DOI: 10.1055/s-00034612

Yearbook of Medical Informatics

Issue 01 · Volume 29 · August 2020 DOI: 10.1055/s-010-49309

Cover IMIA Yearbook of Medical Informatics 2020

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Cover IMIA Yearbook of Medical Informatics 2020

Contents IMIA Yearbook of Medical Informatics 2020

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Contents IMIA Yearbook of Medical Informatics 2020

President's Statement

001
Koch, Sabine: Informatics in the Times of Change

Obituary

002
Hovenga, Evelyn; Ronald, Judith; Westbrooke, Lucy; Skiba, Diane: Remembering - Joan Edgecumbe (1942-2019)
005
Beuscart, Régis; Bouaud, Jacques; Jaulent, Marie-Christine; Séroussi, Brigitte: Vassilis Koutkias (1975 - 2019) - the Painful Loss of a Rare Person

Editorial

007
Séroussi, Brigitte; Hollis, Kate Fultz; Soualmia, Lina F.: Transparency of Health Informatics Processes as the Condition of Healthcare Professionals’ and Patients’ Trust and Adoption: the Rise of Ethical Requirements

IAHSI Papers

011
Haux, Reinhold; Ball, Marion J.; Kimura, Michio; Martin-Sanchez, Fernando; Otero, Paula; Huesing, Elaine; Koch, Sabine; Lehmann, Christoph U.: The International Academy of Health Sciences Informatics (IAHSI): IMIAs Academy is Now Established and on Track
015
Martin-Sanchez, Fernando; Ball, Marion J.; Kimura, Michio; Otero, Paula; Huesing, Elaine; Lehmann, Christoph U.; Haux, Reinhold: International Academy of Health Sciences Informatics (IAHSI): Strategy and Focus Areas, 1st Version

Keynote

026
Goodman, Kenneth W.: Ethics in Health Informatics

Special Section: Ethics in Health Informatics

Survey

032
Galvin, Hannah K.; DeMuro, Paul R.: Developments in Privacy and Data Ownership in Mobile Health Technologies, 2016-2019
Supplementary Material

Working Group Contributions

044
Kuziemsky, Craig E.; Hunter, Inga; Gogia, Shashi B.; lyenger, Sriram; Kulatunga, Gumindu; Rajput, Vije; Subbian, Vignesh; John, Oommen; Kleber, Araujo; Mandirola, Humberto F.; Florez-Arango, Jose; Al-Shorbaji, Najeeb; Meher, Sushil; Udayasankaran, Jai Ganesh; Basu, Arindam: Ethics in Telehealth: Comparison between Guidelines and Practice-based Experience -the Case for Learning Health Systems
051
Liaw, Siaw-Teng; Liyanage, Harshana; Kuziemsky, Craig; Terry, Amanda L.; Schreiber, Richard; Jonnagaddala, Jitendra; de Lusignan, Simon: Ethical Use of Electronic Health Record Data and Artificial Intelligence: Recommendations of the Primary Care Informatics Working Group of the International Medical Informatics Association
058
Peute, Linda W.; Lichtner, Valentina; Baysari, Melissa T.; Hägglund, Maria; Homco, Juell; Jansen-Kosterink, Stephanie; Jauregui, Ignacio; Kaipio, Johanna; Kuziemsky, Craig E.; Lehnbom, Elin Christina; Leite, Francisca; Lesselroth, Blake; Luna, Daniel; Otero, Carlos; Pedersen, Rune; Pelayo, Sylvia; Santos, Raquel; Silva, Nuno-André; Tyllinen, Mari; Van Velsen, Lex; Zheng, Wu Yi; Jaspers, Monique; Marcilly, Romaric: Challenges and Best Practices in Ethical Review of Human and Organizational Factors Studies in Health Technology: a Synthesis of Testimonies
071
Rivera-Romero, Octavio; Konstantinidis, Stathis; Denecke, Kerstin; Gabarrón, Elia; Petersen, Carolyn; Househ, Mowafa; Merolli, Mark; Mayer, Miguel Ángel: Ethical Considerations for Participatory Health through Social Media: Healthcare Workforce and Policy Maker Perspectives
Supplementary Material

