Yearbook of Medical Informatics
Issue 01 · August 2020
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Cover IMIA Yearbook of Medical Informatics 2020
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Cover IMIA Yearbook of Medical Informatics 2020
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Contents IMIA Yearbook of Medical Informatics 2020
I
Contents IMIA Yearbook of Medical Informatics 2020
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President's Statement
001
Koch, Sabine:
Informatics in the Times of Change
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Obituary
002
Hovenga, Evelyn; Ronald, Judith; Westbrooke, Lucy; Skiba, Diane:
Remembering - Joan Edgecumbe (1942-2019)
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005
Beuscart, Régis; Bouaud, Jacques; Jaulent, Marie-Christine; Séroussi, Brigitte:
Vassilis Koutkias (1975 - 2019) - the Painful Loss of a Rare Person
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Editorial
007
Séroussi, Brigitte; Hollis, Kate Fultz; Soualmia, Lina F.:
Transparency of Health Informatics Processes as the Condition of Healthcare Professionals’ and Patients’ Trust and Adoption: the Rise of Ethical Requirements
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IAHSI Papers
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Haux, Reinhold; Ball, Marion J.; Kimura, Michio; Martin-Sanchez, Fernando; Otero, Paula; Huesing, Elaine; Koch, Sabine; Lehmann, Christoph U.:
The International Academy of Health Sciences Informatics (IAHSI): IMIAs Academy is Now Established and on Track
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Martin-Sanchez, Fernando; Ball, Marion J.; Kimura, Michio; Otero, Paula; Huesing, Elaine; Lehmann, Christoph U.; Haux, Reinhold:
International Academy of Health Sciences Informatics (IAHSI): Strategy and Focus Areas, 1st Version
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Keynote
026
Goodman, Kenneth W.:
Ethics in Health Informatics
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Special Section: Ethics in Health Informatics
Survey
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Galvin, Hannah K.; DeMuro, Paul R.:
Developments in Privacy and Data Ownership in Mobile Health Technologies, 2016-2019
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Supplementary Material
Supplementary Material
Working Group Contributions
044
Kuziemsky, Craig E.; Hunter, Inga; Gogia, Shashi B.; lyenger, Sriram; Kulatunga, Gumindu; Rajput, Vije; Subbian, Vignesh; John, Oommen; Kleber, Araujo; Mandirola, Humberto F.; Florez-Arango, Jose; Al-Shorbaji, Najeeb; Meher, Sushil; Udayasankaran, Jai Ganesh; Basu, Arindam:
Ethics in Telehealth: Comparison between Guidelines and Practice-based Experience -the Case for Learning Health Systems
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Liaw, Siaw-Teng; Liyanage, Harshana; Kuziemsky, Craig; Terry, Amanda L.; Schreiber, Richard; Jonnagaddala, Jitendra; de Lusignan, Simon:
Ethical Use of Electronic Health Record Data and Artificial Intelligence: Recommendations of the Primary Care Informatics Working Group of the International Medical Informatics Association
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Peute, Linda W.; Lichtner, Valentina; Baysari, Melissa T.; Hägglund, Maria; Homco, Juell; Jansen-Kosterink, Stephanie; Jauregui, Ignacio; Kaipio, Johanna; Kuziemsky, Craig E.; Lehnbom, Elin Christina; Leite, Francisca; Lesselroth, Blake; Luna, Daniel; Otero, Carlos; Pedersen, Rune; Pelayo, Sylvia; Santos, Raquel; Silva, Nuno-André; Tyllinen, Mari; Van Velsen, Lex; Zheng, Wu Yi; Jaspers, Monique; Marcilly, Romaric:
Challenges and Best Practices in Ethical Review of Human and Organizational Factors Studies in Health Technology: a Synthesis of Testimonies
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071
Rivera-Romero, Octavio; Konstantinidis, Stathis; Denecke, Kerstin; Gabarrón, Elia; Petersen, Carolyn; Househ, Mowafa; Merolli, Mark; Mayer, Miguel Ángel:
Ethical Considerations for Participatory Health through Social Media: Healthcare Workforce and Policy Maker Perspectives
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Supplementary Material
Supplementary Material
Synopsis
077
Petersen, Carolyn; Subbian, Vignesh; Section Editors Special Section on Ethics in Health Informatics of the International Medical Informatics Association Yearbook:
Special Section on Ethics in Health Informatics
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Best Paper Selection
080
Best Paper Selection
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Section 1: Health Information Management
Survey
081
Riplinger, Lauren; Piera-Jiménez, Jordi; Dooling, Julie Pursley:
Patient Identification Techniques – Approaches, Implications, and Findings
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Synopsis
