Familienzentrierte Sterbe- und individuelle Trauerbegleitung an einem Perinatalzentrum

Zusammenfassung

Sterbe- und Trauerbegleitung an einem Perinatalzentrum ist ein multiprofessionelles Geschehen, das sowohl das sterbende Kind und dessen Eltern, als auch die professionell Begleitenden einschließt. Erfahrungen in der Praxis zeigen, dass Aspekte einer individuellen Sterbe- und familienzentrierten Trauerbegleitung wenig bekannt sind und von den Fachpersonen unterschiedlich wahrgenommen werden. Vor allem ist in den Bereichen standardisierte Qualitäts­sicherung und Trauerbegleitung früh verwaister Eltern eine uneinheitliche Praxis zu erkennen. Am Perinatalzentrum der Charité Berlin wurde ein interdisziplinäres Konzept für eine familienzentrierte Sterbe- und individuelle Trauerbegleitung entwickelt. Das Konzept ist auf zwei Grundziele ausgerichtet: 1. Den individuellen medizinischen, psychosozialen, emotionalen und seelischen Bedürfnissen der Neugeborenen, Eltern und Angehörigen gerecht zu werden und 2. Prozessorientierte Vorbereitung, Evaluation und Reflexion jeder Sterbebegleitung im Team. Es ist das Ziel dieser vorliegenden Arbeit, Anregungen zur Orientierung und Vereinheitlichung in der Begleitung und Betreuung von Familien mit sterbenden Neugeborenen zu vermitteln.

Abstract

Neonatal end-of-life care and family-centred bereavement support in perinatal medicine are a multiprofessional challenge directed to the dying newborn and the parents as well as to the care-givers. Clinical experience shows that many aspects of individual neonatal end-of-life care and family-centred bereavement support are not well known to the health-care providers. This is especially true for a standardised quality management and the components of bereavement support offered to parents. An interdisciplinary concept for an individual neonatal end-of-life care and famlily-centred bereavement support has been developed at the Center of Perinatal Medicine at the Charité, Berlin. The concept aims for two main aspects: (1) meeting the individual medical, psychological, emotional and spiritual needs of the dying newborn, the parents and family, and (2) facilitating standardised and process-orientated preparation, evaluation and reflexion of every case of end-of-life care. In this article some recommendations for implementing a basic care concept for families and their dying newborns are presented.

Schlüsselwörter

Palliativpflege - Neugeborene - verwaiste Eltern

Key words

palliative care - newborn - parents

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