Synopsis

077
Petersen, Carolyn; Subbian, Vignesh; Section Editors Special Section on Ethics in Health Informatics of the International Medical Informatics Association Yearbook: Special Section on Ethics in Health Informatics

Best Paper Selection

080
Best Paper Selection

Section 1: Health Information Management

Survey

081
Riplinger, Lauren; Piera-Jiménez, Jordi; Dooling, Julie Pursley: Patient Identification Techniques – Approaches, Implications, and Findings

Synopsis

087
Bloomrosen, Meryl; Berner, Eta S.; Section Editors for the IMIA Yearbook Section on Health Information Management: Findings from the Health Information Management Section of the 2020 International Medical Informatics Association Yearbook

Best Paper Selection

091
Best Paper Selection

Section 2: Human Factors and Organizational Issues

Survey

093
Hochheiser, Harry; Valdez, Rupa S.: Human-Computer Interaction, Ethics, and Biomedical Informatics

Synopsis

099
Senathirajah, Yalini; Pelayo, Sylvia; Section Editors for the IMIA Yearbook Section on Human Factors and Organizational Issues: Human Factors and Organizational Issues

Best Paper Selection

103
Best Paper Selection

Section 3: Clinical Information Systems

Survey

104
Hübner, Ursula H.; Egbert, Nicole; Schulte, Georg: Clinical Information Systems – Seen through the Ethics Lens

Working Group Contribution

115
Martin-Sanchez, Fernando; Bellazzi, Riccardo; Casella, Vittorio; Dixon, William; Lopez-Campos, Guillermo; Peek, Niels: Progress in Characterizing the Human Exposome: a Key Step for Precision Medicine

Synopsis

121
Hackl, W. O.; Hoerbst, A.; Section Editors for the IMIA Yearbook Section on Clinical Information Systems: Trends in Clinical Information Systems Research in 2019

Best Paper Selection

127
Best Paper Selection

Section 4: Sensor, Signal and Imaging Informatics

Survey

129
Choudhary, Anirudh; Tong, Li; Zhu, Yuanda; Wang, May D.: Advancing Medical Imaging Informatics by Deep Learning-Based Domain Adaptation

Synopsis

139
Hsu, William; Baumgartner, Christian; Deserno, Thomas M.; Section Editors for the IMIA Yearbook Section on Sensors, Signals, and Imaging Informatics: Notable Papers and Trends from 2019 in Sensors, Signals, and Imaging Informatics

Best Paper Selection

143
Best Paper Selection

Section 5: Decision Support

Survey

145
Jankovic, Ivana; Chen, Jonathan H.: Clinical Decision Support and Implications for the Clinician Burnout Crisis

Synopsis

155
Duclos, C.; Bouaud, J.; Section Editors for the IMIA Yearbook Section on Decision Support: Pragmatic Considerations on Clinical Decision Support from the 2019 Literature

Best Paper Selection

158
Best Paper Selection

Section 6: Knowledge Representation and Management

Survey

159
Robinson, Peter N.; Haendel, Melissa A.: Ontologies, Knowledge Representation, and Machine Learning for Translational Research: Recent Contributions

Synopsis

163
Dhombres, Ferdinand; Charlet, Jean; Section Editors for the IMIA Yearbook Section on Knowledge Representation and Management: Design and Use of Semantic Resources: Findings from the Section on Knowledge Representation and Management of the 2020 International Medical Informatics Association Yearbook

Best Paper Selection

167
Best Paper Selection

Section 7: Consumer Health Informatics and Education

Survey

169
Eyers, Tony; Krastev, Yordanka: Ethics in Surgical Innovations from the Patient Perspective

Synopsis

176
Staccini, Pascal; Lau, Annie Y. S.; Section Editors for the IMIA Yearbook Section on Consumer Health Informatics and Education: Social Media, Research, and Ethics: Does Participant Willingness Matter?

