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Neuropediatrics 2022; 53(02): 102-108
DOI: 10.1055/s-0041-1740377
Original Article

Validity and Reliability of the German Version of the CP QOL-Child and CP QOL-Teen Questionnaire

Manuel Maier
1   Department of Neuropediatrics, SPZ for Chronically Sick Children, Charité – Berlin University of Medicine, Berlin, Germany
,
Corinna Stoltenburg
1   Department of Neuropediatrics, SPZ for Chronically Sick Children, Charité – Berlin University of Medicine, Berlin, Germany
,
Akosua Sarpong-Bengelsdorf
3   Kinderarztpraxis, Berlin, Germany
,
Susanne Lebek
1   Department of Neuropediatrics, SPZ for Chronically Sick Children, Charité – Berlin University of Medicine, Berlin, Germany
2   Department of Pediatric Orthopedic Surgery and Neuro-Orthopedics, Center for Musculoskeletal Surgery, Charité – Berlin University of Medicine, Berlin, Germany
› Author Affiliations Funding None.
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Abstract

The aim of the study was to determine the psychometric properties of the German version of the Cerebral Palsy Quality of Life Questionnaire for Children and Adolescents (CP QOL-Child and -Teen). It is a condition-specific questionnaire with a self-report version, measuring well-being rather than ill-being, which differs from existing measurement methods. Fourteen children (9–12 years) and 64 caregivers (4–12 years) answered the child questionnaire. Twenty-one adolescents and 26 caregivers (all adolescents 13–18 years) replied to the teen version. Functioning was categorized by the Gross Motor Function Classification System. For CP QOL-child internal consistency (Cronbach's α) ranged from 0.58 to 0.88 and for CP QOL-Teen from 0.68 to 0.95. Test–retest reliability after 2 to 4 weeks ranged between 0.75 and 0.94 in children's version and 0.89 and 0.96 in teen's version. Correlation with well-established generic KIDSCREEN-10 questionnaire was moderate to strong. The German versions of CP QOL-Child and -Teen are appropriate tools for assessing the quality of life of children and adolescents with cerebral palsy in the German-speaking population.

Keywords

cerebral palsy - CPQOL - quality of life - German version - questionnaires


Publication History

Received: 08 February 2021

Accepted: 04 November 2021

Article published online:
08 December 2021

© 2021. Thieme. All rights reserved.

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