Semin intervent Radiol 2024; 41(04): 336-338
DOI: 10.1055/s-0044-1791193
Review Article

Challenges in Management of the Adult Vascular Anomalies Population: A Case Report and Review of the Literature

David Strain
1   Department of Radiology and Imaging Sciences, University of Utah, Salt Lake City, Utah
,
Kari J. Nelson
1   Department of Radiology and Imaging Sciences, University of Utah, Salt Lake City, Utah
› Author Affiliations

Abstract

Vascular anomalies (VAs) are a group of rare diseases affecting 0.01 to 0.02% of the population. VA may be associated with complex disorders affecting multiple organ systems, requiring a multidisciplinary approach to treatment. Multidisciplinary clinics are most frequently affiliated with pediatric centers. Multidisciplinary clinics in the adult setting are rare. Many adult VA patients find it difficult to establish care with individual providers, let alone a multidisciplinary clinic, leading to barriers to lifelong comprehensive care.



Publication History

Article published online:
07 November 2024

© 2024. Thieme. All rights reserved.

Thieme Medical Publishers, Inc.
333 Seventh Avenue, 18th Floor, New York, NY 10001, USA

 
  • References

  • 1 Yakes WF, Yakes AM, Continenza AJ. Diagnosis and management of vascular anomalies: the Yakes AVM Classification System. In: Vascular Surgery: Principles and Practice. CRC Press; 2017: 847-862
  • 2 Iacobas I, Singh M, Finger M, Klepper LK, Blei F. Survey of adult patients with vascular anomalies reveals acute need of adult hematologists-oncologists to enter the field. J Vasc Anomalies (Phila) 2022; 3 (01) e036
  • 3 Rochon PJ. Importance of multidisciplinary approach to vascular malformation management. Semin Intervent Radiol 2017; 34 (03) 301-302
  • 4 Vermersch C, Boccara O, Chiaverini C. et al; Research Group of the Société Française de Dermatologie Pédiatrique (French Society of Pediatric Dermatology). Health care transition for patients with vascular malformations: a French multicenter cross-sectional study. Orphanet J Rare Dis 2021; 16 (01) 352-360
  • 5 Harbers VEM, Zwerink LGJM, Rongen GA. et al. Clinical differences in sirolimus treatment with low target levels between children and adults with vascular malformations - A nationwide trial. Clin Transl Sci 2023; 16 (05) 781-796
  • 6 Tzortziou Brown V, Patel I, Thomas N. et al. New ways of working; delivering better care for people with long-term conditions. London J Prim Care (Abingdon) 2017; 9 (05) 60-68