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Appl Clin Inform 2024; 15(04): 692-699
DOI: 10.1055/s-0044-1788328
Special Section on Patient-Reported Outcomes and Informatics

Sociodemographic Differences in Perspectives on Postpartum Symptom Reporting

Natalie C. Benda
1   School of Nursing, Columbia University, New York, New York, United States
,
Ruth M. Masterson Creber
1   School of Nursing, Columbia University, New York, New York, United States
,
Roberta Scheinmann
1   School of Nursing, Columbia University, New York, New York, United States
,
Stephanie Nino de Rivera
1   School of Nursing, Columbia University, New York, New York, United States
,
Eric Costa Pimentel
2   Department of Population Health Sciences, Weill Cornell Medicine, New York, New York, United States
,
Robin B. Kalish
3   Department of Obstetrics and Gynecology, Weill Cornell Medicine, New York, New York, United States
,
Laura E. Riley
3   Department of Obstetrics and Gynecology, Weill Cornell Medicine, New York, New York, United States
,
Alison Hermann
4   Department of Psychiatry, Weill Cornell Medicine, New York, New York, United States
,
Jessica S. Ancker
5   Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, Tennessee, United States
› Author Affiliations Funding This work was supported by the National Institute on Minority Health and Health Disparities (grant no.: K99MD015781).
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Abstract

Objective The overall goal of this work is to create a patient-reported outcome (PRO) and decision support system to help postpartum patients determine when to seek care for concerning symptoms. In this case study, we assessed differences in perspectives for application design needs based on race, ethnicity, and preferred language.

Methods A sample of 446 participants who reported giving birth in the past 12 months was recruited from an existing survey panel. We sampled participants from four self-reported demographic groups: (1) English-speaking panel, Black/African American race, non-Hispanic ethnicity; (2) Spanish-speaking panel, Hispanic-ethnicity; (3) English-speaking panel, Hispanic ethnicity; (4) English-speaking panel, non-Black race, non-Hispanic ethnicity. Participants provided survey-based feedback regarding interest in using the application, comfort reporting symptoms, desired frequency of reporting, reporting tool features, and preferred outreach pathway for concerning symptoms.

Results Fewer Black participants, compared with all other groups, stated that they had used an app for reporting symptoms (p = 0.02), were least interested in downloading the described application (p < 0.05), and found a feature for sharing warning sign information with friends and family least important (p < 0.01). Black and non-Hispanic Black participants also preferred reporting symptoms less frequently as compared with Hispanic participants (English and Spanish-speaking; all p < 0.05). Spanish-speaking Hispanic participants tended to prefer calling their professional regarding urgent warning signs, while Black and English-speaking Hispanic groups tended to express interest in using an online chat or patient portal (all p < 0.05)

Conclusion Different participant groups described distinct preferences for postpartum symptom reporting based on race, ethnicity, and preferred languages. Tools used to elicit PROs should consider how to be flexible for different preferences or tailored toward different groups.

Keywords

patient-reported outcomes - obstetrics - symptom information

Protection of Human and Animal Subjects

The study was performed in compliance with the World Medical Association Declaration of Helsinki on Ethical Principles for Medical Research Involving Human Subjects and was reviewed by the Weill Cornell Medicine Institutional Review Board.


Supplementary Material



Publication History

Received: 14 March 2024

Accepted: 11 June 2024

Article published online:
21 August 2024

© 2024. Thieme. All rights reserved.

Georg Thieme Verlag KG
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