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Bloomrosen, Meryl; Berner, Eta S.; Section Editors for the IMIA Yearbook Section on Health Information Management:
Findings from the Health Information Management Section of the 2020 International Medical Informatics Association Yearbook
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Best Paper Selection
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Best Paper Selection
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Section 2: Human Factors and Organizational Issues
Survey
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Hochheiser, Harry; Valdez, Rupa S.:
Human-Computer Interaction, Ethics, and Biomedical Informatics
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Synopsis
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Senathirajah, Yalini; Pelayo, Sylvia; Section Editors for the IMIA Yearbook Section on Human Factors and Organizational Issues:
Human Factors and Organizational Issues
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Best Paper Selection
103
Best Paper Selection
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Section 3: Clinical Information Systems
Survey
104
Hübner, Ursula H.; Egbert, Nicole; Schulte, Georg:
Clinical Information Systems – Seen through the Ethics Lens
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Working Group Contribution
115
Martin-Sanchez, Fernando; Bellazzi, Riccardo; Casella, Vittorio; Dixon, William; Lopez-Campos, Guillermo; Peek, Niels:
Progress in Characterizing the Human Exposome: a Key Step for Precision Medicine
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Synopsis
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Hackl, W. O.; Hoerbst, A.; Section Editors for the IMIA Yearbook Section on Clinical Information Systems:
Trends in Clinical Information Systems Research in 2019
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Best Paper Selection
127
Best Paper Selection
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Section 4: Sensor, Signal and Imaging Informatics
Survey
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Choudhary, Anirudh; Tong, Li; Zhu, Yuanda; Wang, May D.:
Advancing Medical Imaging Informatics by Deep Learning-Based Domain Adaptation
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Synopsis
139
Hsu, William; Baumgartner, Christian; Deserno, Thomas M.; Section Editors for the IMIA Yearbook Section on Sensors, Signals, and Imaging Informatics:
Notable Papers and Trends from 2019 in Sensors, Signals, and Imaging Informatics
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Best Paper Selection
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Best Paper Selection
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Section 5: Decision Support
Survey
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Jankovic, Ivana; Chen, Jonathan H.:
Clinical Decision Support and Implications for the Clinician Burnout Crisis
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Synopsis
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Duclos, C.; Bouaud, J.; Section Editors for the IMIA Yearbook Section on Decision Support:
Pragmatic Considerations on Clinical Decision Support from the 2019 Literature
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Best Paper Selection
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Best Paper Selection
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Section 6: Knowledge Representation and Management
Survey
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Robinson, Peter N.; Haendel, Melissa A.:
Ontologies, Knowledge Representation, and Machine Learning for Translational Research: Recent Contributions
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Synopsis
163
Dhombres, Ferdinand; Charlet, Jean; Section Editors for the IMIA Yearbook Section on Knowledge Representation and Management:
Design and Use of Semantic Resources: Findings from the Section on Knowledge Representation and Management of the 2020 International Medical Informatics Association Yearbook
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Best Paper Selection
167
Best Paper Selection
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Section 7: Consumer Health Informatics and Education
Survey
169
Eyers, Tony; Krastev, Yordanka:
Ethics in Surgical Innovations from the Patient Perspective
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Synopsis
176
Staccini, Pascal; Lau, Annie Y. S.; Section Editors for the IMIA Yearbook Section on Consumer Health Informatics and Education:
Social Media, Research, and Ethics: Does Participant Willingness Matter?
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Best Paper Selection
181
Best Paper Selection
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Section 8: Bioinformatics and Translational Informatics
Survey
184
Fernández, Xosé M.:
Untangling Data in Precision Oncology – A Model for Chronic Diseases?
