The Diagnosis and Management of von Willebrand Disease in Canada

ABSTRACT

In Canada, care for individuals with inherited bleeding disorders, including von Willebrand disease, is provided by 26 tertiary care multidisciplinary Inherited Bleeding Disorders clinics geographically spread across the country. The Association of Hemophilia Clinic Directors of Canada, the Canadian Association of Nurses in Hemophilia Care, the Canadian Physiotherapists in Hemophilia Care, the Canadian Social Workers in Hemophilia Care, and the Canadian Hemophilia Society all collaborate to provide optimal management for patients with inherited bleeding disorders. The standards of care for these patients were explicitly laid out in a 2007 document published by the Canadian Hemophilia Standards Group (with representation from all of the groups just mentioned) entitled Canadian Comprehensive Care Standards for Hemophilia and Other Inherited Bleeding Disorders. Separate Canadian guidelines for the management of patients with Hemophilia and von Willebrand disease also exist, focused on diagnosis, comprehensive care, assessment, and treatment.

KEYWORDS

von Willebrand disease - diagnosis - management - Association of Hemophilia Clinic Directors of Canada

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