Yearbook of Medical Informatics
Issue 01 · August 2022
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Cover IMIA Yearbook of Medical Informatics 2022
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Table of Contents
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Contents IMIA Yearbook of Medical Informatics 2022
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President's Statement
001
Yu Chuan, Jack Li:
“It was the best of times, it was the worst of times”
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Editorial
002
Mougin, Fleur; Hollis, Kate Fultz; Soualmia, Lina F.:
Inclusive Digital Health
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IAHSI Paper
007
Hersh, William R.; Haux, Reinhold; Huesing, Elaine; Ball, Marion J.; Kimura, Michio; Otero, Paula; Detmer, Don; Koch, Sabine; Saranto, Kaija K.; Wright, Graham:
The International Academy of Health Sciences Informatics: 2021 Update
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Position Paper
011
Botin, Lars:
Datafication: the Flavor and Scent of Data
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Keynote
015
Valdez, Rupa S.; Ancker, Jessica S.; Veinot, Tiffany C.:
Provocations for Reimagining Informatics Approaches to Health Equity
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Special Section: Inclusive Digital Health
Survey
020
Koehle, Han; Kronk, Clair; Lee, Young Ji:
Digital Health Equity: Addressing Power, Usability, and Trust to Strengthen Health Systems
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Working Group Contributions
033
Cresswell, Kathrin; Rigby, Michael; Georgiou, Andrew; Wong, Zoie Shui-Yee; Kukhareva, Polina; Medlock, Stephanie; De Keizer, Nicolet F.; Magrabi, Farah; Scott, Philip; Ammenwerth, Elske:
The Role of Formative Evaluation in Promoting Digitally-based Health Equity and Reducing Bias for Resilient Health Systems: The Case of Patient Portals
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040
Haghi, Mostafa; Benis, Arriel; Deserno, Thomas M.:
Accident & Emergency Informatics and One Digital Health
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047
Kuziemsky, Craig; Liaw, Siaw-Teng; Leston, Meredith; Pearce, Christopher; Jonnagaddala, Jitendra; de Lusignan, Simon:
Towards Equitable and Resilient Digital Primary Care Systems: An International Comparison and Insight for Moving Forward
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060
Kuziemsky, Craig; Hunter, Inga; Udayasankaran, Jai Ganesh; Ranatunga, Prasad; Kulatunga, Gumindu; John, Sheila; John, Oommen; Flórez-Arango, José F.; Ito, Marcia; Ho, Kendall; Gogia, Shahi B.; Araujo, Kleber; Rajput, Vije Kumar; Meijer, Wouter J.; Basu, Arindam:
Telehealth as a Means of Enabling Health Equity
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067
Paton, Chris; Braa, Jørn; Muhire, Andrew; Marco-Ruiz, Luis; Kobayashi, Shinji; Fraser, Hamish; Falcón, Luis; Marcelo, Alvin:
Open Source Digital Health Software for Resilient, Accessible and Equitable Healthcare Systems
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074
Peute, Linda W.; Wildenbos, Gaby-Anne; Engelsma, Thomas; Lesselroth, Blake J.; Lichtner, Valentina; Monkman, Helen; Neal, David; Van Velsen, Lex; Jaspers, Monique W.; Marcilly, Romaric:
Overcoming Challenges to Inclusive User-based Testing of Health Information Technology with Vulnerable Older Adults: Recommendations from a Human Factors Engineering Expert Inquiry
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082
Rivera-Romero, Octavio; Gabarron, Elia; Miron-Shatz, Talya; Petersen, Carolyn; Denecke, Kerstin:
Social Media, Digital Health Literacy, and Digital Ethics in the Light of Health Equity
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Supplementary Material
Supplementary Material
088
Román-Villarán, Esther; Ammenwerth, Elske; Wijayaratne, Jayathri; Parra-Calderón, Carlos Luis:
Desiderata for a New Generation of EHRs for Inclusive Healthcare
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094
Ronquillo, Charlene Esteban; Mitchell, James; Alhuwail, Dari; Peltonen, Laura-Maria; Topaz, Maxim; Block, Lorraine J.:
The Untapped Potential of Nursing and Allied Health Data for Improved Representation of Social Determinants of Health and Intersectionality in Artificial Intelligence Applications: A Rapid Review
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Synopsis
100
Dixon, Brian E.; Holmes, John H.:
Special Section on Inclusive Digital Health: Notable Papers on Addressing Bias, Equity, and Literacy to Strengthen Health Systems
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Best Paper Selection
105
Best Paper Selection
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Section 1: Bioinformatics and Translational Informatics
Survey
106
Tang, Alice; Woldemariam, Sarah; Roger, Jacquelyn; Sirota, Marina:
Translational Bioinformatics to Enable Precision Medicine for All: Elevating Equity across Molecular, Clinical, and Digital Realms