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Synopsis
188
Smaïl-Tabbone, Malika; Rance, Bastien; Section Editors for the IMIA Yearbook Section on Bioinformatics and Translational Informatics:
Contributions from the 2019 Literature on Bioinformatics and Translational Informatics
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Best Paper Selection
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Best Paper Selection
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Section 9: Clinical Research Informatics
Survey
193
Solomonides, Anthony:
Review of Clinical Research Informatics
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Synopsis
203
Daniel, Christel; Kalra, Dipak; Section Editors for the IMIA Yearbook Section on Clinical Research Informatics:
Clinical Research Informatics
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Best Paper Selection
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Best Paper Selection
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Section 10: Natural Language Processing
Survey
208
Hahn, Udo; Oleynik, Michel:
Medical Information Extraction in the Age of Deep Learning
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Synopsis
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Grouin, Cyril; Grabar, Natalia; Section Editors for the IMIA Yearbook Section on Natural Language Processing:
A Year of Papers Using Biomedical Texts:
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Best Paper Selection
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Best Paper Selection
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Section 11: Public Health and Epidemiology Informatics
Survey
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Buckeridge, David L.:
Precision, Equity, and Public Health and Epidemiology Informatics – A Scoping Review
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Synopsis
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Cossin, Sébastien; Thiébaut, Rodolphe; Section Editors for the IMIA Yearbook Section on Public Health and Epidemiology Informatics:
Public Health and Epidemiology Informatics: Recent Research Trends Moving toward Public Health Data Science
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Best Paper Selection
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Best Paper Selection
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Section 12: Cancer Informatics
Survey
235
Griffin, Ashley C.; Topaloglu, Umit; Davis, Sean; Chung, Arlene E.:
From Patient Engagement to Precision Oncology: Leveraging Informatics to Advance Cancer Care
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Synopsis
243
Warner, Jeremy L.; Patt, Debra; Section Editors for the IMIA Yearbook Section on Cancer Informatics:
Cancer Informatics in 2019: Deep Learning Takes Center Stage
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Best Paper Selection
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Research & Education
247
Di Marco, Lionel; Breton, Jean; Martin, Donald K.; Morand, Patrice; Gillois, Pierre:
Freedom of Master's Degree Students to Study in Health Curricula: Switching to Optimized Blended Learning as a Solution!
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History of Medical Informatics
253
Kulikowski, Casimir A.:
Donald A. B. Lindberg: Inspiring Leader and Visionary in Biomedicine, Healthcare, and Informatics
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Information on IMIA
259
Welcome to IMIA
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261
Honorary Fellows
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IMIA Member Societies and Corresponding Members
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Institutional Members
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Addresses of IMIA Member Societies
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Information on IMIA Regions
281
John, Oommen; Schaper, Louise; Wong, CP; Siribaddana, Pandula; Choi, In Young; Marcelo, Alvin; Dissanayake, Vajira H. W.:
APAMI
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Tchuitcheu, Ghislain Kouematchoua; Mostert, Nicky; Ndlovu, Kagiso; Oluoch, Tom; Vroom, Frances da-Costa; Wanyee, Steven; Nanann, Innocent; Wright, Graham:
Pan African Health Informatics Association (HELINA)
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286
da Silva, Marcelo Lúcio; Kiatake, Luis Gustavo Gasparini; Mora, Emma Alejandra Chávez; Villalba, Cynthia; Murrugarra, Lady; Otero, Paula Daniela:
Health Informatics Association for Latin-America and Caribbean (IMIA-LAC)
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290
Alhuwail, Dari; Al-Jafar, Eiman; Alshammari, Riyad; Al-Shorbaji, Najeeb; El Hassan, Osama; Al-Hamdan, Zaid; Alshammari, Abdulwahhab; Luque, Luis Fernandez; AL Salmi, Salim; Taweel, Adel; AlKhalifa, Khalid; Househ, Mowafa; Al Thani, Dena A.:
Middle East and North African Health Informatics Association (MENAHIA)
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295
Greenwood, Karen; McPhee, Eileen; Casselman, Mark; Kushniruk, André:
North American Medical Informatics (NAMI)
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300
Lovis, Christian; Chronaki, Catherine; Gallo, Parisis; Mantas, John; Pape-Haugaard, Louise; Randell, Rebecca; Stoicu-Tivadar, Lacramioara; Weber, Patrick; Winter, Alfred:
EFMI
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Miscellaneous
306
Contributors to the 2020 IMIA Yearbook of Medical Informatics
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Reviewers for the 2020 IMIA Yearbook of Medical Informatics
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IMIA Yearbook Special Topics
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