Validity and Reliability of the German Version of the CP QOL-Child and CP QOL-Teen Questionnaire

Manuel Maier; Corinna Stoltenburg; Akosua Sarpong-Bengelsdorf; Susanne Lebek

doi:10.1055/s-0041-1740377

Neuropediatrics, Inhaltsverzeichnis

Neuropediatrics 2022; 53(02): 102-108
DOI: 10.1055/s-0041-1740377

Original Article

Validity and Reliability of the German Version of the CP QOL-Child and CP QOL-Teen Questionnaire

Manuel Maier

¹Department of Neuropediatrics, SPZ for Chronically Sick Children, Charité – Berlin University of Medicine, Berlin, Germany

,

Corinna Stoltenburg

¹Department of Neuropediatrics, SPZ for Chronically Sick Children, Charité – Berlin University of Medicine, Berlin, Germany

,

Akosua Sarpong-Bengelsdorf

³Kinderarztpraxis, Berlin, Germany

,

Susanne Lebek

¹Department of Neuropediatrics, SPZ for Chronically Sick Children, Charité – Berlin University of Medicine, Berlin, Germany

²Department of Pediatric Orthopedic Surgery and Neuro-Orthopedics, Center for Musculoskeletal Surgery, Charité – Berlin University of Medicine, Berlin, Germany

› Institutsangaben

Abstract

The aim of the study was to determine the psychometric properties of the German version of the Cerebral Palsy Quality of Life Questionnaire for Children and Adolescents (CP QOL-Child and -Teen). It is a condition-specific questionnaire with a self-report version, measuring well-being rather than ill-being, which differs from existing measurement methods. Fourteen children (9–12 years) and 64 caregivers (4–12 years) answered the child questionnaire. Twenty-one adolescents and 26 caregivers (all adolescents 13–18 years) replied to the teen version. Functioning was categorized by the Gross Motor Function Classification System. For CP QOL-child internal consistency (Cronbach's α) ranged from 0.58 to 0.88 and for CP QOL-Teen from 0.68 to 0.95. Test–retest reliability after 2 to 4 weeks ranged between 0.75 and 0.94 in children's version and 0.89 and 0.96 in teen's version. Correlation with well-established generic KIDSCREEN-10 questionnaire was moderate to strong. The German versions of CP QOL-Child and -Teen are appropriate tools for assessing the quality of life of children and adolescents with cerebral palsy in the German-speaking population.

Keywords

cerebral palsy - CPQOL - quality of life - German version - questionnaires

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Referenzen

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