS. et al. Kidney disease: Improving global outcomes (KDIGO) AKI work group. KDIGO 2012 clinical practice guideline for acute kdiney injury. Kidney Int Suppl 2012; 2 (01) 1-141
• 8 Lameire NH, Levin A, Kellum JA. et al. Harmonizing acute and chronic kidney disease definition and classification: report of a Kidney Disease: Improving Global Outcomes (KDIGO) Consensus Conference. Kidney Int 2021; 100 (03) 516-526
• 9 Committee on Quality of Health Care in America. Institute of Medicine (US). Crossing the Quality Chasm: A New Health System for the 21st Century. Washington (DC): National Academies Press (US); 2001 Available from: http://www.ncbi.nlm.nih.gov/books/NBK222274/
• 10 American Medical Association. American Medical Association (AMA) Manual of Style. Oxford (UK): Oxford University Press; 2007 Available from: 10th ed. https://www.amamanualofstyle.com/view/10.1093/jama/9780195176339.001.0001/med-9780195176339
• 11 Levey AS, Eckardt KU, Dorman NM. et al. Nomenclature for kidney function and disease: report of a Kidney Disease: Improving Global Outcomes (KDIGO) Consensus Conference. Kidney Int 2020; 97 (06) 1117-1129
• 12 Tong A, Levey AS, Eckardt KU. et al. Patient and Caregiver Perspectives on Terms Used to Describe Kidney Health. Clin J Am Soc Nephrol 2020; 15 (07) 937-948
• 13 Christiansen S, Iverson C, Flanagin A. et al AMA Manual of Style: A Guide for Authors and Editors. Oxford (UK): Oxford University Press; 2020 Available from: 11th ed. https://www.amamanualofstyle.com/page/1173
• 14 Glassock RJ, Delanaye P, Rule AD. Should the definition of CKD be changed to include age-adapted GFR criteria? Yes. Kidney Int 2020; 97 (01) 34-37
• 15 Levey AS, Inker LA, Coresh J. Should the definition of CKD be changed to include age-adapted GFR criteria?: Con: the evaluation and management of CKD, not the definition, should be age-adapted. Kidney Int 2020; 97 (01) 37-40
• 16 Delgado C, Baweja M, Crews DC. et al. A Unifying Approach for GFR Estimation: Recommendations of the NKF-ASN Task Force on reassessing the inclusion of race in diagnosing kidney disease. J Am Soc Nephrol 2021; 32 (12) 2994-3015
• 17 Inker LA, Eneanya ND, Coresh J. et al. New creatinine- and cystatin C-based equations to estimate GFR without race. N Engl J Med 2021; 385 (19) 1737-1749
• 18 Ong E, Wang LL, Schaub J. et al. Modelling kidney disease using ontology: insights from the Kidney Precision Medicine Project. Nat Rev Nephrol 2020; 16 (11) 686-696