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Synopsis
116
Benton, Mary Lauren; McGrath, Scott Patrick:
2021 Bioinformatics and Translational Informatics Best Papers
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Best Paper Selection
120
Best Paper Selection
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Section 2: Cancer Informatics
Survey
121
Chaunzwa, Tafadzwa L.; del Rey, Maria Quiles; Bitterman, Danielle S.:
Clinical Informatics Approaches to Understand and Address Cancer Disparities
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Synopsis
131
Warner, Jeremy L.; Rooney, Michael K.; Patt, Debra:
Cancer Informatics 2022: Real-World Data Yields Important Insights into the Conduct of Clinical Trials and Registries
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Best Paper Selection
135
Best Paper Selection
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Section 3: Clinical Information Systems
Survey
136
Viitanen, Johanna; Valkonen, Paula; Savolainen, Kaisa; Karisalmi, Nina; Hölsä, Sini; Kujala, Sari:
Patient Experience from an eHealth Perspective: A Scoping Review of Approaches and Recent Trends
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Supplementary Material
Supplementary Material
Synopsis
146
Hackl, Werner O.; Hoerbst, Alexander:
“All Quiet on the Western Front” - Clinical Information Systems Research in the Year 2021
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Best Paper Selection
151
Best Paper Selection
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Section 4: Clinical Research Informatics
Survey
152
Kargl, Michaela; Plass, Markus; Müller, Heimo:
A Literature Review on Ethics for AI in Biomedical Research and Biobanking
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Synopsis
161
Daniel, Christel; Tannier, Xavier; Kalra, Dipak:
Clinical Research Informatics
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Best Paper Selection
165
Best Paper Selection
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Section 5: Consumer Health Informatics and Education
Survey
167
Valdez, Rupa S.; Rogers, Courtney C.:
Consumer Health Informatics for Racial and Ethnic Minoritized Communities: Minor Progress, Major Opportunities
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Synopsis
173
Staccini, Pascal; Lau, Annie Y.S.:
Consuming Health Information and Vulnerable Populations: Factors of Engagement and Ongoing Usage
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Best Paper Selection
181
Best Paper Selection
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Section 6: Decision Support
Survey
184
Stipelman, Carole H.; Kukhareva, Polina V.; Trepman, Elly; Nguyen, Quang-Tuyen; Valdez, Lourdes; Kenost, Colleen; Hightower, Maia; Kawamoto, Kensaku:
Electronic Health Record-Integrated Clinical Decision Support for Clinicians Serving Populations Facing Health Care Disparities: Literature Review
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Supplementary Material
Supplementary Material
Synopsis
199
Borbolla, Damian; Colicchio, Tiago K.:
Clinical Decision Support Systems: Contributions from 2021
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Best Paper Selection
202
Best Paper Selection
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Section 7: Health Information Exchange
Survey
203
Sarkar, Indra Neil:
Transforming Health Data to Actionable Information: Recent Progress and Future Opportunities in Health Information Exchange
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Synopsis
215
Bloomrosen, Meryl; Berner, Eta S.:
Findings from the 2022 Yearbook Section on Health Information Exchange
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Best Paper Selection
219
Best Paper Selection
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Section 8: Human Factors and Organizational Issues
Synopsis
221
Senathirajah, Yalini; Solomonides, Anthony E.:
Best Papers in Human Factors and Sociotechnical Development
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Best Paper Selection
226
Best Paper Selection
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Section 9: Knowledge Representation and Management
Survey
228
Hastings, Janna:
Achieving Inclusivity by Design: Social and Contextual Information in Medical Knowledge
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Synopsis
236
Cui, Licong; Dhombres, Ferdinand; Charlet, Jean:
Knowledge Representation and Management: Notable Contributions in 2021
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Best Paper Selection
241
Best Paper Selection
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Section 10: Natural Language Processing
Survey
243
Aramaki, Eiji; Wakamiya, Shoko; Yada, Shuntaro; Nakamura, Yuta:
Natural Language Processing: from Bedside to Everywhere
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Synopsis
254
Grabar, Natalia; Grouin, Cyril:
Year 2021: COVID-19, Information Extraction and BERTization among the Hottest Topics in Medical Natural Language Processing
