Pilotierung und Evaluation einer partizipativen, digitalen Akte für gerontopsychiatrische Patienten und ihre Care-Partner

ZUSAMMENFASSUNG

Hintergrund Ältere Patienten sind in ihrer Gesundheitsversorgung häufig auf Angehörige, sog. „Care-Partner” (CP), angewiesen. Diese erhalten oft nur erschwert Zugang zu relevanten Gesundheitsdaten der Patienten und können deshalb nur begrenzt unterstützen. CP einen digitalen Zugang zur elektronischen Akte und zur klinischen Behandlungsdokumentation der Patienten zu geben, stellt einen innovativen Beitrag zur Lösung dieses Problems dar. Es werden die Barrieren und Chancen des Lösungsansatzes untersucht.

Methoden Ältere Patienten (n = 8) und deren CP (n = 8) erhalten online Zugang zur ärztlichen Behandlungsdokumentation via eines webbasierten Patientenportals. Es werden qualitative Interviews (n = 16) zu den Erfahrungen mit dem Zugang für CP geführt.

Ergebnisse Sowohl Patienten als auch CP erleben bei der Nutzung Barrieren und Chancen. Der Kontakt zu den Behandlern verbessert und vereinfacht sich. Patienten stehen in Arztgesprächen weniger unter Druck, da sie via Online-Zugang die Arztkontakte nach- und vorbereiten können. CP fühlen sich besser in die Gesundheitsversorgung einbezogen und entlastet. Einige Patienten gelang es aufgrund von technischen Schwierigkeiten und/oder fehlender digitaler Gesundheitskompetenz nicht, den Online-Zugang selbstständig zu nutzen, sodass Verantwortung an die CP abgegeben wurde.

Diskussion CP nehmen eine zentrale Rolle in der digitalen Gesundheitsversorgung von Patienten ein. Damit auch ältere Patienten als gleichberechtigte Partner an ihrem digitalen Gesundheitsmanagement teilhaben, ist es erforderlich, spezifische Angebote zu entwickeln, die sie in der Entwicklung digitaler Kompetenzen unterstützen.

ABSTRACT

Background Older patients (with cognitive impairments) frequently rely on relatives, so-called “care partners” (CP), for their healthcare. CPs often lack or have limited access to relevant patient health data, which constrains their ability to provide comprehensive support. Providing CPs with digital access to patients’ electronic records and clinical documentation represents an innovative contribution to addressing this challenge. This paper examines the barriers and opportunities associated with the solution approach.

Methods Elderly patients (n = 8) and their CP (n = 8) are provided with online access to medical treatment documentation via a web-based patient portal. Qualitative interviews (n = 16) are conducted to ascertain the experiences of CP users about access.

Results Both patients and CPs encounter obstacles and opportunities when using this technology. Contact with healthcare professionals (HCP) s improved and simplified. Patients are less pressured during consultations with HCP, as they can follow up and prepare contacts with HCP via online access. CPs feel more involved in healthcare and relieved. Some older patients were unable to use online access independently due to technical limitations or/and a lack of digital literacy and delegated responsibility to the CP.

Discussion CPs play a central role in the digital healthcare of patients. To ensure that older patients also participate as equal partners in their digital health management, it is necessary to develop specific services that support them in developing the necessary digital skills.

Schlüsselwörter

OpenNotes - elektronische Patientenakte - Psychische Gesundheit - Psychiatrie - Ältere

Key words

OpenNotes - Proxy Access - older adults - eHealth - mHealth - electronic health record

Publication History

Article published online:
02 December 2024

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