Best Paper Selection

181
Best Paper Selection

Section 8: Bioinformatics and Translational Informatics

Survey

184
Fernández, Xosé M.: Untangling Data in Precision Oncology – A Model for Chronic Diseases?

Synopsis

188
Smaïl-Tabbone, Malika; Rance, Bastien; Section Editors for the IMIA Yearbook Section on Bioinformatics and Translational Informatics: Contributions from the 2019 Literature on Bioinformatics and Translational Informatics

Best Paper Selection

192
Best Paper Selection

Section 9: Clinical Research Informatics

Survey

193
Solomonides, Anthony: Review of Clinical Research Informatics

Synopsis

203
Daniel, Christel; Kalra, Dipak; Section Editors for the IMIA Yearbook Section on Clinical Research Informatics: Clinical Research Informatics

Best Paper Selection

206
Best Paper Selection

Section 10: Natural Language Processing

Survey

208
Hahn, Udo; Oleynik, Michel: Medical Information Extraction in the Age of Deep Learning

Synopsis

221
Grouin, Cyril; Grabar, Natalia; Section Editors for the IMIA Yearbook Section on Natural Language Processing: A Year of Papers Using Biomedical Texts:

Best Paper Selection

225
Best Paper Selection

Section 11: Public Health and Epidemiology Informatics

Survey

226
Buckeridge, David L.: Precision, Equity, and Public Health and Epidemiology Informatics – A Scoping Review

Synopsis

231
Cossin, Sébastien; Thiébaut, Rodolphe; Section Editors for the IMIA Yearbook Section on Public Health and Epidemiology Informatics: Public Health and Epidemiology Informatics: Recent Research Trends Moving toward Public Health Data Science

Best Paper Selection

234
Best Paper Selection

Section 12: Cancer Informatics

Survey

235
Griffin, Ashley C.; Topaloglu, Umit; Davis, Sean; Chung, Arlene E.: From Patient Engagement to Precision Oncology: Leveraging Informatics to Advance Cancer Care

Synopsis

243
Warner, Jeremy L.; Patt, Debra; Section Editors for the IMIA Yearbook Section on Cancer Informatics: Cancer Informatics in 2019: Deep Learning Takes Center Stage

246
Best Paper Selection

Research & Education

247
Di Marco, Lionel; Breton, Jean; Martin, Donald K.; Morand, Patrice; Gillois, Pierre: Freedom of Master's Degree Students to Study in Health Curricula: Switching to Optimized Blended Learning as a Solution!

History of Medical Informatics

253
Kulikowski, Casimir A.: Donald A. B. Lindberg: Inspiring Leader and Visionary in Biomedicine, Healthcare, and Informatics

Information on IMIA

259
Welcome to IMIA
261
Honorary Fellows
262
IMIA Member Societies and Corresponding Members
263
Institutional Members
265
Addresses of IMIA Member Societies

Information on IMIA Regions

281
John, Oommen; Schaper, Louise; Wong, CP; Siribaddana, Pandula; Choi, In Young; Marcelo, Alvin; Dissanayake, Vajira H. W.: APAMI
284
Tchuitcheu, Ghislain Kouematchoua; Mostert, Nicky; Ndlovu, Kagiso; Oluoch, Tom; Vroom, Frances da-Costa; Wanyee, Steven; Nanann, Innocent; Wright, Graham: Pan African Health Informatics Association (HELINA)
286
da Silva, Marcelo Lúcio; Kiatake, Luis Gustavo Gasparini; Mora, Emma Alejandra Chávez; Villalba, Cynthia; Murrugarra, Lady; Otero, Paula Daniela: Health Informatics Association for Latin-America and Caribbean (IMIA-LAC)
290
Alhuwail, Dari; Al-Jafar, Eiman; Alshammari, Riyad; Al-Shorbaji, Najeeb; El Hassan, Osama; Al-Hamdan, Zaid; Alshammari, Abdulwahhab; Luque, Luis Fernandez; AL Salmi, Salim; Taweel, Adel; AlKhalifa, Khalid; Househ, Mowafa; Al Thani, Dena A.: Middle East and North African Health Informatics Association (MENAHIA)
295
Greenwood, Karen; McPhee, Eileen; Casselman, Mark; Kushniruk, André: North American Medical Informatics (NAMI)
300
Lovis, Christian; Chronaki, Catherine; Gallo, Parisis; Mantas, John; Pape-Haugaard, Louise; Randell, Rebecca; Stoicu-Tivadar, Lacramioara; Weber, Patrick; Winter, Alfred: EFMI

Miscellaneous

306
Contributors to the 2020 IMIA Yearbook of Medical Informatics
307
Reviewers for the 2020 IMIA Yearbook of Medical Informatics
308
IMIA Yearbook Special Topics