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Best Paper Selection
261
Best Paper Selection
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Section 11: Public Health and Epidemiology Informatics
Survey
262
Swertz, Morris; van Enckevort, Esther; Oliveira, José Luis; Fortier, Isabel; Bergeron, Julie; Thurin, Nicolas H.; Hyde, Eleanor; Kellmann, Alexander; Pahoueshnja, Romin; Sturkenboom, Miriam; Cunnington, Marianne; Nybo Andersen, Anne-Marie; Marcon, Yannick; Gonçalves, Gonçalo; Gini, Rosa:
Towards an Interoperable Ecosystem of Research Cohort and Real-world Data Catalogues Enabling Multi-center Studies
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Supplementary Material
Supplementary Material
Synopsis
273
Diallo, Gayo; Bordea, Georgeta:
Novelty in Public Health and Epidemiology Informatics
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Best Paper Selection
276
Best Paper Selection
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Section 12: Sensor, Signal and Imaging Informatics
Survey
277
Carmo, Diedre; Ribeiro, Jean; Dertkigil, Sergio; Appenzeller, Simone; Lotufo, Roberto; Rittner, Leticia:
A Systematic Review of Automated Segmentation Methods and Public Datasets for the Lung and its Lobes and Findings on Computed Tomography Images
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Supplementary Material
Supplementary Material
Synopsis
296
Baumgartner, Christian; Deserno, Thomas M.:
Best Research Papers in the Field of Sensors, Signals, and Imaging Informatics 2021
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Best Paper Selection
300
Best Paper Selection
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Research & Education
303
Shortliffe, Edward H.:
Informatics as Science
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307
Veinot, Tiffany C.; Clarke, Phillipa J.; Romero, Daniel M.; Buis, Lorraine R.; Dillahunt, Tawanna R.; Vydiswaran, Vinod V.G.; Beals, Ashley; Brown, Lindsay; Richards, Olivia; Williamson, Alicia; Antonio, Marcy G.:
Equitable Research PRAXIS: A Framework for Health Informatics Methods
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Supplementary Material
Supplementary Material
History of Medical Informatics
317
Kulikowski, Casimir A.:
Ethics in the History of Medical Informatics for Decision-Making: Early Challenges to Digital Health Goals
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Information on IMIA
323
Information on IMIA
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325
Honorary Fellows
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326
IMIA Member Societies and Corresponding Members
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327
Institutional Members
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329
Addresses of IMIA Member Societies
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Information on IMIA Regional Groups
340
Nakashima, Naoki; Maruf, Rafiqul Islam; Schaper, Louise; Wong, Chun Por; Choi, In Young; Hunter, Inga; Marcelo, Alvin; Tiongson, Nelson; John, Oommen; Gogia, Shashi Bhushan; Hsu, Chien Yeh; Lin, Ming-Chin Mark; Masud, Jakir Hossain Bhuiyan; Dissanayake, Vajira H. W.; Kijsanayotin, Boonchai:
APAMI
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347
Tchuitcheu, Ghislain Kouematchoua; Oluoch, Tom; Wanyee, Steven; da-Costa Vroom, Frances Baaba; Nguefack-Tsague, Georges; Were, Martin; Verbeke, Frank; Wright, Graham; Kamasaka, Carolyn:
Pan African Health Informatics Association (HELINA)
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350
Lúcio da Silva, Marcelo; Kiatake, Luis Gustavo Gasparini; Falcón de Legal, Edith; Orellana-Jimenez, Carlos; Curioso, Walter H.; Otero, Paula Daniela:
Health Informatics Association for Latin-America and Caribbean (IMIA-LAC)
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354
Ghazal, Hassan; Alshammari, Abdulwahhab; Taweel, Adel; ElBokl, Ahmed; Nejjari, Chakib; Alhuwail, Dari; Al-Thani, Dena; Al-Jafar, Eiman; Wahba, Hoda; Alrishidi, Mohammed; Hamdi, Mounir; Househ, Mowafa; El-Hassan, Osama; Alnafrani, Sana; Kalhori, Sharareh Rostam Niakan; Emara, Tamer; Alam, Tanvir; El Otmani Dehbi, Zineb; Al-Shorbaji, Najeeb:
Middle East and North African Health Informatics Association (MENAHIA)
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365
Cimino, James; Kushniruk, Andre; Casselman, Mark:
North American Medical Informatics (NAMI)
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369
Chronaki, Catherine; Benis, Arriel; Mantas, John; Gallos, Parisis; Delgado, Jaime; Parra Calderón, Carlos Luis:
EFMI
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Miscellaneous
374
Contributors to the 2022 IMIA Yearbook of Medical Informatics
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Reviewers for the 2022 IMIA Yearbook of Medical Informatics
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376
IMIA Yearbook Special Topics
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